Tom Kindlon-IrishME

Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon

[Irish ME/CFS Association @IrishMECFSAssoc]

Can you receive a cheque for us in Drumkeerin, Co. Leitrim on Sunday, November 1?

See image for all the details we have.

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

Tom Kindlon: Thanks to everyone who came. I hope to hold another one at the same venue in around 4 weeks

#MEcfs #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

Comments welcomed. Private message if you prefer

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

2 days to go. #MEcfs #LongCovid

[Tom Kindlon @TomKindlon]

2/
A friend introduced me to his friend, former Irish international rugby player, Ian Keatley.

[Tom Kindlon @TomKindlon]

I went way outside my energy envelope last night for a social event but glad to see a new-ish pacing "trick" seems to be helping me a bit

#MEcfs #PwME

1/

[Irish ME/CFS Association @IrishMECFSAssoc]

One week to go
#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

#Ireland

Our Christmas card page is now up https://t.co/mSUmyVtTuT

Wide selection: 15 packs with English or English & Irish verses

10% of gross amount goes to our research fund.

Shops don't get a cut so more goes to charity

Reposts welcomed

#MEcfs

[Irish ME/CFS Association @IrishMECFSAssoc]

They have said on numerous occasions that people from the ME/CFS community are welcome.
#MEcfs #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

We have given €54,000 from our research fund to the Solve ME/CFS Initiative over the years. #mecfs #pwme

[Tom Kindlon @TomKindlon]

From Ireland 🇮🇪

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC)

https://t.co/L651GMJGrV

Screenshot from latest Science for ME weekly update

#LongCovid #PASC

[Tom Kindlon @TomKindlon]

4/
Another extract that quotes me from "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" by @chloedecanson

#MEcfs #PwME

[Tom Kindlon-IrishME @IrishMECFS]

Hope to see a few of you at this. 👋

#MyalgicEncephalomyelitis #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @TomKindlon on Friday, October 23

Hopefully we’ll see some of you there
https://t.co/FzgJGk6OH0

Carers/parents/similar welcome.

#MEcfs #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @TomKindlon on Friday, October 23

Hopefully we’ll see some of you there
https://t.co/FzgJGk6OH0

Carers/parents/similar welcome.

#MEcfs #LongCovid

[Tom Kindlon @TomKindlon]

🧵
I’ve discovered if I lie down & put my feet up soon after I get up (see red), it recharges my body battery well,often at a better rate than when I was sleeping! If I do the same thing,later in the day (green), I often see no increase in my body battery & often some decrease
1/

[Irish ME/CFS Association @IrishMECFSAssoc]

A list we run for members of the Irish ME/CFS Association we thought we would plug.

#MEcfs #PwME

[Tom Kindlon @TomKindlon]

3/
An extract that quotes me from "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"

#MEcfs #PwME

[Tom Kindlon @TomKindlon]

2/
There’s a typo in one of my comments:

“I shared biological studies on ME/CFS because biomedical knowledge is constantly evolving in general and the hope is that the more eyes there are on it, *the* more that people can put the pieces of the puzzle together to find solutions.”

[Tom Kindlon @TomKindlon]

From Ireland 🇮🇪

Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome

Screenshot from latest Science for ME weekly update

#LongCovid #POTS

[Tom Kindlon @TomKindlon]

I was one of a number of patient scientists & advocates who was interviewed for this sympathetic, open access paper.

"Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"

https://t.co/2ZexjfDR9y

#MEcfs #PwME