Victoria

MECFS patient. I include a daily dose of laughter as part of my treatment. I long for the day to walk freely and get back on my bike. VEGAN

[Victoria @VictoriaNoelte]

@goodgolly247 @SueB15724 @lisarinna Who would replace them all? I think Denise should stay.

[Victoria @VictoriaNoelte]

@SueB15724 @lisarinna Teddi

[Victoria @VictoriaNoelte]

@zdotty @NIHDirector @NINDSdirector Heartbreaking

[Victoria @VictoriaNoelte]

@jenbrea How about eyelashes?

[Victoria @VictoriaNoelte]

@Mishka0808 Don't give up! Perhaps a different attorney?

[Victoria @VictoriaNoelte]

@chrissyteigen Zoya nail polish

[Victoria @VictoriaNoelte]

@KSkarenscott @SaveSamantha_ How are you feeling? Walking?

[Victoria @VictoriaNoelte]

@mecfsmum Yes

[Victoria @VictoriaNoelte]

@OpenMedF Can you collaborate with other researchers and get more involved?

[Victoria @VictoriaNoelte]

@KyleRichards Oh Kyle, so disappointed. What's with the new personality?

[Victoria @VictoriaNoelte]

@JulieDuffy4 And vacation everyday!

[Victoria @VictoriaNoelte]

@RainbowYeticorn @jenbrea Yes

[Victoria @VictoriaNoelte]

@gramchoo @lisarinna @BravoTV No, but yes to Teddi.

[Victoria @VictoriaNoelte]

@AOC Goodness you are everywhere. You need to chill for a bit. You can't know everything.....

[Victoria @VictoriaNoelte]

@OpenMedF @JanetDafoe @JanetDafoe Are you aware of the undiagnosed disease network? This is a collaboration between Stanford, Harvard, Washington University and Baylor. Can we get additional researchers involved in our illness? Perhaps a way to achieve more $$$

[Victoria @VictoriaNoelte]

@jenbrea @NDPH_Research @exceedhergrasp1 @MEActNet How about educating top medical schools. We need to find a younger group of physicians/researchers. Get people excited. MECFS needs to be the next "cool" thing.

[Victoria @VictoriaNoelte]

@KSkarenscott @BettineM @jenbrea Sleep issues?

[Victoria @VictoriaNoelte]

@exceedhergrasp1 I really think this is a must. There is one in particular that receives "a lot" of NIH funding. Missing the boat! We need those additional researchers and some of that funding.

[Victoria @VictoriaNoelte]

@exceedhergrasp1 I would like to see MEAction coordinate events at remaining top medical schools for educational purposes. Remaining top 10?

[Victoria @VictoriaNoelte]

@MBVanElzakker @erikmoldwarrior @MBVanElzakker agree!