Mithra_Fights_SMA

I am Mithra (2 years old) diagnosed with SMA Type 2, a rare genetic disease.

[Mithra_Fights_SMA @MithraSma]

Thank you @VanathiBJP ma'am for your continuous support. 🙏🏻
We hope to get a positive reply, at earliest from higher officials for our 2 year baby #Mithra. 🙏🏻

@MithraSma
#PrayForBabyMithra
#BlessBabyMithra
#MithraFightsSMA
#Mithra_Fights_SMA

[Vanathi Srinivasan @VanathiBJP]

சிறுமி மித்ராவிற்கான மருத்துவ சிகிச்சை மருந்துக்கான இறக்குமதி வரி நீக்கத்திற்காக இன்று காலை மத்திய நிதியமைச்சர் திருமதி @nsitharaman அவர்களுக்கு தொலைபேசி வாயிலாக பேசினேன் .
உதவுவதாக தாயுள்ளத்துடன் பரிவோடு கூறியுள்ளார்கள் .
@BJP4TamilNadu

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@curesmaindia wishes every1 a happy Republic day 2026 2day!. As v celebrate d values of equality, dignity n hope enshrined in ur Constitution, v stand in solidarity wid children and adults living wid Spinal Muscular Atrophy (SMA) n their families @MoHFW_INDIA @CDSCO_INDIA_INF

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA #SMAWarrior #DreamBig

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Akriti's journey with SMA Type 1 is truly inspiring! Diagnosed at 4 months,started Risdiplam at 7 months now sits without support, paints, sings rhymes & dreams big! Let's keep spreading awareness and hope! 💕 #CureSMAIndia #SMAAwareness #Risdiplam #HopeInMedicine #RareButStrong

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Grateful n honoured 2 have Shri Avinash Mohanty, CP Cyberabad @CPCyberabad unveiling d #RunForSMA poster & T-shirts n supporting #SpinalMuscularAtroph awareness. Many tks 2 Dr.G.Bhupal, Joint CP, Mr. Naved Alam Khan, CEO @SCSC_Cyberabad, Dr. Vipin Das, Co-lead, Health Forum SCSC,

[செந்தமிழன் சீமான் @Seeman4TN]

மீண்டும் இன்று ( 18.03.2025 ) மூன்று இராமேஸ்வரம் மீனவர்கள் இலங்கை கடற்படையால் கைது..!

வெறும் கண்டனங்களால் காயங்கள் ஆறப்போவதுமில்லை..!
வெற்று கடிதங்களால் கைது செய்யப்படுவது நிற்கப்போவதுமில்லை..!

கடலில் இறங்கும் நம் மீனவச்சொந்தங்களைக் காக்க..!
களத்தில் இறங்க வாருங்கள்... தாய்த்தமிழ் உறவுகளே..!

இலங்கைச் சிங்கள இனவெறிக் கடற்படையால் தமிழ் மீனவர்கள் தொடர்ச்சியாகக் கைது செய்து சிறைப்படுத்தப்படுவதைத் தடுக்காமலும்,

தமிழர்களுக்குச் சொந்தமான கச்சத்தீவை மீட்டு நிலைத்த தீர்வினைக் காணாமலும்

தமிழர்களைத் தொடர்ந்து வஞ்சித்து வரும்,

இந்திய ஒன்றியத்தை ஆளும் பாஜக அரசையும்,
தமிழ்நாட்டை ஆளும் திமுக அரசையும் கண்டித்து...

22.03.2025 சனிக்கிழமை அன்று இராமேசுவரம் - தங்கச்சிமடம், வலசை பேருந்து நிறுத்தம் அருகில்

நாம் தமிழர் கட்சி - மீனவர் பாசறை முன்னெடுக்கும்
மாபெரும் கண்டன ஆர்ப்பாட்டத்தில்
பெருந்திரளாகப் பங்கேற்போம்!

மீனவச்சொந்தங்களைக் காக்க
மானத்தமிழரெல்லாம் மறவாமல் கூடுவோம்..!

நாம் தமிழர்!

