FTD & Me

💜 Mum was diagnosed with #FTD in Feb '19
🧡 I tested positive for the #C9ORF72 mutation
💙 Raising awareness by #blogging

[FTD & Me @FTDandMe]

@albiongirl68 @WendyPMitchell Thank you Julie! Yes I do and I have also inherited the genetic mutation. If Professor Pat wants to ask any questions I am available! ☺️

[FTD & Me @FTDandMe]

US approves first new #Alzheimer's drug in 20 years... this is absolutely incredible to read! Progress for so many and amazing to see ⁦@cathmummery⁩ from the very same research centre I was at last week speak about it! Well done to all involved ♥️♥️ https://t.co/N5wI0hKnJY

[FTD & Me @FTDandMe]

It’s #DementiaActionWeek and I’m starting by sharing a podcast I recorded with @JillRennieuk at @homecare_co_uk. This explains my own experience with #FTD after my mum was diagnosed, and after I tested positive for the #C9ORF72 mutation. Click to listen! > https://t.co/hUe9SQ8Unz

[FTD & Me @FTDandMe]

Thank you so much @Jeanc9orf72 ♥️

[Jean C9orf72 @Jeanc9orf72]

Thank you to ⁦@FTDandMe⁩ for your continued work educating the public!! https://t.co/JTadu7pXbT

[Jean C9orf72 @Jeanc9orf72]

@FTDandMe @FTDtalk @RadioHumberside @LucyL_Russell @Hannahdementia Thank you @FTDandMe for sharing your story so publicly and informing the world about our struggles!

[FTD & Me @FTDandMe]

It’s here! Check out my interview on @RadioHumberside speaking all things #ftd and how I’m dealing with my #genetic results. Earlier on in the show, there’s also great info from @LucyL_Russell and @Hannahdementia! Check it out at 2:41:00 👇🏼 https://t.co/GQhdMe5rI2

[FTD & Me @FTDandMe]

Thank you so much @Hannahdementia for your involvement! You did amazing and provided such insightful info. We were a fab team! #ftd #endftd https://t.co/8yXZLQjNzu

[FTD & Me @FTDandMe]

♥️♥️♥️ were spreading the word! Thank you @LucyL_Russell!

[Lucy Russell @LucyL_Russell]

I had my first live interview on BBC radio Humberside this morning helping to share the story of @FTDandMe. Jess, you are such a brave woman and an inspiration to us all at @FTDtalk, thank you! #ftd #c9orf72

[FTD & Me @FTDandMe]

@LucyL_Russell @FTDtalk Thank you so much Lucy! I am so happy that you got involved, the more people that know about your amazing research, the more people will get involved! You all do such amazing work, thank you for supporting me! You did AMAZING! #ftd #endftd

[FTD & Me @FTDandMe]

I visited mum in the care home on Saturday morning. It was the first time I've seen her properly in 2 months and it was hard. Lots had changed and there is so much I wish I had done differently. Tips for the future listed below 👇🏼 #ftd #endftd #dementia #dementiaawareness

[FTD & Me @FTDandMe]

Joined @theAFTDA meeting this afternoon and hoping to learn more and make our voice heard! Thank you AFTD for making this possible! #PFDD_ENDFTD

[FTD & Me @FTDandMe]

Will I inherit FTD? I published a blog about late last night about waiting for the results regarding my own #genetic testing, hopefully it will give those in a similar situation some useful information 💕 #FTD #FrontotemporalDementia https://t.co/E14IajTUty

[Too Young For Dementia @young_dementia]

Please help us spread the word so we can build up these vital connections

@YPWD @YoungDementiaUK @YoungDemNetwork @DemCarersCount @3NDWG @mason4233 @chris40781 @KateLeeCEO @FTDandMe @tide_carers @DementiaUK

[Too Young For Dementia @young_dementia]

There is one simple aim with this: Connect young adults who support their parents living with dementia, to enable them to learn and support each other and just have a chat with a mate who “gets it” over their preferred drink of choice ☕️🍷🍻

[Too Young For Dementia @young_dementia]

Started a new thing 👋 Launching a new group for the young adult children (18 - 35) of those living with young onset dementia.

We’re starting small and have a fledgling Instagram account here:

https://t.co/s8gaJVUbju

Please share / RT ❤️

[FTD & Me @FTDandMe]

Time for #Blog #14. I’m talking about the present and I’ve explained how mums symptoms have changed. I found it hard writing this, it was a complete reality check. I can’t believe how quickly things have changed 😢♥️ #FTD #FrontotemporalDementia #Dementia https://t.co/ae21Oe88M7

[FTD & Me @FTDandMe]

Morning Twitter! It’s time for another blog 🎉 This story brings back outrageous but hilarious memories for me. Have a read to see how life continued after mums #FTD diagnosis! #Dementia #EndFTD #FrontotemporalDementia #Blogger https://t.co/qTzhoKr95l

[FTD & Me @FTDandMe]

I love how this chart shows the many different conditions which sit under the umbrella term ‘dementia’. So many need awareness raising! #Dementia #FTD #EndFTD

[Ian Kremer @LEAD_Coalition]

#Dementia is an umbrella term for symptoms resulting from different diseases or injuries.

#Alzheimers #FTD #LewyBody #Parkinsons #CJD #TBI @Tanis42 @irene_ashker @KattKunzi @NgullenR @LeslieLee327 @shivani_1970 @tarafsz12 @SallyFereday @mokomokai @MatiaFundazioa @caborradaileho1

[FTD & Me @FTDandMe]

I’m back! My next blog is now published which covers how we received a diagnosis. I’ve had lots of questions about this so hopefully you’ll find it useful. Enjoy and I hope to continue shining a light on #FTD! #Dementia #EndFTD #FrontotemporalDementia https://t.co/cYJmEbdUc5

[FTD & Me @FTDandMe]

Feeling so loved it’s unreal 🥰 I have created my own @alzheimerssoc Memory Walk to take place on 20th September 2020. In just 18 hours I’ve got 25 walkers and raised £210! So thankful to those who have supported me so far ❤️ #Dementia #EndDementia https://t.co/67l9GRzNnO