I came from hospital with a remodulated immunosuppressive therapy, but after a week the blood virus concentration skyrocketed reaching the double of the previous week value (765k copies/ml vs 359 copies/ml) and this is seriously bad, because it means my organism doesn't react to the standard therapy (which is actually an anti-therapy).
Since this is a quite rare condition (as most part of patients react well to the immunodepressant reduction), it means mine is a severe pathology seriously putting at risk the new kidney. I read tens of papers from everywhere in the world and apparently there's no effective anti-viral drugs agains this virus (Polyomavirus BK) but there are potential cocktails along with IVIGs, intravenous immunoglobulines.
I suspect I need help with urgency from anyone could know very specific information about experimental treatments for this virus in a post-transplant condition that can avoid the graft loss. Obviously, being in Italy, the quickest help can come from here or from the closest countries, but contacts are important too across hospitals and clinics around the world, so that's why this is a tweet in English (on top of the fact that the account has always posting in English).
Thanks in advance for your help and support as usual.
القمر دي اسمها رقية .. رقية عندها مرض اسمه ضمور العضلات .. مرض مالهوش علاج .. الا علاج واحد بس
حقنة لازم تاخدها قبل ماتتم سنتين .. المشكلة ان فاضل عشر ايام ورقية تتم سنتين وكل ما الوقت بيعدي .. فرص رقية بتبقى اقل .. اتبرع بأي مبلغ مهما كان.. هيساعد اننا ننقذ مستقبل وحياة رقية