[Alpana Sharma @alpanaS16]

Heartfelt gratitude 2 anonymous donar @vinodkumarmenon & @mid_day 4 coverin d plight of SMA patient We @curesmaindia r requestin 4 Govt support @CMOMaharashtra @Devendra_Office @Dev_Fadnavis @mieknathshinde @DrSEShinde please helpus save Akriti’s life 🙏🏻 https://t.co/HcpVZpFRtm

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 28: Let's continue the discussion on disease modifying drugs for SMA. Today's #factsheet focuses on #Zolgensma - gene therapy, explained in patient-friendly terms. While it's the most expensive option and FDA-approved only for those under 2 years old, this one-time treatment can lead to significant milestones when administered early. Let's keep learning together! 💪 #SMA #GeneTherapy #MondayMotivation #SMAawareness
@NovartisGene

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAjourney : Today, we feature the remarkable progress of Mitra, a brave 4-year-old girl from Tamil Nadu with #SMA Type 3. Mitra's journey includes #Zolgensma gene therapy and a commitment to regular physiotherapy and aquatic therapy. Her parents also share valuable home-care tips to support others facing similar challenges. Your strength inspires us, Mitra! 👏👏 #SMAAwareness #BattleAgainstSMA #Inspiration #MilestoneAchievement
@mkstalin

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Sharing the poignant #SMAjourney of 8.5-year-old Omprakash ,a Type 2 warrior from Tamilnadu. His battle highlights the urgent need for life-saving medication. Let's hope Omprakash gains access to the medicine he requires soon. 🙏 #SMAAwareness #MedicalAccess
#Risdiplam #Spinraza
@rocheindia
@biogen

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 3: Today we are posting a few rare SMA types🧬 .This condition affects many lives, and awareness is crucial for support and understanding. Let's come together to shed light on these lesser-known types. Join us in raising #SMAawareness .
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Witness the extraordinary journey of dear #SMAwarrior, Aditya, as he bravely battles #SMA 💪 . Despite the challenges, his strength, willpower, and belief in a brighter future are awe-inspiring! 🌈 Join us on this inspiring path & spread #SMAAwareness !
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

🚨 Urgent Appeal 🚨
@Sarmisthaprita1 desperately needs #Risdiplam to halt #SMA progression. After tirelessly fundraising for a year, she has exhausted her resources.
Requesting support from the government to continue her treatment #BattleAgainstSMA #SMAwarrior #HealthForAll

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

She is one of the most active #SMArtwarrior who had effectively worked in raising awareness about #SMA and the urgency to make the medicines available for all #SMAwarriors in India.
@pradyutbordoloi @keshab_mahanta @himantabiswa
@AmitabhBora7 @robin_ips
@rocheindia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We thank the Chief guest Dr Bheerappa, @icmr_nims, Dr Ashwin Dalal, @DBT_CDFD, Dr Radha Rama Devi, Sandor Life sciences, Prof T Usha Rani, Nilofer Hospital, Dr Ramesh Konanki, @Rainbowhospitas , Dr Amaresh Singh, DPH, Dr Pari Plavi, Genome Foundation, Dr Suryaprabha, NIMS 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We thank the Director Dr Vijayalakshmi & her team from Institute of Genetics and hospital for genetic diseases along with @curesmaindia & @CamomileHealth for organising the program ‘The Need of the hour and way forward to strengthen the Rare Disease ecosystem’.
#RareDiseaseDay

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude to all the guests for addressing the various issues related to rare diseases. They interacted with the kids suffering from SMA and other rare diseases and understood the plight of the kids. Thanks once again from the bottom of our hearts 🙏
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many thanks & hearty congratulations to the author Ms @nileenaatholi @mathrubhumi
for this wonderful series of articles 💐. We hope this award will once again remind everyone of the issues we are facing on a daily basis & also raise the awareness about this gruesome disease!

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@karandi65 @IITKanpur @reliancegroup @paniitindia Congrats n tks @IITKanpur 4 taking interest in much neglected hereditary diseases n yr r&d in #genetherapy. 1st #genetherapy is developed n approved by US FDA 4 #spinalmuscularatrophy by @Novartis. V hope there will b more options n soluns 4 neglected diseases in future 🤞🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Thanks so much @doctorsoumya ma'am 4 sparing time 2 meet @curesmaindia TN state coordinator Ms.Manopriya 2day.
V r very happy 2 present to u @curesmaindia Calendar made by paintings of our #SMArtWarriors battling #spinalmuscularatrophy. Thanks 4 yr compassion n support 🙏.

[Alpana Sharma @alpanaS16]

Thanks @news24tvchannel @sandeep_news24 V @curesmaindia lost more than30 life in last 6 month while waitin 4 d Govt support, lifesaving medicine #Risdiplam #zolgensma can save lives. we helpless parent hav to watch our child dyin slow death in front of our eye #BattleAgainstSMA