Linda Butler

Have had CFS/ME 6 years, hardest thing not being able to look after my little grandchildren. Hating this illness.

[Siobhan Michaels @littleduckquack]

We had great fun as usual this morning on the @DCTTrips Tunnel Tots!!! We’ve been going for almost a year, would highly recommend to anyone with little ones! #Dudley #Canal #Toddlers #KidsActivities

[Phoebe Boag @PhoebsBo]

Why does disability equal invisible? I’ve been erased from so many of my able-bodied friends lives. I didn’t change, I’m still me, I just became chronically ill. I don’t understand it at all.

#PwME #MyalgicE #MyalgicEncephalomyelitis #ChronicIllness #Disability

[Linda Butler @LindanButler]

Mine also....it's hard to accept they need to go. https://t.co/nFfSzbzzre

[Linda Butler @LindanButler]

I used to get things right first time. Now I am not only slower but also have to redo a quarter of what I have done. I really want to be the person I used to be. #MECFS #brainfog

[Neglected Chronic Illnesses Foundation @NCIFPakistan]

"It never occurred to me that one day I would get sick and never get better." #ENDMECFS @OpenMedF #TimeForUnrest

[Dr Mark Guthridge @Dr_M_Guthridge]

New aussie brain imaging study of #pwME during cognitive task finds significant differences compared to healthy controls.

"The exaggerated.. responses in #MECFS patients.. [during] cognitive tasks would contribute to fatigue, if not constitute its cause."
https://t.co/j2lhUsrpnk

[Anra Kennedy @AnraKennedy]

Honest, lively, informative talks like this by @Sarah_Fellows on @DCTTrips Hidden Histories project, taking her stories out to Tesco’s (part of #Civilisations Festival & supported by @artfund) are one of the reasons I love working with #museums so much. Thanks @MidFed :)

[Joy In The Seasons @JoyInTheSeasons]

People don't realise just how much effort & energy it takes to attend a social event. When (if) we make them it's so exhausting #PwME #mecfs

[Dan Neuffer @cfsunravelled]

People get it so wrong with Fibromyalgia, it isn't a symptom and it's certainly not just about pain. Please RETWEET

[Sally @dcttkids]

Have you got Facebook messenger? Then you should check out the new digital story in our exhibition!

[Linda Butler @LindanButler]

@TheLastLeg Nightmare on Downing Street#Coalitionnames

[Dr Michelle Bull 💙 @MichelleBull4]

#millionsmissing #MEAwarenessDay

[Sally @dcttkids]

I met Otis today, he is from Ombersley! All his friends from his school were lovely, we had lots of fun in our workshop session.

[Dan Neuffer @cfsunravelled]

Sadly, sometimes it's just easier not to answer this question truthfully when you have ME/CFS/Fibromyalgia PLEASE RT

[Sally @dcttkids]

Are you joining us for a Toddler Boat Trip tomorrow? We'll be leaving at 10am sharp, don't be late! :)

[Linda Butler @LindanButler]

Loneliness is overwhelming when you are awake upset and in pain but everyone else is asleep. #cfsme #chronicfatigue

[Linda Butler @LindanButler]

Not always easy. https://t.co/9dvCsXi87B

[Dan Neuffer @cfsunravelled]

If you don't look after yourself emotionally when you have ME/CFS & Fibromyalgia, then how can you possibly... https://t.co/eumNiduXL5

[Sally @dcttkids]

@WrensNestSchool doing some exhibition planning for their #takeoverday display on Victorian Life!

[Rachel Cooper @CrackleSays]

Exhibition planning time @DCTTrips @kidsinmuseums @takeovermuseums #takeoverday