We still don’t have groceries! We have no food. I also made a wishlist for things like water, toothpaste, soap, cat food for the feral colony I feed and mine, and a few non perishable foods. Please take a second to share https://t.co/cd4wXLIa3h
We are in desperate need of groceries. We have no food and no essentials. I made a wishlist for things like water, toothpaste, toilet paper, cat food for the feral colony I feed and mine, and a few non perishable foods. Please take a second to share https://t.co/cd4wXLIa3h
Celebrate Pride with The Sick Times! Many in-person events aren’t accessible to people with Long COVID and related diseases and disabilities, so we're hosting our own virtual variety show!
Register now: https://t.co/7JJifo39XC
🏳️🌈 😷 We're excited to see you there!
‼️ Just spoke to the power company. It will be shut off sometime today. Disconnection is pending. I’m disabled and cannot be without this, and I have to have my meds and food. So many scroll past posts like this, but sharing can save lives
My refrigerator is still empty. All I ate yesterday was Hawaiian rolls and a small bag of chips. My power will be turned off on the 8th. WiFi on the 6th. I don’t know what to do anymore. My husband/caretaker is back at work, but we can’t catch up.
My assault not being charged in the indictment (time barred) means I do not have access to victim compensation for therapy etc. I am asking friends to support me by sharing my Help Hope Live. Thank you.
https://t.co/T7YGovb5Qs
https://t.co/rTVPVcrrC8
Venmo: KARRIE-HIGGINS-2
I need to raise funds for critical treatments for EDS w/aortic aeurysms, Lynch Syndrome, Chiari-Syringomyelia.
I've spent my life advocating for others. Today I'm asking you to share my Help Hope Live.
Tax-deductible. Every $ for verified expenses.
https://t.co/T7YGovb5Qs
I still haven’t been able to get this seen and am no closer. Please don’t scroll past this without hitting the repost button. Reposting mutual aid saves lives.
I have a sweet kitty who needs some extra care this year. Any help you can give would be greatly appreciated 💜 Will post updates, cat photos and vids at https://t.co/5mo5JgYDeT
Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.
Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests
…and why accessible testing matters.
Read more: https://t.co/n85VE7A9fa
Jenni needs our help to move to a place where she can afford to live and get help from a friend. Please join me and donating so she can pay for movers and a rental van to get herself there!
https://t.co/oieJB7jcp1
Sending #bluesunday love to the M.E community, appreciating your resilience, bravery, courage, and kindness. #teapartyforME
I’ve been sniffing chocolate digestive tea, and herbs (lemon balm, orange mint, apple mint, thyme, rosemary!) & FT’d my brother & his gf with my parents💙
ME/CFS affects ~3.3 million Americans. 75% become too disabled to work or attend school.
Patients report among the lowest quality of life of any illness studied — yet NIH research funding amounts to roughly $4 per patient/year and there are 0 FDA-approved treatments.
This is a profound public health failure.
We urgently need:
• Major NIH funding increases proportional to disease burden (~500m/year)
@NIH@Surgeon_General@MEActNet
#mecfs #longCOVID
Wasn’t well enough to organise or do anything for #BlueSunday2026 so Mum made us a Lemon and Blueberry loaf cake and I am enjoying in bed. Will be donating to @MEResearchUK this year. #TeaPartyForME2026 Thanks to Anna who gives us a bright day to look forward to every year.