This is my twin brother Elliott died September down to cf! We both suffered with it since birth!
Didn’t get the drugs he needed till it was to late!
How many more lives must be lost an families left devastated before we get the drug cfs need?
#VertexPharma@MattHancock@CFAware
In 1 months time, I will be celebrating my 1 year transplant anniversary... 😱
I don't know what's more crazy, how quick it's gone, or all the massing things that have happened to me in it...
@NHSOrganDonor@cftrust@CFAware
CFer friends I am on the way for a 2 week hospital stay hopefully out in time for my birthday February 23. Only turning 63 and planning for more while waiting for that miricle CF cure. 😂😎😁😀😋😊☺