MND Navigate

Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own

[MND Navigate @MndNavigate]

You may remember I shared my story with the wonderful @ArthurRankHouse last year, we’ve had conversations and I’m pleased to say they wish to interview me a year on https://t.co/Cuyo0V7y8d

[MND Navigate @MndNavigate]

It’s with deep sadness that our MND warrior Lee who founded @MndNavigate and @MndElite passed away on the 25th May. We are all still heartbroken and our children and me (Tracey his wife) miss him so much. We will keep you legacy alive.
#fuckmnd !!

[MND Navigate @MndNavigate]

@MndElite @sharonallenarhc @ArthurRankHouse @CharlotteHawkns

[MND Navigate @MndNavigate]

Maybe

[MND Navigate @MndNavigate]

I’m still in the universe

[MND Navigate @MndNavigate]

You are the only leader I ever wanted me love

[MND Navigate @MndNavigate]

@ArthurRankHouse

[MND Navigate @MndNavigate]

I last week called a meeting with my health care team and family that they are to action my end of life plan after my charity ball I have navigated my journey with courage and heart and there will be another meeting before to ensure I’m sure @ArthurRankHouse

[MND Navigate @MndNavigate]

I’m developing that over I’ve been declined access the living well centre the hospice is like family @ArthurRankHouse @sharonallenarhc @DMTalbot

[MND Navigate @MndNavigate]

@ArthurRankHouse do you have any volunteer work that I could put my skill set into use?

[MND Navigate @MndNavigate]

@NRSHealthcare have left me distraught gantry hoist was meant to be delivered they said it would be delivered today and not one ounce of empathy has been given and their depot is literally 30 minutes away

[MND Navigate @MndNavigate]

I am so pleased to announce that in June of next year my new event AN EVENING WITH LEE AND HIS MND WARRIOR FRIENDS more details in the new year @ArthurRankHouse @RoyalPapworth

[MND Navigate @MndNavigate]

May 2021 well into the MND journey ⁦@ArthurRankHouse⁩

[MND Navigate @MndNavigate]

I don’t have a huge following but o my days you lot are amazing thank you for all your support

[MND Navigate @MndNavigate]

My health has taken a huge decline these last few months where I’ve had the belief I have 3 years I believe I will be lucky to see next Christmas it’s a tough shout but it’s the reality of life 🙏

[MND Navigate @MndNavigate]

I’m sleeping rough on the streets for a night to raise funds for our local food bank with my team @ArthurRankHouse

[MND Navigate @MndNavigate]

No words every Christmas