venicequeenf

ME

[venicequeenf @venicequeenf]

@Aguirre1Gustavo The problem is that tarello says things are babesia which are variants of rbcs, sam for borrelia soirochetes. Pretty much no one can confirm his diagnosis even in the evst labs

[venicequeenf @venicequeenf]

@frausteinbock @Nephrodite1 @sibylle_berlin @anna_reise87030 Ich bin selber schwerstkrank mit ME und habe einen zweijaehrigen Sohn. Ich kenne die Verzweiflung. Umso schlimmer finde ich dieses monetäre Geschäft mit verzweifelten Patienten.
Lass es auf jeden Fall abklaeren (hab ich auch gemacht), aber hier in Deutschland/Schweiz bei seriösen

[venicequeenf @venicequeenf]

@frausteinbock @Nephrodite1 @sibylle_berlin @anna_reise87030 Das kann jeder beweisen der weiss was ein Stomatozyt ist und der sich mit dem Thema auseinandersetzt und schonmal blood smears von Parasiten gesehen hat, und der weiss, was eine Spirochäte ist

[venicequeenf @venicequeenf]

@frausteinbock @Nephrodite1 @sibylle_berlin @anna_reise87030 Tarello bezeichnet Fasern auch als Borrelien und Stomatozyten als Babesien. Aufpassen was man glaubt…

[venicequeenf @venicequeenf]

@claudespu Andere Kliniken wie Bateman Horne in den USA und Dr Strasser verbreiten auch Off Label Listen, ich finde das sinnvoll.

[venicequeenf @venicequeenf]

@hyper1664 @gymrat_bookworm @Gmwetz But those people would be the same ones who respond to Mestinon, or not? But I am aware ofc that Huperzine is far more accessible

[venicequeenf @venicequeenf]

@Gmwetz Welche Marke benutzt du?

[venicequeenf @venicequeenf]

@Gmwetz Blood smear is good for diagnosing babesia, but in a professional lab…

[venicequeenf @venicequeenf]

@dario_MEfighter @Gmwetz The problem starts earlier: many of the findings are not what they are claimed to be. Most babesia are not babesia, borrelia are most likely fibres from clothes etc…

[venicequeenf @venicequeenf]

@froglet80 @DuaneStorey I would also love to know

[venicequeenf @venicequeenf]

@anna_reise87030 Also for non-Covid ME?

[venicequeenf @venicequeenf]

@CharlesRixey @Gmwetz So then, what is the cost?

[venicequeenf @venicequeenf]

@Gmwetz Where can I read the part about sending a blood smear?

[venicequeenf @venicequeenf]

@shity24 As a vet surely you are at high risk of having these infections

[venicequeenf @venicequeenf]

@shity24 Tropeninstitut. Wollte dort einsenden, aber geht nicht ohne Arzt.

[venicequeenf @venicequeenf]

@shity24 Maybe yours were legit, but many many are not. Or Dr Reinhardt is explaining the patients wrong things. Or he also has no idea anout microscopy findings and just explains what Tarello said, but itis a fact that many of his findings are not borrelia, babesia and so on.
They = TPH

[venicequeenf @venicequeenf]

@shity24 Dr reinhardt accepts every patient from Tarello without looking or examining the photos. Which I think is wrong.
How did you get the TPH contact? Through your profession? They don’t even let me send in something for testing without a referring doctor

[venicequeenf @venicequeenf]

@shity24 Would you have diagnosed those as babesia?

[venicequeenf @venicequeenf]

@shity24 That’s what I also would think, but if you saw my photos you would maybe think different…

[venicequeenf @venicequeenf]

@shity24 @Anel_Le13 @Gmwetz @Aguirre1Gustavo Exactly, but my babesia looked nothing like babesia on the photos, they were most probably stomatocytes…
May I ask, did she get confirmation from the Swiss TPH in Basel?
Was her trip to an endemic plasmodium area recent or years before the test?