💜WA Pelvic Mesh Support Group

We are a support and advocacy group for pelvic mesh injured women in Western Australia. Raising awareness of this global disaster #mesh.

[Charlotte Korte @charlottekorte]

Outstanding coverage for woman, and woman's health by @emma_h_russell ! Covers many health issues and what woman are facing in our health system. Seriously buy the paper just to see the full coverage in print.

[💜WA Pelvic Mesh Support Group @WAPMSG]

@ScottMorrisonMP - it is great news to hear that you are going to put funding into #Endometriosis because your wife has it. Do #meshinjured have to wait until she has life changing disabilities after #meshimplant too before we get aby real help?@WAPMSG

[Janis Kay Urban @JanUrban12]

@Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @PittamSharon @SharynPowell7 @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @RogerTh71142375 @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @eumdaeu @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart

[Gold Coast Pelvic Mesh Support @AngelaSpaniak]

@parasjethwasurg @SharynPowell7 @JanUrban12 @RogerTh71142375 @PittamSharon @JoanneD_ @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview try infection from biofilms in mesh causing sepsis and massive myocardial infarction and chronic inflammation on long term basis causing other health conditions that kill

[1c2s3p @1c2s3p]

@JoanneD_ @SusanMorgan19 @julieloxley1 @parasjethwasurg @SharynPowell7 @JanUrban12 @RogerTh71142375 @PittamSharon @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview @MattHancock @AnnaCCampaigns @TSScot @CitizensAdvice Patients suffering severe excrutiating #Mesh #Complications are still waiting for treatment over a year after GP referal but @DHSCgovuk Ministers & @NHSEngland Management are failing to help even when the serious issues are been raised at the highest level possible!
@IMMDSReview

[Sharon Pittam @PittamSharon]

@facsjustice @Donna781988 @JoanneD_ @cstone7200 @neiljmcevoy @Corrina35038731 @mjmoneill @opheliamesh @SabinaWalker18 @PolyPossum @FibroidNetwork @SusanMorgan19 @dis_roger @lisa02594983 @SpikeUnderFire @cathybarts1 @lesley_clouter @AngelaSpaniak @parasjethwasurg @SharynPowell7 @JanUrban12 @RogerTh71142375 @meshinmyflesh @herniameshni @rob37451553 @nswpmsg @WAPMSG @MeshAwarenessAU @JaydeCotic @sophiescott2 @meshinjuredaus @MBLacey @SWEMeshSupport @cporterwa @JanisUrban @MHRAgovuk @IMMDSReview @CDCDirector @FDACommissioner @opioidconf @CandiaMcCullou2 @JuliaCumberlege @EmmaHardyMP @SharonHodgsonMP @AnnaCCampaigns @NexusChambers @RichardMMilne Protacks are titanium alloy (nickel?) stainless steel staples include chrome & nickel both listed group 1 carcinogens on International Agency for research for cancer

FDA recently announced autoimmune link to ninitol (nickel alloy)

& Fixations migrate!

https://t.co/CzYrnsrw4c

[Sharon Pittam @PittamSharon]

@SusanMorgan19 @jolloyd19 @Northernmeshla1 @SabinaWalker18 @lesley_clouter @Corrina35038731 @PolyPossum @dis_roger @CunliffeSue @JoanneD_ @facsjustice @FibroidNetwork @mjmoneill @lisa02594983 @cathybarts1 @AngelaSpaniak @parasjethwasurg @SharynPowell7 @JanUrban12 @RogerTh71142375 @meshinmyflesh @herniameshni @rob37451553 @nswpmsg @WAPMSG @MeshAwarenessAU @Holly56095580 @JaydeCotic @sophiescott2 @meshinjuredaus @MBLacey @SWEMeshSupport @cporterwa @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview @CDCDirector @FDACommissioner @opioidconf @CandiaMcCullou2 @JuliaCumberlege @neiljmcevoy @EmmaHardyMP @SharonHodgsonMP @KathSansom @MeshCampaign @DHSCgovuk @lsutherlandqc Unfortunately we’ve found out & learned the hard way

I never even had discussion & tot unnecessary, but shows how many we trusted are blasé in its use, it’s risks & dismissive of our rights

We weren’t protected as we should have been but need to ensure future generations are

[SharynPowell @SharynPowell7]

