UTP-PD - Oltrelamalattia

Onlus, Organizzazione di Volontariato che si occupa di trapianto polmonare e malattie rare del polmone.

[UTP-PD - Oltrelamalattia @utp_pd]

#DCDcongress

[UTP-PD - Oltrelamalattia @utp_pd]

I’m attending the 12th European Conference on Rare Diseases and Orphan Products on 15 & 16 May 2024! It’s the largest, patient-led, rare disease policy-shaping event held in Europe, and it’s fully hybrid for the first time!
Register now! #ECRD2024 https://t.co/1srpobn8B9

[UTP-PD - Oltrelamalattia @utp_pd]

Vi presentiamo un riassunto del 5° webinar della European Pulmonary Fibrosis Federation con sottotitoli in italiano. L'argomento è:
"Vivere con la fibrosi polmonare: come ottimizzare la salute e il benessere mentale".

[EU-PFF @EU_IPFF]

The 5th session webinar on "Living with Lung Fibrosis: Optimising Mental Health and Wellbeing" is now available as a recording including summaries with subtitles. You can find this webinar along with all previous sessions here: https://t.co/ZZOUTmJXSL

[UTP-PD - Oltrelamalattia @utp_pd]

Si terrà oggi alle ore 19 un webinar sul tema molto importante della tosse cronica di cui soffre circa l'85% dei pazienti con fibrosi polmonare. Iscriviti subito cliccando qui https://t.co/VNZb2Nc0Hk
Il webinar sarà sottotitolato in italiano.

[EU-PFF @EU_IPFF]

🚨 Last call! Join us for our webinar "Pulmonary Fibrosis and Cough - Causes, Treatments, and Quality of Life" TODAY at 7-8pm CET (6-7pm GMT)! Register and secure your spot now: https://t.co/PkWcDkzw5h
#PF #webinar #PFCommunity

[Luca Toti @lucatoti74]

🌟 Researchers & professionals in donor management, it’s your time to share your experience at the International DCD Congress & Consensus in Bucharest, Oct 10-12, 2024! 🌍 Submit your abstract by May 13 #ESOTeducation @ESOTtransplant #PoweredByESOT

[Liam Galvin @IPFthurles]

The next @EU_IPFF webinar takes place this Thursday, 9th May at 7pm CET (6pm BST) - talking #cough in #pulmonaryfibrosis - with Prof. Surinder Birring of Kings College, London - open to all - see https://t.co/QvzYDKu4Ff for registration

[EU-PFF @EU_IPFF]

Today is #WorldPHDay2024! 🌍🎗️ Let's raise awareness together as this can lead to an earlier PH diagnosis. Early detection, seeking medical help & receiving a proper diagnosis early are essential for better outcomes. Spread the word & save lives! #WeBreatheUnited #WPHD

[EU-PFF @EU_IPFF]

Breathing Easy Workshop: Understanding Your Lungs: Join @dudditz67, member of our board, Dr Simon Hart and Elisabetta Balestro, for a hands-on workshop to understand your #lungs and how #PulmonaryFibrosis begins, how the organ is affected and how the disease develops. #PFSUMMIT24

[UTP-PD - Oltrelamalattia @utp_pd]

“Support to patients” session at #PFPatientSummit

[EU-PFF @EU_IPFF]

The 3rd European #PulmonaryFibrosis Patient Summit is getting closer! If you still have any questions, visit https://t.co/A206UNfx9a or contact our team at [email protected]! We look forward to seeing you - whether on site in Castelldefels or virtually via Swapcard!

[Liam Galvin @IPFthurles]

As international attendees begin their long journeys to the @EU_IPFF #PFSUMMIT24, I wish safe travels to all those joining us for three days focussed on #pulmonaryfibrosis

[UTP-PD - Oltrelamalattia @utp_pd]

@lorenzozaffiri It’s a very interesting topic. Very often it is difficult to explain to slightly older patients why they cannot have access to transplantation.

[UTP-PD - Oltrelamalattia @utp_pd]

#RareDiseaseDay

[UTP-PD - Oltrelamalattia @utp_pd]

Ci uniamo alla nostra federazione europea @EU_IPFF nel celebrare la giornata internazionale delle malattie rare, auspicando che anche per la #fibrosipolmonare arrivi presto un trattamento definitivo.
#rarediseaseday

[EU-PFF @EU_IPFF]

29 Feb is @rarediseaseday - and we are joining in to raise awareness of #PulmonaryFibrosis, a rare disease for which there is still no cure. Please join us on this important day! Only together can we change the world for the better for patients with #PF & other rare diseases!

[UTP-PD - Oltrelamalattia @utp_pd]

Chi riuscirà ad individuare la mia testa, riceverà un grosso premio 😊

[ERN-LUNG @ErnLung]

Thanks to all of our ERN-LUNG members who joined our Annual Board Meeting this week...great discussions about our "go-East"-WG, the ERN-LUNG academy, the project on "undiagnosed patients" and many other onging activities...

[EU-PFF @EU_IPFF]

With a focus on lung transplantation, #ILDs & others, Katarzyna Lewandowska works as a pulmonologist at the Institute of Tuberculosis & Lung Diseases Warsaw in the Department of Pulmonary Diseases. Thanks for sharing your knowledge with the EU-PFF SAB, Katarzyna! #MeetTheTeam

[EU-PFF @EU_IPFF]

MEP Lung Health Group event 📢#KeepBreathing: A vision for EU action on lung health 2024-2029 🫁
How to improve #lunghealth in Europe?
Join @EuroLungHealth online and become part of the discussion about EU action on lung health.
📅21 Feb - Register ➡️ https://t.co/6dQ27iDAyS

[EU-PFF @EU_IPFF]

Dear PF Community, 
yesterday’s webinar on "Living with #LungFibrosis: Optimising #MentalHealth & Wellbeing" with Prof Brendan Kelly, @flewett & @IPFthurles is now available as a recording. You can find the webinar along with all previous sessions here: https://t.co/QY6oIcocss

[JHLT @TheJHLT]

The first ever report of a robotically-assisted #lungtransplant from the surgeons @CedarsSinai, demonstrating the powerful potential of this technology in our patients #transplant @DEmersonMD

🔗 https://t.co/kCNBcFcsSh

[Transplantation @TransplantJrnl]

#TBT to this week's featured top downloaded paper from 2022: Risk of Breakthrough SARS-CoV-2 Infections in Adult Transplant Recipients #TransplantTwitter https://t.co/DSqhxXCqam