Jenna Montgomery

[Sonya @sonya_lala_]

Thank you, @SenJohnHoeven, for a great mtg w your staff yest on the severe neuro-immune disease #MEcfs & the flood of new MEcfs cases expected from #COVID. N Dakotans appreciate your support for research funding & your help for those afflicted. THANK YOU! #CongressFight4ME

[Sonya @sonya_lala_]

Thank u @SenKevinCramer for a great mtg w your staff yest on the severe neuro-immune disease #MEcfs & the flood of new MEcfs cases expected from #COVID. N Dakotans appreciate your support for research funding & your help for the 5,800 afflicted in ND. THANK YOU! #CongressFight4ME

[Sonya @sonya_lala_]

Thank u @RepArmstrongND for a great mtg w your staff yest on the severe neuro-immune disease #MEcfs & the flood of new MEcfs cases expected from #COVID. N Dakotans appreciate your support for research funding & your help for the 5,800 afflicted in ND. THANK YOU! #CongressFight4ME

[Sonya @sonya_lala_]

Yest I had the great honor of meeting w staffers for these 7 Senators & Congr Reps via phone, as part of @PlzSolveCFS’s 4th Annual #MEcfs Advocacy Day. U can reach out to ur reps too & & ask for their support by clicking here: https://t.co/zXBcQUC230 THANK YOU! #AZ #ND

[Jenna Montgomery @MEWarriorGirl]

A sincere thank you to our local newspaper for sharing our life altering experience with ME, mast cell disease, autonomic dysfunction, and co related conditions including genetic connective tissue disorder EDS which we believe contributed to me developing CCI

[Jenna Montgomery @MEWarriorGirl]

Overcoming M.E., a daughter's struggle to find treatment locally for severe pain | The Dickinson Press https://t.co/SFJJU07xuS

[Jenna Montgomery @MEWarriorGirl]

@TomKindlon Well done!

[Jenna Montgomery @MEWarriorGirl]

@JanetDafoe How beautiful!!!

[Tom Kindlon @TomKindlon]

Hard to believe a treatment like this is recommended by NICE and some other agencies

GET=Graded Exercise Therapy

From: "Forward ME & Oxford Brookes University Announce Results of Patient Survey on CBT & GET in #ME/#CFS | 03 April 2019"

https://t.co/EouZFfGkWA

#MEcfs #MyalgicE

[Jenna Montgomery @MEWarriorGirl]

@mcfindoone Sending the gentle hugs 💜

[Jenna Montgomery @MEWarriorGirl]

Thank you @BearHugsforME ! I love her!!!

[Jenna Montgomery @MEWarriorGirl]

@BearHugsforME Oh my goodness! So adorable! Can’t wait to see the sweater and to have her to cuddle 💜 Thank you so much- I needed this picture today!

[Jenna Montgomery @MEWarriorGirl]

@jemb123 @JoanMcParland Nice for it to finally start to be recognized that it isn’t just CBT for ME that has a poor evidence base, CBT in general is not as effective as claimed.

[Jenna Montgomery @MEWarriorGirl]

@Rivkatweets @JanetDafoe @VictoriaNoelte Oops that doesn’t seem to work. Try this: https://t.co/3w6kRZs2X2

[Jenna Montgomery @MEWarriorGirl]

@Rivkatweets @JanetDafoe @VictoriaNoelte https://t.co/CsNZpXT8Av

[Jenna Montgomery @MEWarriorGirl]

THIS. RIGHT. HERE!

[Jenna Montgomery @MEWarriorGirl]

@Rivkatweets @JanetDafoe @VictoriaNoelte Saw the post on the medium today! Emailed the person who is fielding participants 💜

[Jenna Montgomery @MEWarriorGirl]

@JanetDafoe @VictoriaNoelte I want to be a part of this! I don’t live nearby but will gladly send blood! Surgery schedule up in air right now but hopeful will have time to donate before surgery happens 🤞

[Jenna Montgomery @MEWarriorGirl]

I want to participate in this! So important- knowing what role this plays, why some are going into remission! Is this a structural cause of ME? one of many ways arrive at same disease, or do ME criteria need further defined so this is ruled out in diagnosis process?

[Janet Dafoe @JanetDafoe]

@VictoriaNoelte Ron wants to get blood samples before and after CCI surgery. If you live nearby come to genome center. If not They are figuring out procedures for sending blood.

[Janet Dafoe @JanetDafoe]

Ron's group now has submitted 4 new grants to NIH. 1. Mercury & selenium levels in blood, hair, urine w Laurel Crosby. 2. Nanoneedle development, Rahim Esfandyarpour. 3. RBC deformability diagnostic testing. 1/2