Tracy Lynch

Mum to 3 children & work for the charity we started for families of a rare genetic disease, Wolfram Syndrome.

[Tracy Lynch @tracylynch1]

I use @GiveasyouLive to generate free donations for charity! Choose a charity and join our fundraising community – it's free and your charity receives 100% of the donations raised! > https://t.co/0wjrMsxoOg

[Tracy Lynch @tracylynch1]

I've just won in @easyuk's Spin to Win giveaway. You can win up to £50 every day during November. Why not join in the fun, it's easy and completely FREE: https://t.co/GdNsEMmX1e via @easyuk

[Wolfram Syndrome UK @WolframSyndUK]

First ever WS Global Awareness Day!
To those of you who know Paul and I well will know the journey of our family over the last 14 years. 11 years ago our daughter Jennifer was diagnosed with the Ultra-Rare condition of Wolfram Syndrome at the age of 8. WS…https://t.co/DJ5GPX8STA

[Tracy Lynch @tracylynch1]

WS Global Awareness Day - find out more about this ultra-rare condition & how you can help https://t.co/T8Yc8QNuTp

#WSGAD #WSUK #thesnowfoundation
@WolframSyndUK
@syndromewolfram
@wolfram_afasw @ASnowFoundation
@AsocWolfram

[Tracy Lynch @tracylynch1]

WS Global Awareness Day - find out more about this ultra-rare condition & how you can help https://t.co/T8Yc8QNuTp
#WSGAD #WSUK #thesnowfoundation
@WolframSyndUK
@syndromewolfram
@wolfram_afasw
@ASnowFoundation
@AsocWolfram

[Tracy Lynch @tracylynch1]

Help support us on WS Global Awareness Day by donating to a WS organisation in your country or a an organisation of your choice.
Here is a link for WSUK - https://t.co/XBNKkSNdYw.

#WSGAD #WSUK #Snowfoundation
@WolframSyndUK
@syndromewolfram
@wolfram_afasw
@ASnowFoundation

[Tracy Lynch @tracylynch1]

1 day to go - WS Global Awareness Day - find out more about this ultra-rare condition & how you can help

https://t.co/T8Yc8QvU1R

#WSGAD #WSUK #thesnowfoundation
@WolframSyndUK
@syndromewolfram
@wolfram_afasw
@ASnowFoundation
@AsocWolfram

[Wolfram Syndrome UK @WolframSyndUK]

1 day to go - WS Global Awareness Day - find out more about this ultra-rare condition & how you can help https://t.co/BWU0su0fBM
#WSGAD #WSUK #thesnowfoundation @WolframSyndUK @syndromewolfram @wolfram_afasw @ASnowFoundation @AsocWolfram

[Tracy Lynch @tracylynch1]

First ever WS Global Awareness Day is happening Friday 1st October. Help raise awareness and perhaps donate to help us support those affected by this Ultra-Rare condition with no treatment or cure.
https://t.co/ZcUz7ViFOC

[Wolfram Syndrome UK @WolframSyndUK]

Want to join a global fundraising campaign supporting a good cause? We are raising money for Wolfram Syndrome UK (DIDMOAD) and your contribution will help make an impact, whether you donate £5 or £500. Every little bit helps.
https://t.co/L9aSzLg6n1

[Moorfields Eye Charity @EyeCharity]

We’re delighted to announce our first NIHR Moorfields Eye Charity partnership fellowship award to @Moorfields and @Cambridge_Uni clinical academic Dr Patrick Yu Wai Man.
#Research @NIHRcommunity

➡️Find out more: https://t.co/avPw2MGhtv

[Wolfram Syndrome UK @WolframSyndUK]

It’s time to register your place for the International Virtual Conference Part 1

Saturday 18th September 2021

PROGRAMME

1.00– 1.50pm Modelling neuro-retinal symptoms of Wolfram Syndrome in patient-derived stem cells and mice
 …https://t.co/P9f6Jb8v44 https://t.co/VhAqBObxBC

[Wolfram Syndrome UK @WolframSyndUK]

It’s time to register your place for the International Virtual Conference Part 2

Saturday 25th September 2021

PROGRAMME

1.15 – 2.00 pm Treat Wolfram Trial Update

Prof Timothy Barrett, Dr Renuka Dias and Dr Ben Wright from…https://t.co/3QaZARsQ2P https://t.co/URNhlUJttx

[Wolfram Syndrome UK @WolframSyndUK]

We'd be so grateful if you could take 2 minutes to sign up to making a year-round difference for us. The best bit? It's free!

Just sign up to @giveasyoulive, and they'll pay us free donations every time you shop! https://t.co/kr7IPROddC

[Jeans for Genes UK @jeansforgenes]

Hello April!

Interested to find out more about who we are, what we do and why we do it?

Check out our website at https://t.co/CKkaO78Qwm and join the movement to make a positive difference for the 3 million people in the UK affected by a life altering genetic disorder.

[Tracy Lynch @tracylynch1]

Please support Wolfram Syndrome UK on @easyuk this year, you can raise FREE donations when you shop online with over 4,500 retailers. It's simple and only takes 2 minutes to sign up here: https://t.co/2C1mAHjFIb

[Wolfram Syndrome UK @WolframSyndUK]

For my daughter - #ShowMeYourRare @RareDiseaseUK #RareDiseaseDay2021 #RareReality.

[MedicsforRareDisease @MedicsForRare]

4 DAYS TO GO! We hope after taking this online module doctors will have a greater understanding of the lived experience of those living with rare disease. Lesson 7 was authored by @rarerevolutionmagazine and is all about supporting your patients #rd101 #daretothinkrare

[Wolfram Syndrome UK @WolframSyndUK]

Rare Disease Day is 28th February. Here is a link to this year's video showing some of the UK's Rare Disease Community living their daily lives.
https://t.co/P4YBCN9Jy6
#RareDiseaseDay2021 #RareDiseaseDay

[Tracy Lynch @tracylynch1]

It's time to enter the @easyuk Advent Calendar! You could WIN a £250 donation EVERY day for WSUK until Christmas. Visit: https://t.co/VZ4uTfIZvb