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Moebius Matters
@MoebiusMatters
We are a newsletter by @ManyfacesofMS, promoting awareness of
#MoebiusSyndrome
and its community and amplifying the
#MoebiusVoice
.
Joined June 2015
161
Following
54
Followers
72
Posts
Pinned Tweet
Moebius Matters
@MoebiusMatters
over 10 years ago
#MoebiusSyndrome
Awareness Day is tomorrow! How are you spreading
#MoebiusAwareness
?
#MSAD2016
MoebiusMatters
retweeted
Rare Disease Day
@rarediseaseday
over 10 years ago
29 February: A rare day for Rare Disease Day. Join us in making the voice of rare diseases heard today! https://t.co/pm47VOMsqX
MoebiusMatters
retweeted
Moebius Syndrome
@Moebiusireland
over 10 years ago
#msad
Bracken O' Reilly family getogether to raise awareness for Moebius Syndrome Ireland🍀
MoebiusMatters
retweeted
Emilee Neagle
@emileeneagle
over 10 years ago
#MSAD2016
was a success! We definitely helped spread the word about Moebius Syndrome 💜❤️
#MoebiusSyndrome
Who to follow
ManyFacesofMoebius
@team_moebius
Mission Statement To create a better tomorrow for ourselves and our children through education and public awareness!
Family Voices of CA
@FamilyVoicesCA
A statewide collaborative of parent-run centers working to ensure quality health care for children and youth with special health care needs (CYSHCN)
PowerLifter
@micchellee21
🥩 🍯🏋🏽♀️☀️
MoebiusMatters
retweeted
Dr. Panossian
@DrPanossian
over 10 years ago
Happy
#MSAD2016
(Moebius Syndrome Awareness Day)! 💜 Learn all about
#MoebiusSyndrome
at: https://t.co/hjnAPxySoL
MoebiusMatters
retweeted
Facial Palsy UK
@facialpalsyuk
over 10 years ago
Today is
#Moebiussyndrome
Awareness Day
#MSAD2016
please find out more https://t.co/WLao332flV and wear purple today to show support!
MoebiusMatters
retweeted
Eliza Jane Tucker
@misselizajane77
over 10 years ago
#MoebiusAwareness
I was born with it and today we celebrate inclusiveness and non judgementalness.
MoebiusMatters
retweeted
MoebiusSyndromeFdn
@MoebiusSyndrome
over 10 years ago
Have
#Moebiussyndrome
#MoebiusAwareness
Day artwork and photos? Post with hashtags and we might share it!
MoebiusMatters
retweeted
Kelsey.
@Kferr90
over 10 years ago
Moebius Syndrome Awareness Day is tomorrow! Please RT and help spread
#MoebiusAwareness
!
#MSAD2016
#moebiussyndrome
https://t.co/Bnuc2UXFwO
MoebiusMatters
retweeted
MoebiusSyndromeFdn
@MoebiusSyndrome
over 10 years ago
#Moebiussyndrome
awareness day is tomorrow!
#moebiusawareness
#rarefisease
#craniofacial
#support
https://t.co/4jerko16Kt
MoebiusMatters
retweeted
Ben Myers 🦖
@BenDMyers
over 10 years ago
Tomorrow is
#MoebiusSyndrome
Awareness Day (
#MSAD2016
)! Wear purple to spread
#MoebiusAwareness
and learn more here: https://t.co/YVl7fWXsvx
MoebiusMatters
retweeted
Rare Disease Day US
@RareDayUS
almost 11 years ago
#fridayfeeling
extremely excited for
#RareDiseaseDay
! Are you? Retweet to let us know!
#100daycountdown
MoebiusMatters
retweeted
MoebiusSyndromeFdn
@MoebiusSyndrome
almost 11 years ago
Thinking about the Moebius Syndrome Foundation Conference?
#MSFCon16
is the official hashtag! Tweet, post & share!
MoebiusMatters
retweeted
GoodieSandwich ^0^
@SGoodwick
almost 11 years ago
#JeSuisParisienne
@SyndromeMoebius
@MoebiusMatters
@ManyfacesofMS
@MoebiusSyndrome
Moebius Matters
@MoebiusMatters
almost 11 years ago
Tomorrow is the first annual
#MoebiusSyndrome
Angels Memorial Day. | https://t.co/DkGxVpt6E6
MoebiusMatters
retweeted
ManyFacesofMoebius
@team_moebius
almost 11 years ago
Check out the new website, which is currently under construction: http://t.co/AvqVCfELaL
MoebiusMatters
retweeted
Dr. Panossian
@DrPanossian
about 11 years ago
@MoebiusMatters
We are hosting a
#FacialParalysis
Conference on Nov 7 in Los Angeles. http://t.co/IWd3F96yo8 Info:
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