MND Elite

Fundraising on behalf of the MND Association for their Children and Young People & Quality of Life Grants - Living with MND Dec 17th 2019(all views are my own)

[MND Elite @MndElite]

I simply don't have time to die, to busy having a laugh, I'll have this photo recreated when I'm in a wheelchair on a ventilator, i'll still be saying the same, I'm getting measured for a wheelchair in a few weeks, only for occasional usage I avoid crisis point by being proactive

[MND Elite @MndElite]

@MndNavigate

[MND Elite @MndElite]

Here I am, putting the work in, my chiropractor started out as just that, now he’s become a best friend he’s been on this epic journey from the very beginning, I find traction difficult laying down now, this not only relives tension in my neck but helps me engage my core also

[MND Elite @MndElite]

@MndNavigate

[MND Elite @MndElite]

I don’t really think this needs any words ❤️ “Daddy close your eyes, now open” ❤️

[MND Elite @MndElite]

Stop thinking..start acting, forget Mars and landing on the moon...focus on what we need here on Earth...A cure

[Andrew Heath-Richardson JP @HeathRic1]

So angry @sajidjavid @RishiSunak @BorisJohnson
You have taken Hope away!
Funding over a few years will vastly outweigh any long term needs and will give suffers and families their lives back and hope

[MND Elite @MndElite]

Focus on what is important, stop standing still and shift momentum @MndNavigate

[David Setters @dsetters]

Thanks, Mick @onein300 @AberdareNic @ChrisJohnsonQPM @MummywithM & many other @MNDPatients aren't giving up either. @sajidjavid @KwasiKwarteng are now aware of @mndresearch underfunding & targeting issue. They've acknowledged it & are hopefully seeking solutions. #United2EndMND

[David Setters @dsetters]

Thanks, Mick @onein300 @AberdareNic @ChrisJohnsonQPM @MummywithM & many other @MNDPatients aren't giving up either. @sajidjavid @KwasiKwarteng are now aware of @mndresearch underfunding & targeting issue. They've acknowledged it & are hopefully seeking solutions. #United2EndMND

[MND Elite @MndElite]

@AJMHealthcare forgot to add you..rolling rolling rolling

[MND Elite @MndElite]

@MndElite @MndNavigate @mndassoc @ArthurRankHouse @CharlotteHawkns @Rob7Burrow @DoddieWeir5 In preparation for the might challenge in 2 weeks. This was my first time in the chair and racked up 2 miles @MndQuirk

[MND Elite @MndElite]

@MndElite @MndNavigate @mndassoc @ArthurRankHouse @CharlotteHawkns @Rob7Burrow @DoddieWeir5 In preparation for the might challenge in 2 weeks. This was my first time in the chair and racked up 2 miles @MndQuirk

[MND Elite @MndElite]

smashing it 💙💙

[🏔️ Paul @ Munros 4 MND 🏔️ @Munros4MND]

We've just hit £2⃣9⃣,0⃣0⃣0⃣ 🤩 @MNDoddie5

Could we reach £30k by the time we finish?! 😍

#DoingItForDad #TacklingMND

https://t.co/3jPUD1xo56

[MND Elite @MndElite]

@forwards500 @mndassoc @MndQuirk Champions all the way

[MND Elite @MndElite]

Proud of my two teams supporting me demonstrate that life does not end once diagnosed with MND, Coe October I'll be two months away from my prognosis, Bulbar onset MND...when you're smiling...when you're smiling..Stay Strong..Stay Elite

[MND Navigate @MndNavigate]

7 good mates in good health - 1 not in such good health that's me MND = 8. 2 in each team - will complete a half marathon between them = 6.5 miles each - not by walking - not by running - but in wheelchairs - this October raising funds for @ArthurRankHouse @CambsMNDBranch

[MND Navigate @MndNavigate]

7 good mates in good health - 1 not in such good health that's me MND = 8. 2 in each team - will complete a half marathon between them = 6.5 miles each - not by walking - not by running - but in wheelchairs - this October raising funds for @ArthurRankHouse @CambsMNDBranch

[MND Elite @MndElite]

@BurrowSeven @RLBarrieMc10 @Rob7Burrow Have a good one Happy birthday👍

[MND Elite @MndElite]

If you get the chance please follow my other MND page @MndNavigate I’ve just recently been interviewed by @ArthurRankHouse about my journey with MND @NickGoldup1 @StephSteward__ @Rob7Burrow Navigate your journey with courage and heart

[MND Elite @MndElite]

@Munros4MND Cheers team

[MND Elite @MndElite]

Happy 6th wedding anniversary, I wouldn’t want anyone else in my corner..Through sickness and in health... 💙

[MND Elite @MndElite]

Brilliant showcase and honoured to have been invited..Stay Strong..Stay Elite @MndNavigate @StephSteward__ 💙

[Charlotte Hawkins @CharlotteHawkns]

Great to be involved in the @mndassoc Showcase today - I interviewed @NickGoldup1 about the care & support MND patients are being given, plus how technology is helping. Just watching @theJeremyVine interview @DrBrianDickie about the latest research. Fantastic work all 👏👏💙🧡

[MND Elite @MndElite]

@CharlotteHawkns @mndassoc @NickGoldup1 @theJeremyVine @DrBrianDickie It was great to be invited and a pleasure to hear more about what is happening towards research and technology @MndNavigate @StephSteward__ stay strong...stay Elite 💙

[MND Elite @MndElite]

Amazing work

[🏔️ Paul @ Munros 4 MND 🏔️ @Munros4MND]

Well isn't this just incredible! 🤩
£1020 to @MNDoddie5 😍

Massive thanks to everyone who bought a bottle and an even bigger thanks to the absolutely amazing @ElecSpiritCo for this incredibly generous offer 🥰

Safe to say I'll be raising a glass in celebration tonight! 🍸

[MND Elite @MndElite]

@Rob7Burrow 💙

[Sharon Allen @sharonallenarhc]

Thank you for sharing your story so eloquently and positively Lee, what an inspiring and moving read @MdnNavigate @MndElite
Please share this positive message of hope and ambition and please support Lee's fundraising

[MND Elite @MndElite]

@sharonallenarhc You are more than welcome, the family drew great inspiration from the amount of views it got and the messages have been lovely, from the start as a family we did not want sympathy just empathy and understanding and that is what we got, thank you for the oppurtunity.