justmel

Duchenne Muscular Dystrophy Advocate Angel Mom to Dylan 💚

[Rare Disease Day @rarediseaseday]

💜🌍 Today is Rare Disease Day! 🌍💜

Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️

Learn more: https://t.co/AUKfGZJLJB

[LAPS4MD 🇨🇦 @LAPS4MD]

Something for @Hot_Wheels collectors! A few recent additions!
https://t.co/sOjLqKhWB2 #HotWheels

[Parent Project aps @Parent_Project]

An international meeting in Rome organized by Parent Project aps and @ParentProjectMD has gathered 30 clinical specialists from Italy, UK and US, with the aim of discussing the aspects of respiratory management in Duchenne > read more here: https://t.co/nwhbl2DL8P

[Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD]

We asked PPMD's Adult Advisory Committee (PAAC) member Jacob Hill, "What is one way you #RaiseYourVoiceForDuchenne?"
How are you raising your voice? Share your story this #DuchenneActionMonth!

[Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD]

We are proud to announce that PPMD, along with several global patient advocacy groups, has awarded $113,000 to further the BIND Project! This project will dive deeper into brain involvement in #Duchenne and #Becker muscular dystrophy.

[Jett Foundation @JettFoundation]

Next month’s Mental Health & Wellness Resource Fair will host sessions and pop-ups on hope, gratitude, yoga, expressive arts and sound therapy, and more! 🧠💙

Check out the agenda and sign up to join sessions at https://t.co/UVsM5YMKtx.

[Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD]

Navigating insurance access for medical care such as approved therapies or equipment for individuals with #Duchenne or #Becker can be daunting. To make navigating this process easier, PPMD has assembled resources to help guide you: https://t.co/biXj2LYPsh

[ImagingNMD @ImagingNMD]

Do you know someone with Duchenne?

Share this quick care guide with a loved one in honor of Muscular Dystrophy Awareness Month!

Data from @WorldDuchenne

#duchennemusculardystrophy #beckermusculardystrophy #WDAD2024
#WDAD

[LAPS4MD 🇨🇦 @LAPS4MD]

Just wanted to share a quick VIDEO 📹 update on my minivan fundraiser! https://t.co/1wX0bg0p9R Definitely awesome to hear those within the racing community looking at ways to help me fund this much-needed upgrade to a minivan! @the_sns_pod @SmoothOper88or @CamKRacing

[Defeat Duchenne Canada @defeatduchenne]

In a year like no other, mothers have gone above and beyond to keep their children and the community safe. Today we would like to honour and thank all the mother figures who have kept us going this year. #HappyMothersDay

[LAPS4MD 🇨🇦 @LAPS4MD]

Brad speaks on what led to the founding of @LAPS4MD with @CamKRacing We invite you to visit us at https://t.co/Fa5PYb1IfD to find out how racers can join us in the fight against Muscular Dystrophy!
#TeamLAPS4MD 💪 @the_sns_pod @MD_Canada

[4 Jake's Sake @4jakes_sake]

Congratulations Jake for being officially inducted into the National Honor Society. He has been in the NHS his whole High School Career and we are all so proud of him! He is an amazing example of hope to do what they said he may not. Keep going Jake...reach for those stars kid!🤩

[Defeat Duchenne Canada @defeatduchenne]

We can’t wait to join @DuchenneDay @worldduchenne to raise awareness of living with #Duchenne #MuscularDystrophy as an adult.

📆 Mark your calendar for September 7 #WDAD2021

[Jett Foundation @JettFoundation]

Thanks to the unwavering generosity and support of our Jett Foundation community, we accomplished so much together in 2020.

Read more about the impact of your support through a challenging year in our 2020 Impact Report at https://t.co/sLYR6ps67f.

#StrongerThanDuchenne

[Defeat Duchenne Canada @defeatduchenne]

📢 Ground-breaking news: Canada has launched the first gene therapy trial for Duchenne muscular dystrophy. This is an exciting milestone and hopefully the first of more to come. Learn about the investigational #genetherapy treatment from @pfizer here: https://t.co/AbqbqXHtdI.

[Defeat Duchenne Canada @defeatduchenne]

#DYK: our donors are the key to developing new treatments for Duchenne muscular dystrophy? Read more about the areas of #Duchenne research and how YOU are a critical part of the progress: https://t.co/aWW6pzVDra.

[LAPS4MD 🇨🇦 @LAPS4MD]

Sometimes living with Muscular Dystrophy you need to take it one day at a time. Thankfully we have racers & teams donating for every lap the lead! 😉 #TeamLAPS4MD

[SickKids Foundation @sickkids]

To his patients and colleagues, Dr. @Ronald_Cohn—President & CEO of @SickKidsNews—is just Ronni. On the latest episode of SickKids VS, Ronni reveals how he’s using a gene-editing tool to treat a fatal neuromuscular disease. Listen now: https://t.co/teCSKy73cg

[Jett Foundation @JettFoundation]

Join us in celebrating Jett Foundation’s 20th year of empowering families and fighting #Duchenne by registering for our #GoForDuchenne Virtual Challenge! While supplies last, participants will receive a limited edition Yeti tumbler! Register at https://t.co/QjVkWrldpR.

[justmel @Duchennewar]

@BarriePFFA @Barrie_Fire Best of luck