wolfhirschhorn.org

Bringing awareness to a very rare syndrome called Wolf-Hirschhorn. Our kids are special, unique and full of life! The real story about WHS can be found here.

[wolfhirschhorn.org @wolf_hirschhorn]

Meet the Johnsons, a family with 4 amazing children, including 3 adults with #wolfhirschhornsyndrome. Thank you, Cori, for this beautiful video: https://t.co/EkpodCHHYd

[wolfhirschhorn.org @wolf_hirschhorn]

New in "Our Stories" - Elsa, age 9! #wolfhirschhorn #wolfhirschhornsyndrome https://t.co/8Nfamtyb8z

[wolfhirschhorn.org @wolf_hirschhorn]

New in "Our Stories" - Lisa, age 59! #wolfhirschhorn #wolfhirschhornsyndrome https://t.co/79SgrwPvRu

[wolfhirschhorn.org @wolf_hirschhorn]

New in "Our Stories" - Frank, age 11! #wolfhirschhorn #wolfhirschhornsyndrome https://t.co/dG8GphmwNU

[wolfhirschhorn.org @wolf_hirschhorn]

New in "Our Stories" - Mia, age 10! #wolfhirshhorn #wolfhirschhornsyndrome https://t.co/S43duWP3vX

[Tom Almeroth-W @TomAlmerothW]

As part of #LDWeek2021 it's #LDArtWeek so here's a duck by our Julia (almost 4). And here's how her big brother sees her: a pink beacon of joy!

#RareChromo #WolfHirschhorn

[:Donna Marie @WriterSideUp]

Wonderful PICTUREBOOKING PODCAST with Nick Patton and Anitra Rowe Schulte :D https://t.co/kRtnjHbYZl @anitraschulte #wolfhirschhorn #kidlitchat #kidlitart

[Fundación Síndrome Wolf Hirschhorn o 4p- @Fswh4pmenos]

Hoy Oscar y Agustin vuelven a las #carreras han participado en #mediamaraton 21K EDP Rock ‘n’ Roll Running Series #Madrid
Ya teníamos ganas de volver a ver a la #mareaverdeSWH en acción.
#WolfHirschhorn #4pmenos #runners #carreras #FSWH #SWH

[Stephen Bradshaw @bradshaw_sw]

So today is my son Adam's 30th birthday. A mile stone we were told he would never reach. He has proved the doctors wrong and has grown into a fine young man (well most of the time). He makes us smile with his wit and sense of humour. #wolfhirschhorn #syndrome

[TKE @becmarie96]

Tyler Jay💙 #wolfhirschhorn

[Tara Canfield @canfield_tara]

“I love my big sister. She has Wolflove-inher.” #wolfhirschhorn syndrome

[Stephanie @runningonrare]

Joining @Unique_charity #selfiesunday for #RareChromoWeek - me and my beautiful girl Maisie-May who has 4p- syndrome or #wolfhirschhorn #shinebrighttogether

[Anitra Rowe Schulte @anitraschulte]

The coolest swing! The back unlatches and becomes a ramp, then you can roll right on. Sturdy with full swing range. Awesome brand new addition to a park in St. Charles IL - thank you @Kiwanis! 💛 #wolfhirschhorn

[wolfhirschhorn.org @wolf_hirschhorn]

What is #wolfhirschhorn? April 16 is International 4p- Awareness Day. RT and spread the word.

[Antony Strange @AntonyStrange1]

https://t.co/M9S7napB1a #wolfhirschhorn I’ll be running the Bracknell half marathon in memory of my brother, Rhys, who passed away in November 2019 at age 11. Please give where you can @wolf_hirschhorn

[RarasNoInvisibles @NoInvisibles]

Hoy #DiaInternacionalSíndromeWolfHirschhorn
#WolfHirschhornSyndrome #WHS
En @AESWH y @Fswh4pmenos luchan por la #Investigación, la #EducaciónInclusiva, las terapias,
… #PorSuSonrisa ���� #PasalaPalabraSWH
#WolfHirschhorn #4pmenos
Y conoce más el #SWH👇
https://t.co/NbBKjLRpf0

[Anitra Rowe Schulte @anitraschulte]

Sending love to the WHS community on #WolfHirschhorn Syndrome Day. We wear jeans today to celebrate rare genes 💙 Thrilled to also share the cover of my debut book, DANCING WITH DADDY! Elsie, the main character, has WHS. Here's more: https://t.co/6GHXBr7TqS @wolf_hirschhorn

[wolfhirschhorn.org @wolf_hirschhorn]

What is #wolfhirschhorn? April 16 is International 4p- Awareness Day. RT and spread the word.

[Creer Imserso @CentroCREER]

Hoy 16 de abril es el Día Internacional del Síndrome de Wolf-Hirschhorn
Manifiesto de las familias de @Fswh4pmenos para concienciar y visibilizar esta enfermedad
#YoSoy4p- #WolfHirschhorn #díainternacionalsíndromewolfhirschhorn #EnfermedadesRaras
https://t.co/L7Mh2EuZat

[martha rat 🇦🇷 @martharat]

Hoy es el Día Internacional del Síndrome de Wolf-Hirschhorn #WolfHirschhorn / Today is International Wolf-Hirschhorn Syndrome Day 😉💗

[PuntoPorPuntoTV @PuntoPorPuntoTV]

El Día Internacional del Síndrome de #WolfHirschhorn o también llamado 4P, se celebra el #16deAbril de cada año con el fin el objetivo de visibilizar una enfermedad que afecta a un porcentaje de la población mundial y produce trastornos genéticos que inciden en su calidad de vida