Blake Henderson

former library director retired due to #Lyme #tickborne #Tularemia #Bartonella #encephalitis #ME/CFS #PEM

[Blake Henderson @Ninablake6789]

@Naomi_D_Harvey @Ramyisback @NeleHelena You should find a knowledgeable doctor & get antibiotics. Testing is unreliable thru quest & labcorp. Best test is Igenex. More affordable is Vibrant. Ticks carry multiple pathogens besides Lyme.

[Robert (Durden) @realrobdurden]

America has gotten to that last part of Monopoly where the game is effectively over and we’re all just watching the Elites suck up all the money, nobody else is allowed to really keep playing the game & we’re all getting more pissed by the minute

Flip the damn board over already

[Briana Mills, LMFT ♿️🏳️‍🌈🍉 @theBrianaMills]

People vehemently believe that there are safety nets in place if you become disabled. That no matter what, you have all your needs met. If you believe this, you’re in for a rude awakening if you ever become disabled.

[Blake Henderson @Ninablake6789]

@drsanjaygupta I got migraines from neurological issues from Bartonella, Lyme, tularemia and reactivated EBV.
Tired of blaming the patient. My tenacity gave me answers. When doctors get stuck they blame stress. It’s more complicated

[Blake Henderson @Ninablake6789]

@JamesThrot I will tell you many many diagnostics failed me. Brain Spect scan revealed frontal lobe encephalitis. More neurologist should be using. MRI & CT scans failed me.

[Blake Henderson @Ninablake6789]

@JamesThrot I have so many women in my life who think it’s all menopause.

[Blake Henderson @Ninablake6789]

@NeurologistMom @julie_bush Absolutely

[Blake Henderson @Ninablake6789]

@fNKD_deficiency @solodoc Lyme, Bartonella & tularemia reactivated HHV6 & EBV. Tenofovir has helped w/ EBV. What helped your NK cells?

[Blake Henderson @Ninablake6789]

@JamesThrot @julie_bush Went 2 many neurologists. Many diagnostics failed me. Brain Spect scan revealed frontal lobe encephalitis. @polybioRF vagus nerve transmits pathogens from gut to brain. Stacked pathogens create neurological inflammation.

[James Throt MBBS, MD, PhD, FRCPath @JamesThrot]

As a neurologist, it is now patently clear to me that the vast majority of people on the planet are suffering from neuroinflammation or brain damage (likely both)

The way people speak & behave has changed. Markedly so.

Whether irl, or via messaging/social media. It’s noticeable

[Tracey Burgess @TraceyABurgess]

Dr. Spier, you have done a fantastic job in showing anyone and everyone, the sheer level of ignorance that people with extremely debilitating chronic illnesses, like ME, Long Covid have to face on a regular basis. Really useful example.
Yes, it's really is this bad. 🤦‍♀️

[Dr Rae Duncan @Sunny_Rae1]

@hannahspierMD 1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/

[Adam @ABrokenBattery]

Highlights from recent German TV that looked at brain retraining for #MECFS.

A doctor with #MECFS says the programme made her feel she just had to keep trying harder. She eventually suffered a severe crash.

She is “angry” and says that these programmes are endangering people.

[LUCIΞN | DARKTIMES @LucienDorman]

Hi Hannah,

Your comment is not just wrong. It is deeply disrespectful and genuinely inhumane.

Please, before speaking with such certainty, look at the recent medical literature on ME/CFS. This disease is not psychological. It is a serious, multi-system biological illness involving the immune system, nervous system, autonomic function, metabolism, circulation, and energy production.

I’m university educated. I was a tech founder and CEO. I had a beautiful girlfriend, a full life, ambition, independence, and every reason to want to be out in the world.

I snowboarded, fly-fished, hiked, travelled the world, worked relentlessly, and lived in the mountains because being outdoors was one of the great loves of my life. From my bedroom window, I can still see the peaks I would give almost anything to hike again.

I would cut off my arms and legs if it meant having the physical capacity to live normally again.

I now have very severe ME/CFS with extreme physical, cognitive, and sensory disability.

I lost my work. I lost my partner of seven years. I lost my ability to have sex. My ability to speak is greatly diminished. I cannot tolerate light, sound, television, podcasts, reading, touch, human presence, or even emotional expression. Crying, laughing, or pushing slightly too hard can leave me with severe physical symptom exacerbation for days. Sometimes, if I push too far, the worsening is permanent.

This is not anxiety. This is not deconditioning. This is not a lack of motivation. This is not a belief system.

Yes, the CNS and autonomic nervous system are profoundly dysfunctional, but that is only part of the picture. The depth of biological disruption in ME/CFS is staggering.

The suffering is almost impossible to describe. It is not tiredness. It is not burnout. It is a state of being trapped inside a body that punishes basic human activity.

Words like yours are not harmless. They contribute to the stigma that leaves severely ill people dismissed, neglected, and abandoned while they are already living through something close to hell.

Please open your eyes. Read the science. Listen to patients. This disease is real, and the people suffering from it deserve basic human respect.

The opinion you have is outdated and lacking any serious scientific basis.

Please, just for a moment, imagine that you might be wrong.

Imagine that the people living with this disease are not lazy, anxious, deconditioned, or mistaken about their own bodies. Imagine that they are describing a real biological illness that medicine has failed to properly understand for decades.

Because that is the reality.

[Michael Moran | APC Injury @internetuserf12]

As an acupuncturist, I “brain retrain” people for a living. I modulate vagal pathways, opioid systems, and cortical networks in patients with Long Covid all day, every day.

If Long Covid were simply a problem of nervous system dysregulation, I would be curing it. I’m not.

Long Covid is a complex lesion: a torus of immune, neurological, vascular, and metabolic dysfunction initiated by SARS-CoV-2 - not disordered thought.

As with any lesion, you cannot convince the body it is not impaled.

[Blake Henderson @Ninablake6789]

@CureLongCovid I have not got Covid because I am vigilant. I have a nephew & dear friend who have not taken any precautions and have not gotten sick even though both of their partners have gotten covid.

[Julia Marie @julia_doubleday]

A sample comment of someone who AGREED with the @WIRED piece on long covid which promoted “brain retraining” if you’re still wondering why it’s damaging

[Blake Henderson @Ninablake6789]

@livewithmecfs Gorgeous! B12? Glutathione?

[NotOstriching @NotOstriching]

Hey @WIRED, Even @PsychToday is practicing more honest journalism than you by acknowledging that LC isn’t psychosomatic. They report that it is biologically based and a leading biomedical explanation is viral persistence in reservoirs like HIV. https://t.co/tRuMea1R2T

[npi @Illusionist999]

@WIRED A little bit too late for this “psychological” narrative.

The actual medical science is discovering biological mechanisms behind Long Covid.

https://t.co/3bErHYDkJU