MEnough

Tweet about ME/CFS in Norwegian and English. Raised approx $30,000 for Open Medicine Foundation (OMF)

[MEnough @MEnough7]

@finnishgunners Hi! Do you mind sending me a DM? I can’t send you one it seems, and I would like to ask some questions with regards to daratumumab. Cheers from Norway

[MEnough @MEnough7]

@wtogami @SalvMattera What kind of lymphocyte stimulator are you responding to, if I may ask?

[MEnough @MEnough7]

@atranscendedman Are you doing all these at the same time?

[MEnough @MEnough7]

@Gmwetz Thanks! I think I will test it, worth a shot

[MEnough @MEnough7]

@Gmwetz Thank you! Do you think they help you?

[MEnough @MEnough7]

@fcknsyd I forgot to say, he has ME/CFS, POTS and MCAS

[MEnough @MEnough7]

@fcknsyd My brother took it four times (one each month for four months). He stopped due to no effect. He is usually quite sensitive to drugs/supplements, but didn’t have a negative (nor positive) reaction to Xolair

[MEnough @MEnough7]

WOW! Nye NIH direktøren sier pasienter med ME, long covid osv har blitt gaslighted i lang tid, og at han ønsker mer forskning. Norske helseledere fortsetter å lukke øynene og ørene @Helsedir #MECFS

[Jan Jekielek @JanJekielek]

NIH Director Dr. Jay Bhattacharya says Covid vaccine-injured patients were gaslit.

Now, he says, the NIH is working to help them.

“You have patients with conditions that are poorly understood, and the medical system will gaslight them.”

“They tell you it's a psychological issue rather than a physical issue.”

“It's going to make you think that you're crazy.”

“We have investments in this [Covid vaccine injuries], and we’re going to have more investments in it starting this year.”

@NIHDirector_Jay @DrJBhattacharya

[MEnough @MEnough7]

@subversivepsych @rainbowjanelane If you sent me a dm I didn’t get it. Thanks @elonmusk for still thinking I’m a bot, despite having completed numerous human verification puzzles

[MEnough @MEnough7]

@subversivepsych @rainbowjanelane That’s a shame:( Do you mind sending me one?

[MEnough @MEnough7]

@SalvMattera @amaticahealth Thanks! I was under the impression that it was at no cost to the patients

[MEnough @MEnough7]

@jossyoursalad69 Thank you!

[MEnough @MEnough7]

@rossettiStone1 @seanstidston @SalvMattera Thank you!

[MEnough @MEnough7]

@seanstidston @rossettiStone1 @SalvMattera What’s the reasoning for combining maraviroc with a statin?

[MEnough @MEnough7]

@wtogami Thank you for sharing! May I ask which biomarkers help determine if you’re a good candidate for Anktiva?

[MEnough @MEnough7]

@mildTin @ahandvanish @cstroeckw @weandmecfs