Cure MND

Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.

[Cure MND @CureMND]

MND-SMART launches in Southampton https://t.co/JLs9nus3G3

[Cure MND @CureMND]

https://t.co/TZUcVHmhZu

[Matt Jones @mattyj88ooosh]

https://t.co/DwyfD5ynal
Can you all please read this story, share and donate, thank you.
@mndassoc @MNDManchester @mndeducation @JustGiving @mndresearch @MNDPatients @MNDA_WestYorks @mndcampaigns @ALSMNDAlliance @mndVIPteam @MNDScotland @CureMND @mndaeastsurrey

[Shah Minokadeh, M.D. @MinoShah]

Remembering my friend Elsie today.

Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die.

#BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA

[Shah Minokadeh, M.D. @MinoShah]

It supports a rapidly growing expanded access program.

Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries.

PLEASE encourage fundraisers, friends & family to donate.🙏🙏 #HealeyHope
https://t.co/6sNAFq4Z3s

[Shah Minokadeh, M.D. @MinoShah]

I still hear other orgs brought up. This can't be stressed enough!!!

The CLEAR LEADER for #ALS treatment access/research is the @MGHNeurology Healey Center. 

NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial

[Lynsay Balmer @LynsayBalmer]

#GivingTuesday since it’s giving tuesday, if you could spare anything, during the current climate to help us raise funds to allow David to return to mexico for stem cell therapy 🤞🏼🙏🏼 #balmerbattlesmnd https://t.co/q8aftG0bc8 @CalvinHarris @LewisCapaldi @kevinbridges86

[MND Scotland @MNDScotland]

Approaching ✨50,000✨

If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND

Let's make it happen! 👇

[My Name'5 Doddie Foundation @MNDoddie5]

100,000 signatures 👏👊 Thank you to everyone who has signed our petition with @mndassoc and @MNDScotland - this means the petition will now be considered for a debate in parliament.

It's not too late to add your name, every signature is important: https://t.co/nxbLwzLsoy

[Cure MND @CureMND]

Bronstein, Gewirtz & Grossman, LLC Notifies Investors of Brainstorm Cell Therapeutics Inc. (BCLI) Investigation https://t.co/NvfE53FRkD via @Yahoo

[𝐀𝐫𝐩𝐚𝐧 𝐌𝐞𝐡𝐭𝐚 @DrArpan100]

@AlsChange @EuansCentre @UHSFT @MNDoddie5 @MNDScotland Thank you for your message. There are no changes to the investigational medicinal compounds being
tested in @mndsmart (trazodone & memantine). Best wishes.

[Cure MND @CureMND]

@suvankarpal @EuansCentre @MeritCudkowicz

Dear Dr Pal

Thank you for the initiative.

Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)?

What is the second drug on the platform trial?

The first drug is already used to improve the (1/3)

[Cure MND @CureMND]

@DonaldJTrumpJr How about twice? 😂

[Brian Wallach @bsw5020]

I cannot wait for the day that enough people are invested in the fight against ALS that a tweet saying “end ALS” can go viral alongside tweets about politics.

On that day, this guy with ALS will get out of his wheelchair and dance like no one is watching.

[No More Excuses ALS Watchdogs! @als_now]

Context! Let's make sure we listen to Medical Doctors @BrainstormCell @AlsOklahoma @alsassociation @ALSMNDAlliance @CureMND #als #endals @alstexas @ALSTDI @ALSA_EC @alssac @alssac @ALSA_RockyMtn @alsnewstoday @ALSANorthernOH @ALSAlabama @ALSAIOWA @ALSAMA @ALSAUNY @ALSA_Nevada

[Vino @v1nnybhoy]

#newpetition https://t.co/R2vMk1IrMA Have a look, sign, share and retweet please folks. @Rob7Burrow @siferry8 @aconnolly91 @siobhancon1 @MNDoddie5 @DoddieWeir5 @DarbyRimmerMND @CureMND @jucojames @MarcFairbairn90 @MartinJ_MND @balmerbattlesm1 @StephenMoran7

[@ALSEUROPE @ALSEUROPE1]

#alstreatmentsnow Light a candle for #ALS #MND, Amyotrophic Lateral Sclerosis, an agonizing and deadly disease. We need treatments now !!! #NUROWN #AMX0035 @US_FDA @EMA_News
Join this challenge and nominate other people @Emma_MacLennan @lynseymerritt @CureMND @emmccormick2005

[Dan Walker @mrdanwalker]

Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising £2.5 million for his friend @Rob7Burrow.
There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless.
Once a captain, always a captain.
What a fella👏🏻