Kimberly Hicks

COO/CFO/Treasurer @OpenMedF | Funding outcome-driven research and changing the global landscape for chronic complex diseases: | #mecfs #longcovid

[Kimberly Hicks @KA_Hicks]

“What you do makes a difference, and you have to decide what kind of difference you want to make.” ― Jane Goodall #inspiration, #legacy

[Kimberly Hicks @KA_Hicks]

Congrats @RTHM_Health team. This is such an important step forward for patients, for scaling clinical care, & analyzing disease processes from patient data. With patient feedback and with each iteration this type of intelligent health roadmap offering will become essential for managing chronic complex diseases like MECFS and others.

[RTHM @RTHM_Health]

Big announcement: RTHM’s intelligence platform has officially launched!

For too long, people with complex chronic conditions have had to shoulder the burden of managing their medical journey on their own. RTHM’s new platform is changing that.

RTHM’s new HIPAA-compliant intelligence platform brings your health story into focus, pulling together records, labs, diagnoses, and symptoms to transform complex data into clarity and suggest the best next steps with your care team, including personalized treatment and workup recommendations.

The future of care starts here. We’re excited to share this first release with you, and to keep building what comes next together.

Ready to see the bigger picture of your health? Start today (it’s free!): https://t.co/nzmkP1JtRh

Please share 🙏 @patientled @doctorasadkhan @exceedhergrasp1 @PlzSolveCFS @MEActNet @putrinolab @remissionbiome @IsabelRamirezRD @bhanlon15 @AngelaMSWinCA @loscharlos @tessfalor @jencurtinmd @BinitaKane @resiapretorius @LeoGallandMD

[Kimberly Hicks @KA_Hicks]

@scott_scientist @IsabelRamirezRD @OpenMedF @tessfalor I don't disagree with any of your points. They key is finding manageable and scalable ways to go about this. That's where the collab with @IsabelRamirezRD and @tessfalor and RR team comes in. Would welcome an opportunity to talk more with you on this.

[Kimberly Hicks @KA_Hicks]

@scott_scientist @IsabelRamirezRD @OpenMedF We are trying different approaches for this and have incorporated patients into different projects in ways that are not always visible over the past few years. Working with @tessfalor and @IsabelRamirezRD and the RR team is an additional approach.

[Kimberly Hicks @KA_Hicks]

@tessfalor Congrats!

[Kimberly Hicks @KA_Hicks]

@RobWust @amsterdamumc Congrats to you and the team there!

[Kimberly Hicks @KA_Hicks]

@tessfalor @IsabelRamirezRD @KatBoniface @remissionbiome Fantastic opportunity!

[Kimberly Hicks @KA_Hicks]

Check out the @OpenMedF StudyME platform - recruiting patients globally for research way beyond just OMF-funded projects. Open to all IRB-approved studies for #MECFS, #LongCOVID, and related diseases.

[Open Medicine Foundation @OpenMedF]

OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments.

👉 Learn more and sign up today: https://t.co/W4BJPgqM9j

[Kimberly Hicks @KA_Hicks]

@fox__intern @getbcard @OpenMedF Thanks so much.

[Kimberly Hicks @KA_Hicks]

So proud of this collaboration with @getbcard and the innovative approaches to supporting communities like @OpenMedF. So many opportunities to create positive network effects for all and solve big global health issues at the same time.

[BCard 🏴💳🐰 @getbcard]

We're excited to announce the launch of @OpenMedF on BCard!

Now you (yes, you!) can easily support OMF's novel collaborative research approach for diseases like ME/CFS and long COVID by signing up for BCard (🇺🇸 only, link below).

@OpenMedF is doing something remarkable...

[Kimberly Hicks @KA_Hicks]

Looking forward to joining @BlackFlagDAO, @almithani,
@theNFThinker, @Christintweets, @m_goes_distance,
@Matt_McKibbin, and others tomorrow. Sharing with our friends @RenegadeRes, @IsabelRamirezRD, @tessfalor.

[Black Flag DAO 🏴 @BlackFlagDAO]

DeSci is reshaping research communities, and @getbcard is building the tools to help them fund themselves!

Tune in for our DeSci community space with @OpenMedF, @bio_hacker_dao, and other industry frens as we discuss the future of blockchain + science

https://t.co/pY30oDlvuj

[Kimberly Hicks @KA_Hicks]

@erikmoldwarrior @lifeanalytics Okay, @erikmoldwarrior don't know what you are referencing here since this had nothing to do with OMF. I was simply apologizing for not responding to your previous information sooner.

[Kimberly Hicks @KA_Hicks]

@erikmoldwarrior @lifeanalytics @erikmoldwarrior so sorry you did not receive a response; very difficult to stay on top of all across all platforms. We are head down pulling all the pieces together with many interesting results coming out at same time. Appreciate the feedback.

[Kimberly Hicks @KA_Hicks]

@getbcard Presentation was 🔥

[Kimberly Hicks @KA_Hicks]

@DafoeWhitney 🙏🩷

[Kimberly Hicks @KA_Hicks]

Canadian non-profits and charities, @canadiancharity is a stellar partner to have on your team, and provides helpful & informative online resources and webinars.

[Mark Blumberg @canadiancharity]

Online courses are not as much fun as in-person. But they save a lot of travel time and cost and are available sometimes 24/7 not once per year or 2. Also you can start and stop at your pleasure. You can even replay Checkout our 19 courses https://t.co/Y6xQpOURPd

[Kimberly Hicks @KA_Hicks]

@Morgs6942 @JanetDafoe Hello @Morgs6942 and thanks for your support of @OpenMedF . While we (and therefore Patients!) have funded a large portion of the research being discussed, these are indeed the Stanford Working Group meetings and the discussions have been so encouraging! Great collaborations!

[Kimberly Hicks @KA_Hicks]

Hello @memdotai 👋 just setting up my Twitter flow. Here's my validation code: 5OCSqazfTtY7LnCGIaFL

[Kimberly Hicks @KA_Hicks]

Thanks @PutrinoLab for this excellent summary and response, and for your continued and valued work to understand #LongCOVID and similar diseases like #MECFS and others.

[Putrino Lab @PutrinoLab]

We are in our fourth year of work to understand #LongCovid and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a 🧵 on why LC IS NOT FND (1/)

[Kimberly Hicks @KA_Hicks]

Kudos @r_prior . Blows my mind (and @OpenMedF) that articles like this are still needed in the face of overwhelming scientific evidence of biological basis of #MECFS & #LongCovid