📢 UK Salivary Gland Cancer patients & carers: We need your help! Please ask your oncologists & surgeons to fill out our quick survey on SGC care guidelines. Let’s improve cancer care together. 🩺💙
👇 Link for clinicians: https://t.co/xlXqYfiByS
#SGC#RareCancer#NHS#Oncology
📢 UK Patients: We Need Your Voice Your experience is the evidence we need to drive change. 💙
👇 Take the survey here: 🔗 https://t.co/P0Lj3Xhgdn
Please RT to help us reach as many patients as possible! #SGCUK#RareCancer#EarlyDiagnosis#CancerAwareness#PatientVoice
Happy International Nurses Day! 💙
For the Salivary Gland Cancer community, nurses are more than just healthcare providers, they are our navigators, our advocates, and our support systems.
Join us in saying thanks! 🦋
#InternationalNursesDay#IND2026#OurNursesOurFuture#SGCUK
Secretory Carcinoma Is a typically a slow-growing, painless lump, most commonly found in the parotid gland or the minor salivary glands in the mouth.
🔗 Read more about Secretory Carcinoma here: https://t.co/RBIlZO0QZz
#SGCUK#SecretoryCarcinoma#RareCancer#CancerAwareness
From our colleagues at Salivary Gland Cancer UK Charity…
Have you been diagnosed with salivary gland cancer in the UK?
We are inviting individuals to take part in a short survey to help improve understanding of how salivary gland cancer presents and is diagnosed in the UK.
This survey is open to individuals who:
- Have been diagnosed with salivary gland cancer — this includes salivary gland–type cancers (such as adenoid cystic carcinoma) that originated in other sites, such as the breast, trachea, skin, bartholins gland or lungs.
- Underwent diagnostic care within the UK
The survey takes approximately 15 minutes to complete.
All responses are completely anonymous. Your responses will help us better understand the symptoms patients experience and the pathways to diagnosis, with the aim of improving early detection and patient care.
If you’re eligible and willing to share your experience, please consider taking part: https://t.co/76dC7Eb2u0
Thank you for sharing your experience and helping improve our understanding of these conditions.
Please share this survey to spread the word! It's also posted on Instagram, Facebook, X and LinkedIn.
@SGCancerUK
Thanks to @cjmckeon for this lovely article about my marathon for @SGCancerUK and @Cancer52org - I’m running to make my brother proud https://t.co/8LU0y8acg7
Have you been diagnosed with salivary gland cancer in the UK?
If so and are willing to share your experience, please consider taking part: https://t.co/P0Lj3Xhgdn
Thank you and Please share this survey to spread the word!
#acc#adcc#acinic#adenoidcysticcarcinoma#salivaryduct
Run the breathtaking @LochNessMarathon for #SGCUK! 🏴🏃♂️
Experience the magic of the Highlands on Sept 27th. We have just 3 spots to help fund vital research and peer support.
Don't miss out! Secure your place: 📩 [email protected]#LochNessMarathon#RunForACause#SGCUK
This month, we’re highlighting Carcinosarcoma, an incredibly rare salivary gland cancer making up <1% of cases. 🧬
Because it’s aggressive, early detection is key. Researchers need our help to find better treatments!
Read more & support research: https://t.co/NW0Nx9I3I6
#SGC
Today is #RareDiseaseDay! 🦓
In medicine, "hoofbeats" usually mean horses- but the salivary gland cancer community is made of zebras. With 20+ subtypes, our rare path deserves specialised research and support.
#SGCUK#ShowYourStripes#ZebraStrong#RareCancer#SGC
A rare cancer diagnosis can feel like a whirlwind, but you don't have to face the wind alone. Find your footing with our peer support networks and community gatherings.
Catch your breath with us. 💙
#SGCUK#RareCancer#Mindfulness
Rare cancers can feel isolating, but you don’t have to face it alone. 🤝
Join our Network for: ✅ Invites to clinician-led events ✅ Peer support from those who truly understand ✅ Updates on research & treatment
Sign up: https://t.co/NUkHiHoSXi
#SGCUK#RareCancer
Giving Yourself the Gift of Grace This December 💚 The holidays are challenging with SGC fatigue or treatment. Remember, courage is knowing when to REST.
✨ Prioritise your energy.
🍽️ Adapt the menu.
🫂 Lean on your network.
Self-care is essential, not selfish.
#SGCUK#CancerCare
Cancer Spotlight: Adenocarcinoma is a family of SGCs, not a single diagnosis!
Effective treatment hinges on understanding the unique features and genetic targets of subtypes like PAC, CASG, MAC, & MSA.
Learn about the differences: https://t.co/XQMEbyJp8t #SGCUK#RareCancer
Nicola shared critical SGC Day insights on developing standardised guidelines. Specialised, consistent care is vital for improving patient outcomes. Watch her full segment now! https://t.co/jKjgNFVHKh #Guidelines
TRIAL OPEN: Dry Mouth Relief After Radiotherapy. New hope for dry mouth after radiotherapy! The AQUAx2 Study is investigating a gene therapy for xerostomia. Learn more and check eligibility: https://t.co/tuURjrMcVc #ClinicalTrials#SGC
Medical professionals: During #MouthCancerActionMonth, remember that a persistent lump in the parotid or neck area needs specialist investigation. #SGCUK