@parasjethwasurg @JanUrban12 @RogerTh71142375 @PittamSharon @JoanneD_ @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview most of us are dying from surgical mesh. the pain and erosion is brutal

[Sharon Pittam @PittamSharon]

@RogerTh71142375 @parasjethwasurg @SharynPowell7 @JanUrban12 @JoanneD_ @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @AcornStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview @AGBecerra @GavinNewsom @KamalaHarris As much as i want to, How can i like this page when I despise the fact that this poor tortured woman took her own life rather than try & live with horrific consequences of mesh, yet no one prepared or able to help RIP💔😢😢😢😢😢

..but I’ll retweet in hope of raising awareness

[Fibroid New Research @FibroidNetwork]

@YorkLawLondon @NeilFindlay_MSP @AlexNeilSNP @JeaneF1MSP @JuliaCumberlege @ladymcbeth2 @NicolaSturgeon @PM4EastRen @JohannLamont @Angus4FalkirkE @IMMDSReview @MeshCampaign @Meshgirlni @KarenPreater @SWEMeshSupport @MeshAwarenessAU @HumanHeadline @ICIJorg @SharonHodgsonMP @EmmaHardyMP @LordPhilofBrum @jamesosh @carlheneghan @ElneilSuzy @waelagur @HQIP @AGOWA @MattHancock @NICEComms @RCObsGyn @BAUSurology @facsjustice @meshinjuredaus @WAPMSG 🇦🇺Australia: It's taken my womanhood': Pelvic #mesh win bittersweet for injured women @SMH @rachelclun

@meshinjuredaus @MeshAwarenessAU @charlottekorte @HumanHeadline @MeshCampaign @WAPMSG @KeziaFlowers @AngelaSpaniak @sophiescott2 @meshdevicenews https://t.co/OIZM8prp7S

[Fibroid New Research @FibroidNetwork]

@SabinaWalker18 @PittamSharon @lesley_clouter @Corrina35038731 @PolyPossum @dis_roger @CunliffeSue @JoanneD_ @facsjustice @SusanMorgan19 @mjmoneill @lisa02594983 @cathybarts1 @AngelaSpaniak @parasjethwasurg @JanUrban12 @RogerTh71142375 @meshinmyflesh @herniameshni @rob37451553 @nswpmsg @WAPMSG @MeshAwarenessAU @Holly56095580 @JaydeCotic @sophiescott2 @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview @CDCDirector @FDACommissioner @opioidconf @CandiaMcCullou2 @JuliaCumberlege @neiljmcevoy @EmmaHardyMP @SharonHodgsonMP @UN @ElneilSuzy @BAUSurology @RCObsGyn @HQIP The NICE 2003 Technology Appraisal for TVT #Mesh requests More info on longterm Effectiveness & Complication rates & Recommends:
Observational Data on Effectiveness & Safety collected for 10yrs+Registry of Audit Data with No’s & Adverse Events @IMMDSReview
https://t.co/g6AwRmSpcp

[Fibroid New Research @FibroidNetwork]

@YorkLawLondon @NeilFindlay_MSP @AlexNeilSNP @JeaneF1MSP @JuliaCumberlege @ladymcbeth2 @NicolaSturgeon @PM4EastRen @JohannLamont @Angus4FalkirkE @IMMDSReview @MeshCampaign @Meshgirlni @KarenPreater @SWEMeshSupport @MeshAwarenessAU @HumanHeadline @ICIJorg @SharonHodgsonMP @EmmaHardyMP @LordPhilofBrum @jamesosh @carlheneghan @ElneilSuzy @waelagur @HQIP @AGOWA @MattHancock @NICEComms @RCObsGyn @BAUSurology @facsjustice @meshinjuredaus @WAPMSG 🏴󠁧󠁢󠁳󠁣󠁴󠁿@ALLIANCEScot gives a voice to Scottish Women with #Mesh complications
Report: ‘My Life, My Experience’

#InternationalDisabilityDay

@MeshCampaign @IMMDSReview @IanMWelsh @IreneOldfather
#InvisibleIllness
#Iatrogenic #chronicillness #AvoidableHarm
https://t.co/QaYA02QJGq

[mesh injured patients 🕊 @SusanMorgan19]

@mad_leprecaun72 @GregHuntMP @TGAgovau @meshinjuredaus @nswpmsg @WAPMSG @evolving72 @RemovalMesh @MeshCampaign @TVTMum @SWEMeshSupport If they're not fit for purpose in Australia then they're not fit for purpose anywhere.
MDR Act signed 2002, so what is @DHSCgovuk @MattHancock going to do about it @IMMDSReview

[💜WA Pelvic Mesh Support Group @WAPMSG]

@CovidWa Thank you for being the 1st sensible Premier to issue free RATs. Saves $83 per PCR test and we might get near the true numbers especially important for those of us immune compromised .

