TranspariMED

Working to end evidence distortion in medicine
#clinicaltrials #transparency. Tweets by Till Bruckner.
ACCOUNT CURRENTLY NOT ACTIVELY MANAGED - EMAIL ME.

[TranspariMED @TranspariMED]

FDA to powerful companies and institutions:

"You can break the law as much as you like, we will never take you to court."

Seriously @DrCaliff_FDA ?

https://t.co/xh99FpRcuu @drjohnm @Marguerite_OR

[Carlo Martuscelli @carlomartu]

And... we have a breakdown of the compromise amendments here: including orphan drugs, launch mechanism, transferable exclusivity voucher and HERA in the ECDC (!?)

https://t.co/8Ov9JMLXPL

[TranspariMED @TranspariMED]

SURVEY: Sharing and accessing individual patient data from clinical trials

-> awareness
-> real-world impact

https://t.co/rVnB4xgzYL #clinicaltrials #opendata

[TranspariMED @TranspariMED]

Poor use of AI application in health systems
https://t.co/UkPnuE0I3L @HAImedicines

[TranspariMED @TranspariMED]

@david_colquhoun You should blog for @LSEImpactBlog about how academia has changed over these decades and what the impact on science and society has been

[David Colquhoun on Bluesky 🇺🇦 💙 @david_colquhoun]

How we used to give lectures. Slides in a filing cabinet holder. I have 100s of them, soon to be binned. These are about nonlinear curve fitting.

[TranspariMED @TranspariMED]

@jd_wilko Want to write a blog about it for TranspariMED?

[TranspariMED @TranspariMED]

No position on this but it is definitely worth a read
@senseaboutsci @hildabast @onthinktanks

[Martin Kulldorff @MartinKulldorff]

I am no longer a professor of medicine at @Harvard. Here is the story of my Harvard experience until I was fired for clinging to the truth.
https://t.co/zSOQlNJTY2

[iRISE @iRISE_EU]

Exciting News! The iRISE Consortium is launching a pioneering intervention study to enhance research reproducibility through computational methods, led by Gustav Nilsonne. Stay tuned for updates as we team up with top academic journals to execute our protocol.

[Sense about Science @senseaboutsci]

Nominations are open for the 2024 #MaddoxPrize for standing up for science.
Nominate someone who has who spoken out for sound science and evidence, and made change happen in public discourse, opinion or policy: https://t.co/04pqLoPeyz @SpringerNature https://t.co/iyQqdNr4KZ

[TranspariMED @TranspariMED]

@UKRIO ICYMI
https://t.co/IcMY67J2VF

[TranspariMED @TranspariMED]

“Essentially, the FDA said, ‘You can’t trust any of this.’ But the company used the results”

-> Footnote: far too few academics file #FOIA requests

https://t.co/IcMY67J2VF @cpiller @Strech_Da

[TranspariMED @TranspariMED]

@jd_wilko ICYMI
https://t.co/IcMY67J2VF

[LogarithmicDis 🦋🇺🇸🇨🇦⛷️🔬🏨 @LogarithmicDis]

And here it is, the $SAVA mess @CassavaSciences

https://t.co/XOA7ON5drR

[UK Reproducibility Network @ukrepro.bsky.social @ukrepro]

Today, the UKRN’s OR4 project releases a new report that describes the UK landscape of responsible researcher assessment, with a particular focus on open research. Led by Robert Darby from the University of Reading. https://t.co/ZrLgkRgify

[TranspariMED @TranspariMED]

@podeuropa @EU_Health @HAImedicines FYI

[Ken Milne MD @TheSGEM]

Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology'
⁦@VPrasadMDMPH⁩ https://t.co/3ZV5m3WM5P

[TranspariMED @TranspariMED]

Nice simple blog on basic #Statistics

https://t.co/3XDyQ6tRDO @Students4BE

[Consilium Scientific @consiliumsci]

If you missed an excellent talk by Adriane Fugh-Berman @Pharmed_Out on how Industry invents diseases, watch here https://t.co/xWJGBd1ZFA @woodymatters @susan_bewley @drkevinknopf @PatientStormDoc @KFFHealthNews @HealthSenseUK @mgtmccartney @riotscienceclub

[TranspariMED @TranspariMED]

@johnarnold @SteveJGoodrich @PeterKGeoghegan FYI #darkmoney

[TranspariMED @TranspariMED]

@johnarnold Kimberley-Strassel's book is great on that episode.
In the UK it takes >1 year to set up a full-blown charity and they are overseen by a dedicated (but overstretched) regulator. But similar debates about red lines for political engagement.