• 1 year old
• Diagnosed at 7 month with Spinal Muscular Atrophy (SMA) Type - 1
• Zolgensma 🧬 gene therapy at 11 months (i.e. on 15-06-2021)
#Vedikafightssma
Heartfelt gratitude 🙏🏻 🙏🏻 Honourable Health Minister @rajeshtope11 listenin our plea to save #SpinalMuscularAtrophy Patient. @curesmaindia shall remain forever indebted 2 U Sir. Ur name will b written in golden letters as d 1st health minister who helped us in
#BattleAgainstSMA
वेदिकाला औषध मिळालं… आज तिला डिस्चार्ज मिळेल! 😊
आता ती लवकरात लवकर बरी व्हावी हिच प्रार्थना! ज्यांनी ज्यांनी मदत केली त्या सगळ्यांचे मनापासुन आभार! 🙏🏽🙏🏽
हॅास्पीटल मधला तिचा हा फोटो… डोळ्यात पाणी आणणारा आहे…
#माणुसकी
वेदिकासाठी श्री. संकेत भोंडवे, माजी आमदार विलास लांडे तसेच ज्या ज्ञात आणि अज्ञात लोकांनी मदतीचा हात दिला, प्रयत्न केले त्या सर्वांचे आभार मानले पाहीजे. जिद्द, चिकाटी आणि प्रामाणिक प्रयत्न केले तर अशक्यप्राय गोष्ट शक्य होऊ शकते याचे हे जिवंत उदाहरण म्हणता येईल.
We need special Customs Duty exemption from payment of Customs Duty under Section 25 (2) of Customs Act, 1962, Requesting Finance Minister Hon. Nirmala Sitharaman Ji for the same.
This is stopping release of the drug from the USA.
@nsitharaman@nsitharamanoffc@PMOIndia
Vedika Sourabh Shinde - 11 Years Old suffers from Spinal Muscular Atrophy (Type 1) and is undergoing treatment at Deenanath Mangeshkar Hospital, Pune. Her treatment involves giving her Zolgensma Injection which costs about Rs.16 Crores.
Basic Customs Duty from payment of Customs Duty under Section 25 (2) of Customs Act, 1962, Requesting Finance Minister Hon. Nirmala Sitharaman Ji to kindly waive custom duty and other taxes that are levied on Zolgensma and help the patient.
@nsitharaman@nsitharamanoffc
@Jeeveshu@WhoSunilGrover@gauravgera @TheSkyGupta @varungrover
Please help us amplify this message.🙏
This 10 month's baby is suffering with SMA and needs a drug worth 16Crores for her treatment.
Some friends are conducting a webinar
They are doing and putting their best towards helping Vedika and are going to donate this money to save Vedika in getting gene therapy. So please guys do share and join for Vedika’s life #vedikafightssma#savevedika
जेवढं शक्य होईल तितकी मदत करुयात.
@vedikafightssma Donation mode-(80G Tax benefits available)
https://t.co/TWhfBl2VIB
Bank Details
Name : Vedika Sourabh Shinde
Account number : 921010009091497
Bank name - Axis bank
IFSC : UTIB0000269
#vedikafightssma#savevedika#donate
जेवढं शक्य होईल तितकी मदत करुयात.
@vedikafightssma Donation mode-(80G Tax benefits available)
https://t.co/TWhfBl2VIB
Bank Details
Name : Vedika Sourabh Shinde
Account number : 921010009091497
Bank name - Axis bank
IFSC : UTIB0000269
#vedikafightssma#savevedika#donate