marie ward

have 4 fantastic kids two with pku.I love music, food, and a whole lot more.

[NSPKU @NSPKU]

#InternationalPkuday 2023 is today!
The birthdays of both Dr Horst Bickel (pioneer of #PKU treatment) and Robert Guthrie (newborn screening inventor) were both on 28th June!
Groundbreaking work helping thousands and thousands of people live lives with less/no brain damage
👌👌👌

[NSPKU @NSPKU]

Happy Mother’s Day!
To all Mothers raising a child w #pku and all women w #pku who want to be, or are, Mothers
You are all wonderful women!
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[Dalai Lama @DalaiLama]

A meaningful life is not about material gain, power or fame; these are only of passing value. True meaning comes from an inner sense of peace and contentment, which in turn must be based on a sense of caring and love for others.

[marie ward @MarieWard123]

Thanks Idiot for being my top podcast on @Spotify this year. I loved all 81 minutes of it. #SpotifyWrapped https://t.co/03QyXbZVYL

[marie ward @MarieWard123]

Thanks @george_ezra for spending 1,083 minutes with me in 2022. I couldn’t stop listening to Anyone For You (Tiger Lily). #SpotifyWrapped https://t.co/9zjuYozRt0

[Scotty-Do’s World @ScottyDoWilson]

@pink In the queue waiting to see you, give us a wave if you spot us in the crowd should be near the stage it’s gonna be an unbelievable show, so can’t wait 🤗 #excited #beautifultraumatour2019

[Everyday Mindfulness @MindfulEveryday]

"Happiness is not something to be chased. It is a decision to be made." ~ @joshua_becker
#mindfulness

[Everyday Mindfulness @MindfulEveryday]

“Where you end up isn’t the most important thing. It’s the road you take to get there. The road you take is what you’ll look back on and call your life.” ~ Tim Wiley
#mindfulness

[Paul McKellar @mckellar_paul]

Just spreading #pku awareness 😉

[marie ward @MarieWard123]

@Carolin93205471 So true there is not enough support for these kids to reach there potential more needed. X

[marie ward @MarieWard123]

Amazing show. X

[Motorpoint Arena Nottingham @nottinghamarena]

Wow - it was a sell-out show last night for @george_ezra!

📸 Dom Henry

[NSPKU @NSPKU]

#PKU services from the NHS

Diet is the only treatment currently available in the UK
SO: investment in dietitians is a MUST

Education for families & individuals w #pku is the only way to ensure safe outcomes
#lowprotein #phenylketonuria #imddietitians

[BCH Metabolics @MetabolicsBCH]

M&S Hot Cross Buns: 1 x 70g bun = 2g protein (2 PKU exchanges)

[BCH Metabolics @MetabolicsBCH]

Veggie Colin Caterpillar Butterflies - low protein/exchange free - always a lovely Sunday treat

[Everyday Mindfulness @MindfulEveryday]

Be original by being yourself.
#mindfulness

[Kate Learoyd @PKUFamily]

Scientist Robert Guthrie invented #Pku screening. He wanted to save children. When a private company tried to profiteer from his invention, the US Senate Chair declared it was “immoral and evil” to make monopoly profits from children’s health and revoked their contract.

[marie ward @MarieWard123]

Amazing work has always @AnnePaddy10.👍👏

[NSPKU @NSPKU]

@MetabolicsBCH @macdonj Thank you @AnnePaddy10 for bringing this data to publication
👍👍👍

[NSPKU @NSPKU]

Petition · BioMarin Pharmaceutical: Make Kuvan affordable to the NHS allowing people with PKU to lead healthy lives · https://t.co/slVivhZQvz https://t.co/cosOcAQoOR

[NSPKU @NSPKU]

#pku community: Sunday 30th June 2019
This will be the end of International PKU week:
#Stepup4pku or #Stepforward4pku

Organised walks around the UK to celebrate our community, raise funds, raise awareness (bring your entire extended family or all your friends!).
😎😎😎🤑🤑🤑

[marie ward @MarieWard123]

@thismorning Is this for real. No way we all need a bit of fun and laughter to keep smile through this rough world. #worldsgonemad.