@JenEricksonDC continues to sound the alarm on the organ harvesting crisis and bring evidence to hold the organ procurement organizations accountable.
See below for her testimony today before House Ways and Means
https://t.co/Uynhs89IA4
Thanks @rSanti97 for shining a light on corruption in organ donation. THIS IS FIXABLE... and since the status quo reads like a Netflix horror movie, we have to protect vulnerable patients now. https://t.co/zUZW2qQEjR
Listening to Jennifer Erickson present on this right now — insanely talented communicator and policy entrepreneur.
Highly recommend this episode purely as a study in selling a wonky policy idea.
INVESTIGATION INTO ORGAN HARVESTING PRACTICES
TJ Hoover was declared brain dead. He almost had his organs removed... and then he woke up. His sister Donna Rhorer recounts the terrifying ordeal:
"They had him shaved and prepped and draped and was, you know, going to start it. You know, gonna start harvesting."
Paperwork Reduction Act is example how govt process could turn well-intentioned legislation into net negative & became a test case to see whether reform in DC was possible at all. Good to see, after tireless effort by @pahlkadot, OMB came out with fixes this week. There is hope.
Trikafta was approved by the FDA 5 years ago today. Counting the trial, it’s been 6 and a half years for me.
Here I am two months (Feb 2018) before starting the trial > the big approval day (October 2019) during my first semester of business school after being on the drug for a year and a half > and then getting ice cream earlier this week with our kids!
Miracles do happen. It’s amazing the way life can play out in just a few years.
Thanks @EricBoehm87 for showing a stark example of why monopolies are a terrible idea. Huge thanks to Senators @ChuckGrassley@RonWyden for working to break up the failing national organ monopoly
Thanks to the efforts of people like Sen. @ChuckGrassley and @JenEricksonDC, things are starting to change. But those contractors have been failing miserably for years, subjecting Americans to untold amounts of avoidable suffering.
More here: https://t.co/GU8XgxHdXs
Sobering statistics on the failures of our country’s organ donation system cited in the Energy and Commerce Oversight and Investigations Subcommittee hearing. You can watch it now here ➡️ https://t.co/Jsj8OIYEo7
So grateful for all this team has done and for all that it will do! @KumarAGarg@tkalil2050 Jas Sidhu @RonitKanwar@Parthion and team are tremendous forces for good in the world.
I’m excited to announce that I’m launching a new non-profit organization today: Renaissance Philanthropy.
Renaissance will work with philanthropists to design and implement ambitious efforts leveraging science, technology, and innovation. https://t.co/5lra0IBgVV
I am excited to announce the launch of Renaissance Philanthropy, with a phenomenal team including @KumarAGarg. Our goal is to help foundations and philanthropists promote a 21st century renaissance, fueled by advances in science, technology and innovation.
“Senator Todd Young...who lost a friend waiting for a heart, has done a lot of oversight into OPOs.. And in one year of that oversight... organ donation in the state of Indiana went up by 44 percent.”
This highlights why vigorous oversight is critical.
https://t.co/2ouXBhklO4
One quarter of all kidneys from organ donors get thrown in the trash.
At Statecraft, we uncovered why a corrupt monopolist has managed organ procurement for 40 years, and how it’s getting fixed.
https://t.co/upmwyV9gdF
> Organs are literally lost and damaged in transit every single week. The OPTN contractor is 15 times more likely to lose or damage an organ in transit than an airline is a suitcase.
"UNOS and OPOs ... has been abusing patients and taxpayers for decades."
Following an investigation by the Senate Finance Committee, @HouseCommerce has launched a bipartisan investigation into the U.S. #organ transplant system.
Find out more:
https://t.co/ctbwETfNPv
Everything you need to know about the cases Trump is facing - especially the Manhattan/Stormy Daniels/election interference/hush money case that's (probably) soonest -- @ProfMMurray & @errinhaines make it easy to understand https://t.co/ro4Rom69e7
OMG!!!
"The Trump Indictments" by me and @AWeissmann_ is #1 on the @nytimes Bestsellers List!!!!!
Thank you, thank you, thank you to the great folks @wwnorton and all of the readers who bought the book!!
"And we owe it to ourselves to keep supporting our new health research agency called ARPA-H and remind us that we can do big things like end cancer as we know it" - President Biden
In a 2021 hearing, I asked an industry lobbyist about how OPO executives skew data and abuse donations—like taking the organization’s private jet on vacation.
I’ll keep working to hold these organizations accountable.
For the 1st time in 40 yrs, the gov is opening contracts to the best in IT, governance, logistics, data/analysis, comms, etc to help more patients receive lifesaving organ transplants. If your organization EXCELS in any of these fields, read on! https://t.co/hhGAxFVRJl