Emily Fuller

Out of home care and education at @UON_CEEHE. All opinions are my own.

[Dr. Lauren Harvey @lauren_harvey11]

New publication alert 🚨 🚨 🚨 deterioration in MH outcomes following delivery of DBT-based universal intervention in #schools. Enthusiasm for DBT-based programs in schools currently miles ahead of the research evidence! https://t.co/H9Rij7hdXx
#DBT #MentalHealthAwareness

[Christoph Ströck @cstroeckw]

#MECFS might be unique in that overexertion can chronically worsen your condition: Patients unknowingly inflict permanent damage on themselves, often without making the connection or following doctor's orders. 90% of my baseline worsening crashes could have easily been avoided.

[Flor 🥀 @lugaresxcomunes]

“For me it's over, so to speak. But I really hope for other people that there is still something to do.”

Celine Corsius, another ME sufferer that had chosen to end her life because it’s easier and faster for the system to give us euthanasia than fighting for a treatment and cure

[Todd Davenport @sunsopeningband]

Sorry for quote tweeting myself, but when someone jokingly says “oh I get that too without my morning coffee” when I explain my research to them, there’s a reason it looks like I’m barely holding back an open-handed slap to the side of the head.

It’s because of this that I am.

[sarah @swastrosarah]

1/3 "People with PEM are also frequently misdiagnosed. They’re told that they’re deconditioned from being too sedentary, when their inactivity is the result of frequent crashes, not the cause. They’re told that they’re depressed and unmotivated, when they are usually desperate

[Dusty Chipura @dustychipura]

We need to talk about the connection between #ADHD and shameful body things. Because SO MANY PEOPLE I know with ADHD do or have in the past struggled with body things that are Embarrassing or Shameful. I mean, rotten-teeth, infected-picked-wound, real-bad-yeast-infection stuff.

[Nele @NeleHelena]

If being this ill was just about not being able to do things and having to be in bed all the time I think I could live with it. I wouldn't like it, but okay. But it's how my worst exhaustion physically feels that makes it unbearable. Extreme fatigue is like extreme pain. 1/2

[Dr Neil Harrison @DrNeilHarrison]

🚨📢🚨 REMINDER (and please RT!)...

Webinar on 'Care Leavers, Post-16 Pathways and Labour Market Transitions' hosted by @ReesCentre, based on the findings of our @NuffieldFound study. Wednesday 28th June at 1pm. All welcome.

Teams Live link: https://t.co/v2ZVLPWnfm

[Harry Boby @HarryBoby4]

Long Covid is basically general tiredness right?

Well...

Long Covid fatigue affects quality of life more than some cancers.

Here's how much the illness affects your day to day:

[🧵 thread]

[Emily Fuller @EmilyAFuller]

@fuzzibm @naveenjrazik @SBSNews https://t.co/Oov1HDhftq

[elle carnitine 🍉 @elle_carnitine]

Looking back though I can’t believe how credulous I was in believing that the symptoms of ME are indeed “medically unexplained”. Now I know that there are thousands of studies documenting significant biological anomalies (9/n)

[LJD @WergildBlake]

@fearnley_k @exceedhergrasp1 Yes thank you.

I get concerned when I see people confuse increased fatigue (separate symptom of this & many other diseases) with PEM which is your ANS & body systems shutting down.

Feeling poisoned, severe flu, hangover & concussion are the most common & accurate descriptions.

[Billy Hanlon @bhanlon15]

NPR: 'Millions of people have long COVID brain fog — and there's a shortage of answers'

'People with executive dysfunction ... they have problems driving. They can't manage their money...They can't plan for the future.'

https://t.co/ewyzJtRv6x

[Eliza Charley | Actress on Pause @ElizaCharley]

@MECFSadvocate @NataliaHodgins @alice__rumble @AnthonyLevin @australia_call @itmePZ @madeleinedaisyr @MeanderingPark @shellchat @DanMissailidis @mildTin @JennMeagher @FairlieHall @MEActNet @MEAdvNetAu @ItbeginswithZ For any fellow Aussies reading: here is the recent @MEAdvNetAu letter if you’d like help emailing to your local member about the urgent need to fund $1.5 million for MECFS guidelines in Australia.

The budget has been announced, but tell them you care!

https://t.co/zN7ZCFR7P5

[The Vertlartnic @TheVertlartnic]

Isn’t It Great That No One Is Dying From Covid Now We Don’t Release The Data About People Dying From Covid?

[Lethe @Mormolykeia]

I read experiences from people with more severe #MECFS and #LongCovid, and I can imagine their suffering, because my own experience is so close to it. But before getting ill, I don't know that I could have imagined it. I'm empathetic, but I'm not a mind reader.

1/2

[Amy MacMahon @amymacsouthbris]

“Essential workers unable to afford to rent alone almost anywhere in Australia, report shows”.

To be clear: Governments are putting the profits of wealthy property investors ahead of not only essential workers, but everyone who relies on them.