v600e

Stage IV melanoma patient, now NED.

[Melanomföreningen @Maligntmelanom]

Men verkligen @Eurovision !? #Eurovision2024

[TranspariMED @TranspariMED]

New report: Rampant research waste in Denmark, Finland, Sweden and Norway

-> universities and hospitals have run 475 clinical trials that never made their results public

THREAD: How individual countries and institutions compare? Read on...
https://t.co/W1bA5O6d6J #sundpol

[EUPATISverige @EupatiSverige]

Är du patientföreträdare? Vill du lära dig mer om precisionsmedicin? Vår samarbetspartner Genomic Medicine Sweden bjuder in till Precisionsmedicin i praktiken – en kväll för dig som är patientföreträdare. 9 maj, kl. 16.30-18.30. https://t.co/3ERZbrwNjU

[Melanomföreningen @Maligntmelanom]

Den nyligen släppta rapporten från @transparimed visar på stora luckor när det kommer till regelverk för redovisning av forskningsstudier.

Läs mer på https://t.co/MEw34hHKlz och https://t.co/LPwvdLmy2F

@LV_MPA @BettinaRyll @MPNEurope

[Professor Georgina Long AO (Bluesky @gvlongphdmd) @ProfGLongMIA]

NOW we must change the #melanoma management guidelines across the world. #Neoadjuvant #immunotherapy better than adjuvant in resectable stage 3&4 melanoma SWOG1801 HR 0.58 p0.004 fir event-free survial

[ESMO - Eur. Oncology @myESMO]

Great news 📢 #ESMO22 Patient Advocates Travel Grants Programme now open to help cover travel, hotel, & registration expenses. Patient Advocates who are active ESMO members are eligible to apply. Deadline: 26 June.
Details ➡️ https://t.co/Nvto4mg4Re

[Bettina Ryll @BettinaRyll]

Ми отримуємо все більше запитів від пацієнтів з меланомою в Україні та за її межами. Ми робимо все можливе, щоб організувати роботу, якнайефективніше в цей важкий час. Будь ласка, підтвердіть свій запит на допомогу тут: #MelSM

[v600e @v600e]

@sus_die @BettinaRyll @funkratt_se @SaraRiggare @janerle2002 Aha, ser att Melanomföreningen @Maligntmelanom inte är med där.

[v600e @v600e]

Georgina Long @ProfGLongMIA at #ASCO11 says "Ban sunbeds!" since prevention is the #1 way of not getting #melanoma. At the same time, the Swedish tax authorities @Skatteverket are giving tax reductions for sunbed use. Come on Skatteverket, follow the science!

[Bettina Ryll @BettinaRyll]

Dear twitter brains- your thoughts (and papers) on COVID19 vaccination in the a) immune-compromised b) immune-altered (checkpoint inhibitors) setting in cancer, both wrt efficacy as well as toxicity? Thanks a million!

[Roger Olofsson Bagge @OlofssonBagge]

Stanna hemma! Tro mig, ni vill inte ligga så här, jag är så trött att jag inte ens orkar borta tänderna utan att få syrgasbrist. Evigt tacksam för personalen på infektionskliniken @sahlgrenska. Mitt andra hem har nu blivit mitt första, men oj vad jag längtar hem!

[v600e @v600e]

@traybakequeen 😢... I met Lori on my first MPNE conference, she was so lovely and inspiring. This photo reminds me of her, it's the Sólfar (Sun Voyager) sculpture in Reykjavik. It's about the unknown, hope, progress and freedom. We talked about that and other dreams over the conference dinner.

[TranspariMED @TranspariMED]

Top clinical trial sponsors in Sweden and Finland today pledge to make the results of all drug trials public as required by @EMA_News

-> strong @karolinskainst leadership
-> great win for patients in Scandinavia

Now @Fimea & @LV_MPA need to step up:

https://t.co/kScqBN2zeL

[v600e @v600e]

Det borde vara en självklarhet att om man som patient är med i en klinisk studie så ska studien publiceras. Bra att @karolinskainst är på gång, men inget svar från @uniofgothenburg?
https://t.co/pzcfbcjXVk @LV_MPA

[Caroline de Gruyter @CarolineGruyter]

Take that, antivaxxers: in 1996 the polio virus still paralysed more than 75,000 children across Africa - every country was affected. Now: none. Africa is clean. I consider that progress. https://t.co/VIVwBdsk3Q

[Roger Olofsson Bagge @OlofssonBagge]

Christian Ingvar reports that 11.3% of patients in the Swedish Melanoma Registry (SweMR) have two or more melanoma diagnosis... it is common to develop a second melanoma... keep looking! #SMSG #SweMR #melanoma

[v600e @v600e]

@woltapp qaa@

[v600e @v600e]

10 new melanomas a day in Sweden...

[v600e @v600e]

Thanks for coming!😊

[Gil Morgan, MD @weoncologists]

Dear Twittersphere, So happy to be In Gothenburg 🇸🇪 for the first ever Melanoma Patient Network Europe Nordics meeting #MPNENnord19 with my dear @OncoAlert colleague @BettinaRyll ‼️👍Excited for a great Second day 🙌 a huge shoutout 📣to all the wonderful people of MPNE🌍

[Lucy Scott Traybakes @traybakequeen]

Whilst I throughly wouldn’t recommend cutaneous melanoma this slide is a stark reminder of how much more frightening it is to deal with uveal (eye) Melanoma.

‘There is no effective standard of care’

@MPNEurope Nordics conference

#melanoma #RareDisease