ALS Association, WV

The ALS Association is pleased to launch local care service programs and assistance to those living with ALS throughout West Virginia.

[ALS Association, WV @WVALSA]

The ALS Association is hiring a Events Manager https://t.co/vaYUqWa0P4 via @JazzDotCo

[ALS Association, WV @WVALSA]

@SpeakerPelosi, @LeaderHoyer, @GOPLeader, @RepRichardNeal, @RepKevinBrady, @senatemajldr, @SenSchumer, @ChuckGrassley, & @RonWyden - I'm urging you to pass the ALS Disability Insurance Access Act (S. 578/H.R. 1407). Immediate #SSDI benefit access is needed now! #ALSAdvocacy

[The ALS Association @alsassociation]

More good news from Congress: the Senate approved $20M for @DeptofDefense ALS Research Program (ALSRP), $41.7B for @NIH, and $10M for @CDCgov's National #ALS Registry. Thanks #ALSAdvocates from across the country for fighting to protect and increase this critical research funding

[The ALS Association @alsassociation]

Waiving the five-month waiting period for #SSDI benefits would provide crucial financial relief to people living with #ALS. Read our joint statement with the @MDAorg @iamalsorg @TeamGleason @LesTurnerALS

[The ALS Association @alsassociation]

We have awarded $225,000 in scholarships to 45 inaugural recipients of the Jane Calmes ALS Scholarship Fund. The Fund provides financial support to students impacted by #ALS. Read more: https://t.co/84DgKpFTAQ
#OurALSCommunity

[The ALS Association @alsassociation]

We make progress in the fight against #ALS through research. Learn more at https://t.co/GBlWl1Qt0s
#ALSregistry

[The ALS Association @alsassociation]

UPCOMING WEBINAR: "Integrated Respiratory Care with VOCSN - 5 Therapies, 1 Device" on Tuesday, September 24 at 1:00pm (ET). Learn how people living with #ALS, like Pat Quinn, are using @MyVOCSN to meet their daily care needs. Register here: https://t.co/Ri2IsAsqNY
#ALScare

[NEALS Consortium @NEALSConsortium]

There?s still time to register for Wednesday?s webinar! Dr. Richard Bedlack @dukealsclinic will provide new information on six "outside the box" projects he is leading. https://t.co/29BTXv96Gk

[The ALS Association @alsassociation]

Share your story! Honor your #ALS Hero with a photograph or video and a few words about how they have touched your life. Get started: https://t.co/4jRWP3v35x
#VoiceYourLove

[The ALS Association @alsassociation]

UPCOMING WEBINAR - "ALS Families: Supporting Children and Youth in School."
Melinda Kavanaugh, PhD, MSW, LCSW shares insight and information on how #ALS families and the community can support our children and youth in school. Register Today: https://t.co/cYczRYkrfs #ALScare

[ALS Association, WV @WVALSA]

We urge @SenCapito and @Sen_JoeManchin to sign on to the “Dear Colleague” letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program: https://t.co/vub9NfKfBJ. Contact @SenBillCassidy or @SenSherrodBrown to add your support. #ALSAdvocacy

[ALS Association, WV @WVALSA]

@Sen_JoeManchin As your constituent & someone impacted by #ALS, I urge you to cosponsor S.Amdt.455 to the National Defense Authorization Act to waive the 5-month SSDI waiting period for people w/ ALS. Contact @SenWhitehouse or @SenTomCotton. https://t.co/U2u3RGq8gZ #ALSAdvocacy

[ALS Association, WV @WVALSA]

@SenCapito As your constituent & someone impacted by #ALS, I urge you to cosponsor S.Amdt.455 to the National Defense Authorization Act to waive the 5-month SSDI waiting period for people w/ ALS. Contact @SenWhitehouse or @SenTomCotton. https://t.co/U2u3RGq8gZ #ALSAdvocacy

[ALS Association, WV @WVALSA]

ALS Advocates are here in Washington, D.C. to build awareness for ALS and ask for federal support. #ALSAdvocacy #ChallengeMe. The WV Service Area is excited to meet with @Sen_JoeManchin @SenCapito @RepAlexMooney @RepCarolMiller @RepMcKinley

[ALS Association, WV @WVALSA]

Listening to Dr. Bedlack from the @dukealsclinic speak... #ALSAdvocacy #ChallengMe

[The ALS Association @alsassociation]

CEO Calaneet Balas, Board Chair Sue Gorman & Public Policy Chair Fred DeGrandis welcome 600 people with #ALS, caregivers, family members and advocates to the opening plenary at The Association’s Advocacy Conference. We’re honored to have you here! #ALSAdvocacy #ChallengeMe

[The ALS Association @alsassociation]

If you cannot join us in person at the 2019 #ALS Advocacy Conference in Washington, DC, we will livestream Monday, June 10, general sessions on our Facebook page beginning at 9:00AM (ET).
https://t.co/MqS9GYxdyM
#MND #ALSResearch #ALSAdvocacy

[ALS Association, WV @WVALSA]

Check out the TODAY Show participating in the Challenge Me campaign by taking the pie #InYourFaceALS challenge! Whether it’s taking a pie in the face or creating your own fun challenge, we challenge you to do whatever you can to #ChallengeMe! #ALS

https://t.co/AYmx20RAG3

[The ALS Association @alsassociation]

Every 90 minutes, someone is diagnosed with #ALS & someone passes away from ALS. And 5,000+ people are diagnosed each year. Greater #ALSAwareness & more #ALSResearch are needed. Won't you help by retweeting or making a donation? https://t.co/bRMvRJ5raR

[The ALS Association @alsassociation]

(1/2) “Students from families [affected by ALS] are often overlooked & collateral damage to the disease. This damage can negatively impact people for a lifetime & needs to be addressed,” Mark Calmes said. https://t.co/fnXWTOvReo #ALS #ALSCare #CalmesScholarshipFund