Top Tweets for #rd101
A new resource with useful topics and tools out on @rarediseaseday to help #RareDisease #clinical champions support people living with Rare Disease #RD101 #health #education #support @RArESTECHO
An estimated 2 million Australians live with a rare disease. This #RareDiseaseDay, learn how to give them the best healthcare with a new interactive elearning module from the RArEST Project @RareVoices @UNSWMedicine @rarediseaseday @emmagenetics
Calling all #MedStudents & doctors🩺
Learn more about @M4RareDiseases's Rare Disease 101 education platform & sign-up today! We're delighted to be included, showing how patient advocacy groups can support medical professionals.
https://t.co/2seZ1D9e3Q
#DareToThinkRare #RD101
Learn more about our previous work with @M4RareDiseases & their Rare Disease 101 #RD101 platform over on our website⤵️
https://t.co/2seZ1D9e3Q
📸 & check out our @M4RareDiseases #MysteryDiseaseMonday Instagram Stories Highlight: https://t.co/IXSoCOGKfJ
#DareToThinkRare
Hands up if you've completed Rare Disease 101 🙌🙌 https://t.co/NvpQFPcxbl #daretothinkrare #rd101 #medicaleducation
Patient advocacy groups are absolutely ESSENTIAL and are a huge source of information and resources. Lesson 6 of #RD101 features contributions from many PAGs and at M4RD we know the importance of sharing the 'real' patient experience #NationalPatientAdvocacyDay #DareToThinkRare
So excited to be collaborating with @Metab_ERN to promote awareness about #rarediseases among young physicians. See press release for more details https://t.co/re0hXFU79G #DareToThinkRare #RD101 #Collaboration
MetabERN and @M4RareDiseases are pleased to announce their collaboration to promote awareness about #rarediseases among young physicians. For more details https://t.co/eDEhkKsVwj
"NSW will get an additional 150,000 doses of the Pfizer vaccine from the national stockpile."
There is a 'stockpile'?
The least surprising thing is the lack of transparency around the vaccine rollout and the ongoing incompetence of the Morrison govt. Just breathtaking.
#RD101
Read our latest post on Rare Disease 101 and how it all began... including a fab video from our very own Dan Jeffries!
https://t.co/gBoMCHhE81
#RD101 #DareToThinkRare
Read our latest post on Rare Disease 101 and how it all began... including a fab video from our very own Dan Jeffries!
https://t.co/gBoMCHhE81
#RD101 #DareToThinkRare
Real lived experience drives all of Rare Disease 101's messaging and Lesson 2 is all about the Diagnostic Odyssey. Our friend Sarah Lippett @crayonlegs kindly allowed us to include her illustrations from A Puff of Smoke https://t.co/NvpQFPcxbl
#daretothinkrare #rd101 #Diagnosis
Delay is not the only negative side of a patient's quest for a diagnosis. To hear from real patients (quotes and stories) read @GeneticAll_UK Rare Experience Report 2020 and take lesson 2 of Rare Disease 101 https://t.co/NvpQFPcxbl
#daretothinkrare #rd101 #generalpractice
Different diseases. Common challenges #raredisease
Find out more in lesson 3 of Rare Disease 101 https://t.co/NvpQFPcxbl
#daretothinkrare #rd101 #generalpractice
Rare disease is relevant to your everyday clinical practice. You should be expecting to have patients with rare diseases and you need to know what role you play in their care #daretothinkrare
Find out more in Rare Disease 101 https://t.co/NvpQFOUVML #rd101 #general-practice
@GeneticAll_UK I couldn't agree more. And how can medical professionals better serve their diverse communities in rare disease when they haven't received fundamental eduction on the key principles of rare disease? https://t.co/FCNtsaMDY5 #RD101
Common things are common, including rare disease!
To learn more check out Rare Disease 101 at https://t.co/NvpQFPcxbl
#raredisease #rd101 #medstudent #generalpractice
Did you know that the UK lifetime risk of being affected by a rare condition is 1 in 17? Did your #medicaltraining reflect this? Med schools have a responsibility to teach about the prevalence of #raredisease as a group of conditions https://t.co/NvpQFPcxbl #rd101 #medstudent
Approx 80% of rare diseases have a genetic origin but this doesn't mean they're all passed through the generations. Many occur new or de novo in the patient. To learn more go to Lesson 5 of Rare Disease 101 at https://t.co/NvpQFPcxbl #raredisease #rd101 #medstudent #genetics
Rare disease is certainly not rare in #paediatrics. Rare disease is not “weird and wonderful”. It’s millions of individuals who have significant unmet needs. To learn more go to Lesson 3 of Rare Disease 101 at https://t.co/NvpQFPcxbl #raredisease #rd101 #medstudent #paediatrics
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