Suggestions welcomed for this enquiry we have just received:
“I am wondering if you could recommend any counsellor or therapist for someone dealing with severe ME please in Ireland ?”
#SevereME#PwME
🧵
It's 7th anniversary of our paper "Monitoring treatment harm in Myalgic Encephalomyelitis / CFS: A freedom-of-information study of NHS specialist centres in England"
https://t.co/90YJS1o52j
Hopefully it will influence, among other things, #LongCovid clinics
#MEcfs
1/n
Dr Amolak S Bansal talk: "What is ME/CFS? Hallmarks of a complex but poorly understood condition" (2026)
YouTube link:
https://t.co/3BQWIuJqBh
It would be great if more people could subscribe to our channel
#MEcfs#PwME
2 days to go. Apart from the responses to the FB event (3 going, 41 interested), 2 other people have contacted us directly to say they plan to attend.
#MEcfs#LongCovid
Thanks very much again to Dr Bansal for his tour of Ireland.
The feedback we have seen has been collated here
https://t.co/53svHWOs35
Feel free to give further feedback.
#MEcfs#PwME
TG4’s Moving West on 7:30 pm, June 9 may mention ME.
Jackie Bonass (with ME) has said she "talked a fair amount about being ill with ME so hopefully that will make it into the final edit a bit"
It includes English on-screen subtitles.
#MEcfs#PwME
"additional cost to households with a disabled person was up to €555 a week. Costs include increased heating and energy costs associated with reduced mobility and costs of charging equipment; accessible
https://t.co/pwTdFUlkR2... https://t.co/eTLmdbSXhH
There are a lot of rainy days in Ireland so I use our little porch for shelter & hot water bottles to give warmth, or otherwise I would have to spend all day stuck inside for most days of the year.
Haven’t been well enough to go for a walk in nearly 32 years.
#MEcfs#PwME
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(Not ME-specific)
“If you’re not familiar, Make Way Day is an initiative run by the Disability Federation of Ireland @DisabilityFed designed to draw attention to the challenges faced by people with disabilities as they try to get around”
https://t.co/KKe92BU1w1
#MakeWayDay
We were involved in helping to organise this interview.
We think it is likely in the Donegal Democrat newspaper this week as Aoife works for them
https://t.co/AnMKg0Yjqc
#MEcfs#CFS
Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @TomKindlon on Wednesday, June 17
Hopefully we’ll see some of you there
https://t.co/1RrAd7kigN
Carers/parents/similar welcome.
#MEcfs#PwME