Jennifer Brea🦒

Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID

[Jennifer Brea🦒 @jenbrea]

Working on a film about neurosurgical diagnoses and related comorbids (#MECFS, #longCOVID, #EDS, #POTS, #MCAS, #fibro).

What would you like to see in such a film?

[Zari.Plays @ZariPlays]

I made a book. It’s playful, sexy, a little vulnerable—and very gay.
It helped me heal, and I hope it sparks something for you too.
Grab the free sample 👉 [https://t.co/eHkDMyXeaH]
#PlayWithMeBook #GayMen #QueerJoy

[Omar Wasow | @[email protected] @owasow]

Were wealthy donors key to Trump’s campaigns in 2016 and 2020?

I'm thrilled to announce a new paper in which @ SKates5350, Eric Manning, @TMendelberg and I analyzed data on 108 million (!) homeowner-voters.

See https://t.co/aFY31KxrDQ 🧵 1/

[PF (Patricia/Pat) Anderson @pfatech]

This makes me cry each time I watch it. And I'm curious how long it took @jenbrea to recover from having done this in-person speaking event. Days? Weeks? I wonder if the audience even imagined what the gift of her time & energy meant or cost her? #MECFS #LongCOVID

[Irish ME/CFS Association @IrishMECFSAssoc]

🧵
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or sharing this video.

This 2017 TED talk features
@jenbrea.

https://t.co/QkbF49a22W

#MyalgicE #MyalgicEncephalomyelitis Day #1

[Andrea Ovejosita |🦋 . 🔮 . 👹 . ♈️ . 🔆 . 🪫 @missmunchkinz]

May is Myalgic Encephalomyelitis (ME) Awareness Month!

You can help by liking and/or sharing this video.

This 2017 TED talk features @jenbrea
https://t.co/UWwq1aOBz4

#MyalgicE #MyalgicEncephalomyelitis #missmunchkinz

[Richelle Sepulveda @Really_Richelle]

The first time I saw someone else experience what I did was when I watched Unrest by @jenbrea , during the parade scene. I knew the exact feeling she had as she progressively got worse. My husband even said, "that's how you look, too!"

[charlos @loscharlos]

2. Watch the incredible @netflix documentary about #MECFS by @jenbrea — @unrestfilm — it’s now free on YouTube.

This is a stunning & incredibly well done film — it’s content like this that really starts to bridge the gap for folks on illnesses like this. https://t.co/lrnPZETCRQ

[charlos @loscharlos]

“[#LongCovid] is a full NIH activity.. We must find better ways to.. restore the lives of these people”

“We are not where we want to be right now in terms of rapid, nimble clinical trials.. testing promising treatments.. that is our focus right now moving forward” — @NIHDirector

[Brandon Paul Shelton @BPaulShelton]

I've been putting off watching this since I first heard about it a couple years ago, but I ended that procrastination tonight.

#Unrest truly broke me while giving me hope for the future.

Thank you, @jenbrea.

https://t.co/Exobm02uc0

[charlos @loscharlos]

This is a big deal — the absolute best bet for more #LongCovid research funding in next year is through the appropriation process. The fact we have these Senators leading a letter calling for $1 billion is a *huge fucking deal*..

Absolutely, 100%, ask your senator to sign on👇

[Jennifer Brea🦒 @jenbrea]

@RoxiiLee_ I've recovered completely from ME and POTS

[Jennifer Brea🦒 @jenbrea]

This is great. I was in the moderate to very severe A category for much of my illness

[Rien de Böck @riendebock]

Tag yourself, I'm severe

ME severity scale by @DafoeWhitney (applicable to LC)

[Jennifer Brea🦒 @jenbrea]

@RealLucyLawless Really appreciate your panel at Sundance. Love Never Look Away. Congrats!

[Austin Robert @ar_pnw]

More and more #longcovid patients, like #mecfs patients, are learning they have a connective tissue / structural problem that is most likely contributing to their neurological symptoms

⬇️⬇️⬇️

[Hannah Davis @ahandvanish]

To those who tried Truvada, how long until the side effects went away? It’s been 2 weeks - the nausea has decreased a lot but still feel at a generally lower baseline, much more susceptible to PEM, all the immune symptoms very prevalent, worse POTS & light sensitivity. #longcovid

[Jessica Taylor-Bearman @jayletay]

Today we need to stand (or sit or lay down in my case) in solidarity with Millie, who is in hospital with very severe M.E.. She is being kept against her will, her M.E. deteriorating every day. Hospitals aren't equipped to deal with severe M.E. #BringMillieHome #DontLetMEDie

[Hannah Davis @ahandvanish]

Bernie Sanders (@SenSanders) has released a #LongCovid Moonshot Legislative Proposal calling for $10b in research funding!!

This is thanks to so much advocacy from patients & allies 💓 Immense gratitude to @LisaAMcCorkell @patientled @lcmoonshot @MichaelPelusoMD & the community!

[Jennifer Brea🦒 @jenbrea]

@kirstler31 Yes, I know several who have but primarily via surgeries for neurological pathologies/compression syndromes.

[Austin Robert @ar_pnw]

Starting to see a pattern in patients who undergo jugular decompressions and their #POTS symptoms are greatly reduced or go away all together (self reported, of course!) 😅

[Jennifer Brea🦒 @jenbrea]

@MECFSTheresa Yes

[Jennifer Brea🦒 @jenbrea]

Anyone with ME needing an NG tube, so important to rule out MCAS, MALS, Nutcracker syndrome, CCI, and other conditions that can cause gastroparesis.