IBD Cares

All things Crohn's | Colitis | IBD | Bowels

[IBD Cares @IBDcares]

@EvasiveSnail Xx

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

This just in folks...
One of the #IBDSuperHeroes Facebook groups members just shared this screenshot with us.
She is taking Azathioprine only, and she has been told to self isolate for 12 weeks.
Join the conversation: https://t.co/mxGdO2vZzE
#CrohnsDisease #UlcerativeColitis

[David T. Rubin, MD @IBDMD]

@gilkaplan @bruce_sands1 @UmaMahadevanIBD @DrCoreySiegel @ibddocmaria @Siew_C_Ng @AshwinMDIBD @doc_ibd @guthealthmd @ibddoctor @silvio_silvio75 @RPanaccione @JeanFredericCo1 @ryanungaro @JamesLewisGIEpi @DrsMeena @CrohnsColitisFn @CrohnsColitisUK @AmCollegeGastro @AmerGastroAssn

[David T. Rubin, MD @IBDMD]

**Hand hygiene and great care for avoiding other #COVID19 exposures remain the most important measures for individuals.**

NEXT: #IOIBD is having a global conference call to discuss specific scenarios and update our recommendations soon.

Stay safe, stay well everyone.
4/4 fin

[David T. Rubin, MD @IBDMD]

There is worldwide communication among IBD experts, and there are not reports of IBD patients with COVID (yet), but we are being vigilant. (This includes communications from our wonderful colleagues in China, Hong Kong and Italy.)
4/

[David T. Rubin, MD @IBDMD]

In a global email exchange among #IBD experts over the last few days, the consistent recommendation is to stay on therapy for IBD, recognizing that IBD relapse or needing steroids is higher risk for the patient. There are similar recommendations from rheumatology experts.
3/

[David T. Rubin, MD @IBDMD]

The #IOIBD site now includes this statement: "It is prudent that IBD patients on immunosuppressants and/or biologics limit unnecessary travel and large gatherings." (and spells out these therapies) However, please know that we still recommend staying on treatment. Read on. 🔽
2/

[IBD Cares @IBDcares]

A Crohn's flare, a Hs flare, infection and a cold... 😂 Some days I just want to hide away from everything! How does everyone else deal with the mental aspects of a flare and the symptoms they bring? I was thinking of a punch back but... Arthritis 😂👊 #IBD #Hs #Crohns

[Crohn's & Colitis UK @CrohnsColitisUK]

It can be hard to ask someone to give up their seat when you don’t “look disabled”. Have you ever struggled to ask for help or use certain facilities because you’re worried that people will think you don’t look disabled?

#ItsEveryonesJourney #NotEveryDisabilityIsVisible

[IBD Nurse Kay @IBDPassport]

New mobile responsive #IBDPassport site now live 📲 Perfect for IBD travellers on the go
.
Go on, give it a try... 😉

https://t.co/Our1g4HIQO
.
.
#NoLimits #TravelWithIBD #ChronicIllness #invisibleillness #digitalhealth #patientadvocacy #NGO #Charity

[Crohn's & Colitis UK @CrohnsColitisUK]

Where there's a WALL there's a way!

@MrColitiscrohns is breaking the stigma around #Crohns and #Colitis by making the invisible, visible.

"I lived a terrible life before surgery and just got used to being ill - I no longer have to deal with any of those thoughts or issues."

[IBD Nurse Kay @IBDPassport]

@cantcopecrohns This may help: https://t.co/xWBUv6WsBa #IBDPassport #IBDTravel

[cant cope crohns @cantcopecrohns]

Hi #ostomates I'm going to egypt for 2weeks next week! 1st holiday since the surgery. How much medical supplies and stoma bags should I take to be safe? Thank u! #crohns #IBD #stoma

[Gut Journal @Gut_BMJ]

Fatigue in IBD can be a real challenge. Summary of management of fatigue and one of our RCTs to compliment https://t.co/7bVGsZM4Aw @Gut_BMJ #ecco2020 #ecco20 ^jps

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

Higher risk factor of perianal #Crohns patients developing rectal cancer👇🏽 #ECCO20

[Spyros Siakavellas @SSiakavellas]

Important presentation from Kostas Papamichail regarding the international spECTRUM TDM consortium. Collaborations like this have huge potential to drive forward research that may make a significant impact in the optimisation of our everyday clinical practice. #ECCO20 @Gut_BMJ

[IBD Cares @IBDcares]

After 4 years I am back! 4 YEARS! crazy!

[Thaila Skye @ThailaSkye]

Merry Christmas everyone! 🎄

[IBD Cares @IBDcares]

Merry Christmas 🙂 💜💜💜xx

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

The #IBDSuperHeroes Daily is out! https://t.co/TalAqsHhP2 Content via @IBDcares @TheZenPhoenix #colitis #crohns