@drphilhammond We can evidence a plethora of harms caused by paediatric ME clinics and the paediatricians, OTs, physios, social and education professionals they advise.
To suggest that harms are not caused in clinics is a play on words.
@drphilhammond I have yet to hear of a paediatric ME/CFS service drawing baselines low enough to prevent long term harm. Mostly I hear of child protection triggered in response to patient choice and psychological labelling of ME symptoms.
@Aarsil0@TomKindlon@NICEComms Nice have not given a legitimate reason for delaying publication. They would surely have done so if they had one.
We do not need to seek reason or engage in tittle tattle but enforce publication.
@ValeriEliotSmit@NICEComms Absolutely. The time for new evidence is long over, and they can't legitimately consider opposition to GRADE at this point in time, especially unproven opposition. Publishing is the only legitimate option.
@JaneCColby KidswithME learn to fear uneducated professionals they trusted because of the repeated harms they experience. That fear is covered up with a dx of anxiety.
@thestonebird โIts so hard to put into wordsโ. Not a truer word said Greg. NICEโs pen pushers can never understand ME with intuition or knowledge of other conditions. Sufferers and parents of children need empowering by NICE to insist on what helps and refuse what doesnโt. You have to live it.
@adambeyoncelowe@carolbinks Training behaviour focussed fatigue clinics to treat ME can never work. Primary care physicians should be the focus. Shutting the clinics and a rapid update to the guidance are a must.
@keithgeraghty@sholiv@EndMECFS FOI showed no reports of harrassment by third parties to uni staff. Zero history, pattern of harassment or concern. Fabricated to hide data.
@sTeamTraen EC used it in her speech last week, saying she had recvd it. Gill, the man responsible, confirmed it was made up & is reported phone call to SW. Gill emailed EC during the week & asked her not to use it out of context. EC today claimed it was an actual email she had recvd.
@JaneCColby@tymestrust Thank you Jane. You have clearly shown that even had they received a complaint that wasn't logged, there's no pattern or ongoing concerns.
@keithgeraghty Hher opening remarks, she couldn't remember about cannon balls, came from here: https://t.co/hX02UWPg3D in which Shepherd rebuts the abuse.