LongCOVIDLA

Louisiana Chapter of @c19LH_advocacy for Longhaulers #StopMedicalGaslighting All opinions & rants are mine

[LongCOVIDLA @LongCovidLa]

@PlanetEarth_HD @Starseeker1986 Sounds like a dysautonomia. Muscle & nerve misfires or disconnect. Do you have an MD able/willing look into a nerve block? I had a pre lumpectomy tag placed. Oddly the nerve block for procedure numbed & eased pain. Been 5 wks & it’s coming back. Has to be bc of nerve block.

[LongCOVIDLA @LongCovidLa]

@PlanetEarth_HD @CovidSolidarit1 So sorry UR dealing with this. 🙏🏻you get relief. I have same but on right side. pain is indescribable & unrelenting. No MD takes it serious. Can U take deep breath or eat without a spasm starting? Diaphragm & abdominal/bladder wall w/ dysautonomias. Phrenic/vagus nerve.

[LongCOVIDLA @LongCovidLa]

@Be_Kinderr @maosbot @KunstJonas AMEN

[LongCOVIDLA @LongCovidLa]

@D_Bone That is just profound. Like mic drop, no words

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

It has become a disgraceful, yet standard, practice for #LongCovid patients to be waiting up to 8-12 months for appointments. This is unacceptable and was also addressed in our open letter to national leadership. No care= decreased QoL and deterioration. https://t.co/RXJhWxNuyH

[Billy Hanlon @bhanlon15]

@drmfreire @ahandvanish

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

1/18 Today, nearly two years into the COVID-19 Pandemic, we are calling on @POTUS, @Congressdotgov and the @WhiteHouse to immediately create Long Covid Assistance Programs and a Long Covid Task Force. #LongCOVIDActionNow #LongCOVID #DisabilityAwareness

https://t.co/b2uioU4XN7

[LongCOVIDLA @LongCovidLa]

@kdurquiza @MarkedByCovid Prayers for you 🙏

[Hannah Davis @ahandvanish]

In our #LongCovid study we found ~20% were healthcare workers. Long Covid is contributing to this massive shortage.

[Long COVID Alliance @LongCOVIDAllian]

Listen to "For some patients, long COVID is their new reality" from @npratc, featuring insights from LCA members, including Jamie Seltzer @MEActNet, Michael Sieverts, and Alison Sbrana @itsbodypolitic! https://t.co/JhcKthU77E
#LongCovid #TrustPatients #StopTheLongHaul

[LongCOVIDLA @LongCovidLa]

@VirusesImmunity @VirusesImmunity Is there any correlation of findings akin to those of us suffering with long covid? Are there any plans to study the use of this monoclonal ab cocktail in longhaulers?
Thank you for giving us hope 💛💙

[Merve Tepe, PhD @mervetepePhD]

Wow 😯

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

We have been working with @KitRamgopal at NBC and we would like to encourage all #Longhaulers / those who suffer from #LongCOVID to participate in this brief survey relating to how symptoms impact you, your daily living and your employment. Please RT #FBLC https://t.co/3R1ZpVPH2S

[LongCOVIDLA @LongCovidLa]

@DrCSWilliam 🤬

[LongCOVIDLA @LongCovidLa]

@LauraMiers Agreed! Recovered is NOT ALIVE

[Kristin Urquiza @kdurquiza.bsky.social @kdurquiza]

Since January '21, @MarkedByCovid activists along with our friends @SmartCityPolicy have been working to align mayors across the country with the call for #COVIDMemorialDay for the First Monday of March.

To date, 165 mayors have supported https://t.co/9BL4u4F3eC (thread)

[LongCOVIDLA @LongCovidLa]

@brucep13 Oh hell no

[Eric Topol @EricTopol]

On #LongCovid, @Dr2NisreenAlwan, a leading authority on this condition, has an exceptional perspective @ScienceMagazine today reviewing what we know, which is grossly insufficient, and what we need to do https://t.co/R7Mf5yEQCx

[COVID Survivors for Change @SurvivorsChange]

#PaidLeaveForAll would extend a lifeline to workers and families who have been impacted by #COVID19. Today in the @politico and @thehill, an open letter from hundreds of #Covid_19 survivors urging Congress to take action and pass #PaidLeave.