Jessica Shurer, MSW, LCSW

Director of Clinical Affairs and Advocacy @curepsp | Social worker in movement disorders neurology 🧠 Member of @movedisorder, @NASW, and @neuropalcare

[Jessica Shurer, MSW, LCSW @JessicaShurer]

HUGE thank you to @RepWexton for your continued collaboration and awareness-raising and @InsidePolitics for telling her story and featuring @CurePSP 📣🧠

[Inside Politics @InsidePolitics]

EXCLUSIVE: "When it comes to illness, progressive is not a good thing to be." Virginia's @RepWexton will retire next year as she battles a rare brain disease described as "Parkinson's on steroids." She shares her story with @MZanona in a sit-down interview. #InsidePolitics

[Jessica Shurer, MSW, LCSW @JessicaShurer]

What a week! Started with the @BrainEnviro, then a congressional briefing on #PSPAwareness with @RepWexton and @MichaelJFoxOrg, and ending with the passing of the National Plan to End #Parkinson’s Act. Amazing advocacy, collaboration and progress all around! 🧠📣

[CurePSP @CurePSP]

BREAKING: The U.S. Senate unanimously passed the National Plan to End Parkinson’s Act! The passage caps off a historic week of advocacy for CurePSP that came to fruition after years of dedicated support from the entire CurePSP community. #HR2365 Full story:https://t.co/jZ0r976HTv

[Nancy Pelosi @SpeakerPelosi]

#PSPAwarenessMonth recognizes the tens of thousands of Americans living with Progressive Supranuclear Palsy.

We proudly stand with our friend and colleague @RepWexton as she battles this disease and raises awareness to better diagnose, treat and finally cure PSP.

[Rep. Jennifer Wexton @RepWexton]

I was in Sterling today to celebrate how our Bipartisan Infrastructure Law is making it possible to clean up the Hidden Lane Superfund site.

I applaud @EPA and local govt efforts to clean up toxins and restore clean drinking water. We're making our community safer and healthier.

[CurePSP @CurePSP]

🌟Join us for an insightful webinar on advocacy and the bipartisan National Plan to End Parkinson's Act! Learn how @CurePSP and @MichaelJFoxOrg collaborate to drive this crucial legislation forward and how you can get involved! Register now: https://t.co/76ickscN4u

[CurePSP @CurePSP]

Thrilled to connect with our partners at #AANAM! These connections are the driving force behind our mission. Partnership propels progress. @MissionMSA @ParkinsonDotOrg @AFTDHope

[Kate @MPLSkate]

The @ParkinsonDotOrg Team Training and Advanced Team Training will be held in Minneapolis this year! @CurePSP is partnering with the Parkinson Foundation for the Advanced interdisciplinary course focused on atypical Parkinsonian syndromes. Join me!!

https://t.co/Oy0PuU8LJr

[CurePSP @CurePSP]

Harness the power of education with our CurePSP Toolkit! Perfect for healthcare, academic and community leaders looking to make a difference. Last reminder! Secure your #CurePSP Awareness Toolkit today!❤️https://t.co/WuGXyZjaNu

#HopeInAction #Awareness #NonProfit #Advocacy

[Jessica Shurer, MSW, LCSW @JessicaShurer]

Connecting with folks from @CurePSP Centers of Care is one of the many great parts of attending #AANAN 🧠

[Julio C. Rojas @JulioCRojas10]

Always an honor to meet the most influential disease advocacy groups for neurodegenerative diseases on the planet. Thank you for your work 🙏🏼
#AAN2024
@CurePSP
@AFTDHope
@alzassociation

[CurePSP @CurePSP]

Excited to see our Associate Director, Courtney Malburg, attending the session on "Neuro-Palliative Care: Maximizing Quality of Life in Serious Neurologic Illness" at #AANAM! Maximizing quality of life is crucial for patient well-being.

[Kristophe Diaz, PhD @KristopheDiaz]

For a few days, half of @CurePSP is meeting in our New York offices. I snuck in during one of their work sessions. The Clinical Affairs & Advocacy team is working with the Marketing and Communications team to plan several exciting efforts. After a long day, they are all smiling!

[CurePSP @CurePSP]

Exciting visit to @PDCMDC, our newest #CurePSP Center of Care! 🏥 @RoyCLinMD and Rory Mahabir led a dynamic agenda featuring breakthrough clinical services, research insights and a peek into neurodegenerative disease studies in fruit fly models. Thank you for your dedication!

[CurePSP @CurePSP]

We're proud to announce the recipients of CurePSP's Collaborative Approaches to Resources, Education, and Support (CARES) Grants for 2023, marking the second year of this impactful funding program. 🌐

Continue Reading: https://t.co/oqnbI3Kbrv

[Jessica Shurer, MSW, LCSW @JessicaShurer]

Grateful for the tireless advocacy of @RepWexton whose dedication to the Parkinsonism community has resulted in the House’s passage of this historic legislation. This is huge for the @CurePSP community. Now we must continue the momentum on the Senate side! 📣

[Rep. Jennifer Wexton @RepWexton]

🚨 The House just passed the bipartisan National Plan to End Parkinson’s Act! 🚨

This is a transformative step to fight PD & atypical PD diseases like mine. We’re going to save lives and give families hope.

I’m grateful to @RepGusBilirakis & @RepPaulTonko for their leadership.

[CurePSP @CurePSP]

Thank you @MacFarlaneNews for helping amplify @RepWexton voice and willingness to tell her story and struggles living with PSP. Thank you for working with her to raise awareness. It makes a huge difference for all aspect of what we’re trying to solve.

[C. Roy Lin, MD, MPH, FAAN @RoyCLinMD]

It was a great pleasure to attend @CurePSP Hope as big as Texas at Dallas, meet the community, and present what @BCMhouston @BCMneurology @PDCMDC has to offer.

Thanks @JoriFleisher for the compassionate talk and @JessicaShurer for your innovative and exemplary leadership!

[Jessica Shurer, MSW, LCSW @JessicaShurer]

We are extremely fortunate to have @CurePSP Center of Care directors @RoyCLinMD and @JoriFleisher representing at our Hope As Big As Texas event to benefit the CurePSP Quality of Life Respite Grants.

[Jessica Shurer, MSW, LCSW @JessicaShurer]

Patients with #PSP need to be sooner and more frequently. ⚡️Senior author⚡️on an important POV manuscript with Marian Dale of @OHSUBrain, @FarwaAli_, @KristopheDiaz and many others from @CurePSP Centers of Care. Out now in @ParkinsonismD! https://t.co/z5d51uEdaU

[CurePSP @CurePSP]

Successful North Carolina visit! Productive discussions with Dr. Sklerov at the #CurePSP Center of Care at @UNCneurology on PSP trials and legislative advocacy on insurance coverage while also connecting with some incredible families! A united front for a stronger community. 🌟

[CurePSP @CurePSP]

📢 Exciting news from #CurePSP! We've expanded our network to 33 specialized medical centers across the US and Canada with the addition of @PDCMDC, @VanderbiltU and @univmiami. Together, we're advancing care for PSP, CBD and MSA. 🌎

https://t.co/RS2byTY1p1

#BecauseHopeMatters