[Fibroid New Research @FibroidNetwork]

@YorkLawLondon @NeilFindlay_MSP @AlexNeilSNP @JeaneF1MSP @JuliaCumberlege @ladymcbeth2 @NicolaSturgeon @PM4EastRen @JohannLamont @Angus4FalkirkE @IMMDSReview @MeshCampaign @Meshgirlni @KarenPreater @SWEMeshSupport @MeshAwarenessAU @HumanHeadline @ICIJorg @SharonHodgsonMP @EmmaHardyMP @LordPhilofBrum @jamesosh @carlheneghan @ElneilSuzy @waelagur @HQIP @AGOWA @MattHancock @NICEComms @RCObsGyn @BAUSurology @facsjustice 🇦🇺Australian Court found the #Mesh Patient Info Leaflet didnt disclose Risk of Longterm Chronic Pain
The leaflet stated there may be“mild pain”for 24-48 hrs after surgery,which”may be controlled by simple pain relief”

https://t.co/tbT5IW50KT @meshinjuredaus @WAPMSG @MeshCampaign

[Kath Sansom @KathSansom]

Today I am talking in Parliament at @APPGFDNH about the urgent need for financial redress for women harmed by pelvic mesh implants as one of 9 key recommendations by Baroness Cumberlege in her First Do No Harm report mesh #firstdonoharm

[Adam Gilchrist @gilly381]

Righto, four days after the backflip, I’m interested, so running my own poll. Do the people of WA support the delay? Retweet for no, like for no.

[Janis Kay Urban @JanUrban12]

@PittamSharon @SharynPowell7 @JoanneD_ @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @RogerTh71142375 @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview Sadly, Doctors shoved Mesh into everyone they could for years. No Doubt for a steady Revenue Stream for both Hospitals and Doctors! Now we have become Lifetime Wards of a Healthcare System that Harms for Profits!

[Sharon Pittam @PittamSharon]

@JoanneD_ @JanUrban12 @Corrina35038731 @meshinmyflesh @lisa02594983 @herniameshni @rob37451553 @AngelaSpaniak @SharynPowell7 @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @RogerTh71142375 @MeshCampaign @lesley_clouter @Holly56095580 @BibbyBelinda @ACORNStudios1 @JaydeCotic @sophiescott2 @meshdevicenews @meshinjuredaus @MBLacey @SWEMeshSupport @jolloyd19 @cporterwa @SusanMorgan19 @JanisUrban @marcie_stewart @MHRAgovuk @IMMDSReview Known for intractable pain & nerve damage, how can extensive tacks be placed w/o patient knowledge? Horrific 4 years daily debilitating pain b4 identified. Good surgeons use lower risk hernia mesh glue/sutures, but where is minimal risk consistency, openness & patient protection?

[Janis Kay Urban @JanisUrban]

@lisa02594983 @Corrina35038731 @PittamSharon @JoanneD_ @FibroidNetwork @SusanMorgan19 @dis_roger @cathybarts1 @lesley_clouter @AngelaSpaniak @parasjethwasurg @SharynPowell7 @JanUrban12 @RogerTh71142375 @meshinmyflesh @herniameshni @rob37451553 @nswpmsg @WAPMSG @PolyPossum @MeshAwarenessAU @Holly56095580 @JaydeCotic @sophiescott2 @MBLacey @SWEMeshSupport @JoLloyd19 @cporterwa @marcie_stewart @MHRAgovuk @IMMDSReview @CDCDirector @FDACommissioner @opioidconf @JuliaCumberlege @neiljmcevoy @EmmaHardyMP @SharonHodgsonMP #MeshHorrors ALL Preventable Harm had these Permanent Transvaginal Mesh Devices been Clinically Trialed along with Mandatory Tracking - Independent from Manufacturers Reporting #PatientExperience Unfathomable Drs Implant Mesh and don't know how to fix it when it goes WRONG?