@[email protected]

medical mystery

[@[email protected] @Miaoue1]

@plarp_his_bees @ballyerrat @iamlindasarah @floornostroszek @MariThomas88 @whatcolorbird @OdyO11 @possumpraxis @LarkBrains @dreamsofskies @ReverendAliks @Ian_McMian @vvictorman_uel @SingsongRaptor @pennywhispered @PianoGrump @dream__thieves @disabledtrans @jmatwood @mssinenomine although we've interacted very little (i'm not the most social of social media users), i think the same of you. thank you for mentioning me 💜

[nightmargin @NightMargin]

it's pride month which means i get to post this again

[@[email protected] @Miaoue1]

@autismsupsoc lol see you all at the yippee convention ig

[@[email protected] @Miaoue1]

@lisa_sinatra @Dysautonomia @TeamFightPOTS @DysSupport @dys_project i have taken it previously and my experience was mixed. modafinil significantly reduced my brain fog, made me alert and able to function in the morning! unfortunately, it also raised my heart rate a bit, which i def didn't need. and i had a hard time retaining any fluids.

[@[email protected] @Miaoue1]

@AuDHDtherapist

[Patients with Power @PtsWithPower]

Physical causes should be ruled out FIRST, before making a psych diagnosis. Skipping this step ruins lives. It happened to me too, though, and it happened to my Dad.
Did you get a psych diagnosis, then find out your mental health symptoms had a physical cause?
#neisvoid

[@[email protected] @Miaoue1]

@bethfelkerjones yep. and that, in turn, meant i should be a bit nicer to him. because it was unkind of me to be so rude and standoffish to someone who really liked me?

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

It's not the patient's duty to convince the healthcare professional that they're ill. Once there's reliance on 'convincing' for a health condition to be acknowledged, inequalities follow. Because the ability and capacity to convince are heavily reliant on pre-existing privilege.

[@[email protected] @Miaoue1]

@paxopalotls @AutSciPerson you are not immigrating if you are a citizen already

[Mallory Eeeeeeee @primnimproper_]

Doctors: "Don't Google your symptoms."

Doctors: "Never heard of anyone feeling like that ever before. Not a thing. Lose weight."

Google: "Here are 85,000 peer-reviewed studies on exactly what you're experiencing. Here's the treatment protocol."

[Sarah Cohen Solomon, MD @TheBendyPedMD]

Many people asking recently "why is an #hEDS diagnosis important if there's nothing I can do about it?" There's a simple answer and a complex one. Simply: because that's not TRUE - there's LOADS we can do about it. A brief 🧵

[@[email protected] @Miaoue1]

@MyNDAdventures i like when there are multiple perspectives contained in a story that oppose each other but are equally valid. i don't like when the story seems like it has a certain takeaway but it's buried in vagueness, like the author didn't want to spell it out for some reason....

[@[email protected] @Miaoue1]

@MyNDAdventures i'm a (totally amateur) writer who sometimes writes fiction with multiple interpretations like this, and it's hard to explain what it is that makes it frustrating to read sometimes and not other times.

[@[email protected] @Miaoue1]

@1Schoolhouse that reminds me a bit of silent disco - a dance club sort of event but everyone is wearing headphones and dancing in an otherwise silent room. (depending on the variation, either one or more dj(s) broadcast music to all headsets or everyone brings their own playlist)

[@[email protected] @Miaoue1]

@strawberryautie it's not specifically important to me to have couple-friends, more like my partner is amazing at making really cool friends and i'm not that good at it. so i (adorably and not creepily at all) wormed my way into some of his friendships. so now we have de facto couple-friends.

[Isabel Mya @isabelosophy]

did anyone else who got bullied as a kid constantly hear the “the bullies are just jealous” line and KNOW that that wasn’t the reason but you didn’t know what the reason was and then as an adult you started looking up autism&adhd traits and now you feel vindicated because you

[@[email protected] @Miaoue1]

@sweetsare @ChrisAlvino @hannaweeen oh absolutely, it's horrible everywhere and to almost everyone except a certain type of social climber. i just think we like to kid ourselves in tech that we have less of it than other industries, or are above it all, and we totally don't/aren't.

[@[email protected] @Miaoue1]

@ChrisAlvino @hannaweeen i wish we could pull apart the stereotype of tech being adhd/autistic friendly a bit. in terms of the nature of the work itself, yes, it's very suited to how my brain works. and some companies offer perks that benefit us hugely. but it's still a corporate environment culturally.

[@[email protected] @Miaoue1]

@ChrisAlvino @hannaweeen similar experience here. even when i was healthy enough to work the hours, and not burnt out, which was about half my 10 year career, i lost several jobs due to workplace politics i couldn't understand.