ME/CFS Sufferer

ME/CFS sufferer fighting for a cure. Had to drop out of college and live w/ parents, lost my full scholarship #MillionsMissing

[ME/CFS Sufferer @AlexanderNorbr1]

Please use https://t.co/BNwJgnf1U3 to donate 0.5% of all eligible purchases to the @OpenMedF at no additional cost to you! Let's find a cure

[#MEAction Network @MEActNet]

We've raised over 25% the goal for our Indiegogo campaign! If you believe #MEAction is an organization worth sustaining and ours a movement worth growing, please support our work today: https://t.co/nzWo1oFYq7

[ME/CFS Sufferer @AlexanderNorbr1]

@ThomasKlineMD @OpenMedF Fatigue or lack of concentration

[ME/CFS Sufferer @AlexanderNorbr1]

Please use https://t.co/BNwJgnf1U3 to donate 0.5% of all eligible purchases to the @OpenMedF at no additional cost to you! Let's find a cure

[Solve ME/CFS Initiative @PlzSolveCFS]

Help us welcome our new Chief Scientific Officer Sadie Whittaker, PhD!

[ME/CFS Sufferer @AlexanderNorbr1]

@PaoloMaccallini @wordpressdotcom @MBVanElzakker @JanetDafoe @Dr_M_Guthridge @LBatemanMD @OpenMedF @Derya_ FYI

[Sarah Reed @Cheggers1971]

#MyalgicE & the need for accelerated biomedical research, training & education for medics was highlighted at the World Health Assembly, Geneva with the help of @Unrest https://t.co/PuZYfj2kWP

[Open Medicine Foundation @OpenMedF]

BIG NEWS on this #OMFScienceWednesday: We are proud to announce OMF has funded $1.8 million to establish a new ME/CFS Collaborative Research Center at Harvard and will expand the Stanford Data Center for the Severely Ill Patients (SIPS) Study. More info: https://t.co/iRo0tpPJD4

[ME/CFS Sufferer @AlexanderNorbr1]

@DrNatalieTV @jenbrea @unrestfilm Thank you! 👍👍👍

[Dr. Natalie Azar @drnatalietv]

Starting my work day today w the 1st #MECFS lecture for the rheumatology fellows at NYU. It will begin w the trailer of @unrestfilm @jenbrea thank u 4 all your passion & advocacy that’s helping enlighten docs around the world #pwme

[ALowerhouse @VertigoGrl]

Thank you @GovHerbert for recognizing & raising awareness of this devastating disease. https://t.co/tIN36l52bf

[Solve ME/CFS Initiative @PlzSolveCFS]

Utah @GovHerbert declared May #MECFS Awareness month in Utah! #AdvocacyWorks #MakeMayMatter4ME

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

*** New Australian paper ***
“Transient Receptor Potential Ion Channels in the Etiology and Pathomechanism of CFS/ME”
Authors: Staines, Preez, Cabanas, Balinas, Eaton, Passmore, Maksoud, Redmayne, Marshall-Gradisnik #mecfs
https://t.co/hIZ1gJCoUd

[#MEAction Network UK @MEActNetUK]

News!

Following such strong #MillionsMissing events in the UK & around the world,

TODAY we are launching fundraising to hire our first full-time #MEAction UK organiser to coordinate, sustain and grow the impact of all the hard work in the UK.

Donate:

https://t.co/TpifUMBAGJ

[ME/CFS Sufferer @AlexanderNorbr1]

Let’s all let the @gatesfoundation know how underfunded #mecfs is! When @BillGates watches the video in the link I know he will want to help. Please share and follow the instructions in the link to contact the Gates Foundation yourself. Everything helps. https://t.co/CJ3uy1r8FR

[ME/CFS Sufferer @AlexanderNorbr1]

@bradhoylman @NYSenate @WildNycgirl @HealthNYGov Thank you Brad!

[Brad Hoylman-Sigal 🌈🥯 @bradhoylman]

I’m supporting #MECFS awareness with this official @NYSenate resolution👇

Learn more about ME/CFS at: https://t.co/gFEQmk4Fzc

[CureME - UK ME/CFS Biobank @mecfsbiobank]

#MEAwarenessWeek has finished, but our advocacy work does not!

Last week, we were filming with @SkyOne @WhatsUpTvUK talking about our research and #mecfs in the UK more generally. Look out for it this autumn!

#pwme #MyalgicE

[ME/CFS Sufferer @AlexanderNorbr1]

@MBVanElzakker You’re the man Michael. Happy to have you and other researchers on our side

[ME/CFS Sufferer @AlexanderNorbr1]

@NsuMecfs 👍👍👍 thank you melanie

[NSU ME/CFS @NsuMecfs]

Nova Southeastern University does not only promote ME/CFS awareness among its medical students, but also in the undergraduate programs. Incoming medical student Melanie Perez is here presenting her research. She led undergrads in ME/CFS research. #MECFS

https://t.co/16m3yZK7kf

[ME/CFS Sufferer @AlexanderNorbr1]

@becky_street82 👍👍👍