Tom Kindlon-IrishME

Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon

[Irish ME/CFS Association @IrishMECFSAssoc]

Suggestions welcomed for this enquiry we have just received:

“I am wondering if you could recommend any counsellor or therapist for someone dealing with severe ME please in Ireland ?”

#SevereME #PwME

[Tom Kindlon @TomKindlon]

🧵
It's 7th anniversary of our paper "Monitoring treatment harm in Myalgic Encephalomyelitis / CFS: A freedom-of-information study of NHS specialist centres in England"

https://t.co/90YJS1o52j

Hopefully it will influence, among other things, #LongCovid clinics

#MEcfs

1/n

[Irish ME/CFS Association @IrishMECFSAssoc]

Tom Kindlon @TomKindlon :
I thought this went well. I've heard that some people stayed on to chat till around 5 PM.

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

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Photo: Dr Amolak Bansal with secretary, Orla Ní Chomhraí, at our free event with Dr Bansal in Galway in May.

#PwME #CFS

[Irish ME/CFS Association @IrishMECFSAssoc]

Update from the Irish ME/CFS Association for the Hospital Saturday Fund @HSFCharity

#MyalgicEncephalomyelitis #MEcfs

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[Irish ME/CFS Association @IrishMECFSAssoc]

Dr Amolak S Bansal talk: "What is ME/CFS? Hallmarks of a complex but poorly understood condition" (2026)

YouTube link:
https://t.co/3BQWIuJqBh

It would be great if more people could subscribe to our channel

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

2 days to go. Apart from the responses to the FB event (3 going, 41 interested), 2 other people have contacted us directly to say they plan to attend.
#MEcfs #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

A woman with ME discusses the effect the illness has had on her a bit in this programme

https://t.co/IC5r0j3gHP

#MEcfs #Gaeilge

[Irish ME/CFS Association @IrishMECFSAssoc]

One week to go. #MEcfs #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

They have said on a number of occasions that people from the ME/CFS community are welcome. #MEcfs #PwME

[Long Covid Advocacy Ireland @LCAIreland]

Our next Long COVID Patient Support Metting is this Monday, 8th June at 7pm 💙

[Irish ME/CFS Association @IrishMECFSAssoc]

Thanks very much again to Dr Bansal for his tour of Ireland.

The feedback we have seen has been collated here
https://t.co/53svHWOs35
Feel free to give further feedback.

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

TG4’s Moving West on 7:30 pm, June 9 may mention ME.

Jackie Bonass (with ME) has said she "talked a fair amount about being ill with ME so hopefully that will make it into the final edit a bit"

It includes English on-screen subtitles.

#MEcfs #PwME

[Nessan Vaughan @baldoyle55]

"additional cost to households with a disabled person was up to €555 a week. Costs include increased heating and energy costs associated with reduced mobility and costs of charging equipment; accessible
https://t.co/pwTdFUlkR2... https://t.co/eTLmdbSXhH

[Irish Times Health+ @IT_HealthPlus]

Delivering new cost of disability payment will be ‘so challenging’, Minister tells summit https://t.co/k8lx0G8SZQ

[Tom Kindlon @TomKindlon]

There are a lot of rainy days in Ireland so I use our little porch for shelter & hot water bottles to give warmth, or otherwise I would have to spend all day stuck inside for most days of the year.

Haven’t been well enough to go for a walk in nearly 32 years.

#MEcfs #PwME

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[Irish ME/CFS Association @IrishMECFSAssoc]

From Ruth Flood, host of the Dr Amolak Bansal talk the Irish ME/CFS Association organised in Sligo

#MEcfs #PwME

[Irish ME/CFS Association @IrishMECFSAssoc]

(Not ME-specific)
“If you’re not familiar, Make Way Day is an initiative run by the Disability Federation of Ireland @DisabilityFed designed to draw attention to the challenges faced by people with disabilities as they try to get around”

https://t.co/KKe92BU1w1

#MakeWayDay

[Irish ME/CFS Association @IrishMECFSAssoc]

We were involved in helping to organise this interview.

We think it is likely in the Donegal Democrat newspaper this week as Aoife works for them
https://t.co/AnMKg0Yjqc

#MEcfs #CFS

[Tom Kindlon-IrishME @IrishMECFS]

Hope to see a few of you at this. 👋

#MyalgicEncephalomyelitis #LongCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @TomKindlon on Wednesday, June 17

Hopefully we’ll see some of you there
https://t.co/1RrAd7kigN

Carers/parents/similar welcome.

#MEcfs #PwME