Iris Broce

Genetics, neuroscience, ALS, FTD, neurodegeneration, clinical trials, precision medicine

[Iris Broce @BroceIris]

@PaganoniMDPhD @sandymorris333 Congratulations - exciting news! You are fearless and a wonderful inspiration to me and so many others - cheers! @sandymorris333

[Sabrina Paganoni, MD, PhD @PaganoniMDPhD]

Thank you @sandymorris333 - inspired by you and learning from you every day!

[Jennifer Yokoyama @YokoyamaLabUCSF]

WHAT A DAY!!!!!!!! While listening to a talk by my science hero 🧬 @RademakersRosa I found out #Laboyama postdoc @BroceIris GOT HER K01 NIH Career Development Award!! 🎉🍾🥳🥰😍 OVERJOYED FOR IRIS!!! #proudmentormoment #WomenInScience #URM @UCSFmac @UCSFimaging @PrecisionNeuro

[Brian Wallach @bsw5020]

Once you are diagnosed with ALS and told you are going to die, you search for moments of peace—where the world slows down, pain and grief disappear, and you are able to just be alive.

I found one today.

Now, to find a few more. See y’all in a few days.

[UCSF Fein Memory and Aging Center @UCSFmac]

Genetic screening of a large series of North American sporadic and familial frontotemporal dementia cases. Study supports unbiased sequencing screen, irrespective of clinical presentation or family history. https://t.co/KRXYelDriE @jamiecfong @brucemillerucsf @Rankin_Lab

[Iris Broce @BroceIris]

Congratulations to my mentor Dr. Jennifer Yokoyama on winning the Alzheimer’s Association Excellence in Neuroscience Mentoring Award! Jen is a brilliant scientist and truly committed to training the next generation of talented scientists. @UCSDNeuro @UCSFmac @YokoyamaLabUCSF

[Dena Dubal @DenaDubal]

My brother Sam Dubal is missing. This is an active search and rescue. He is 34yrs old, 5’9” and 160 lbs. He was camping in a remote area in #mountraniere near #Seattle. Please retweet - any tips needed twitter and to Ranger Braun at [email protected]. @UW

[Jennifer Yokoyama @YokoyamaLabUCSF]

Meet #laboyama! Iris, postdoc. She ‘learned how to conduct genomic research, also how to write grants and mentor other junior scientists.’ Her fav is Marlowe. “Everything there is great. Their burger in particular is delicious 🤤.” #WomenInSTEM @ucsdneurodept @PrecisionNeuro

[Celeste Karch @karchlab]

The innate immunity protein IFITM3 modulates γ-secretase in Alzheimer’s disease | Nature https://t.co/yu4vtRuoF0

[Christa Thompson @thompsontweach]

So if a treatment is effective, “researchers would have ‘a moral obligation’ to end the trial early and make [it] available to everyone in the study, including those who had been given placebos’”. What about ALS treatments? 🤔 https://t.co/UHUBAEpi0C

[I AM ALS @iamalsorg]

Today, because of your tireless efforts we now have 290 Representatives co-sponsoring a bill that will reduce the 5 month waiting period for ALS patients accessing disability benefits.

Now, it's time to work with Congress to get this thing passed.

[Sabrina Paganoni, MD, PhD @PaganoniMDPhD]

Amylyx Pharmaceuticals Announces New England Journal of Medicine Publication of Pivotal AMX0035 Data Demonstrating Statistically Significant Benefit in People with ALS | Business Wire https://t.co/NY93qctofd

[Brian Wallach @bsw5020]

I couldn’t sleep last night. These numbers kept echoing in my head:

129 million Americans have pre-existing conditions.

61 million are living with a disability.

I am one. And I plan to vote like my healthcare depends on it. Because it does.

Retweet if you are one as well.

[Chan Zuckerberg Initiative @ChanZuckerberg]

.@bsw5020 and his wife launched @iamalsorg to build a movement for people diagnosed with #ALS while raising awareness and funds for research: https://t.co/2ZtDZv8BsG

#RareAsOne #CuresForAll

[I AM ALS @iamalsorg]

Not sure what questions to ask about exercise and physical therapy? Those impacted by ALS who have been where you are now helped create this checklist to help get you started.

Every. Single. Day. They Lead.

https://t.co/hHvFMmg3zf

[NeurologyLive® @neurology_live]

“Two treatments have been approved by the FDA, however, even with those 2 drugs, ALS remains an aggressive disease that’s still fatal.” - @PaganoniMDPhD

https://t.co/Y3Ipe0KeHo

[Sabrina Paganoni, MD, PhD @PaganoniMDPhD]

The HEALEY #ALS Platform Trial is open for enrollment. Please visit our website with info on the trial and participating clinics
https://t.co/PLxEsn5E7K

[Brian Wallach @bsw5020]

I'm gonna take a break from Twitter, but before I do I have an ask:

PLEASE share 👇 video far and wide.

This was hard to record. It forced me to confront a dark period. I share it so that all who have and are fighting ALS know they are not alone.

Love you. #EveryCommunity

[Iris Broce @BroceIris]

Dr. Rahul Desikan, a neuroscientist and physician, died of ALS 8 months ago. His wife, Dr. Maya Vijayaraghavan, discusses the challenges they faced to obtain experimental treatment and the need to improve access to clinical trials for ALS:https://t.co/63yBWr8066 @UCSFmac @bsw5020

[Brian Wallach @bsw5020]

Ryan was 40--one year older than me. We cannot treat ALS with scientific indifference or a promise that we will get to it some day soon as we have done for decades. This has to stop. For Ryan, Martha, Finn and Liv we, the pALS and cALS, fight.

https://t.co/WQsMjpMr3t