Nisreen Rumman

[Nisreen Rumman @NisreenRumman]

@JaneSLucas1 Thank you so much Jane. Nothing would have been achieved without your guidance and support.

[Nisreen Rumman @NisreenRumman]

@horaniLab Thank you Amjad for this great editorial. Indeed it has been a tremendous amount of work that would not have been possible without the support of the amazing PCD community especially the teams at Southampton and UCL.

[Nisreen Rumman @NisreenRumman]

@JaneSLucas1 @UoS_Medicine @BIUSoton @MahmoudFassad @beatpcd @_Claire_Jackson @jamesjt89 @Jannycoles Without you none of this would have been possible. Thank you.

[Nisreen Rumman @NisreenRumman]

@JaneSLucas1 It was a pleasure having you here Jane. Wow it’s been four years already!

[Prof Jane Lucas 💙 @JaneSLucas1]

Excellent talk from @LucyD28 @PCD_UK Lucy Dixon. The importance of patient organisations to empower and inform patients. Importance of research to find a cure, answer questions, improve prognosis @beatpcd @ErnLung #ERS2022

[BEAT-PCD (ERS CRC) @beatpcd]

PCD diagnostic testing session is kicked off by Noelia Baz Redon presenting Immuno Fluorescence for #PCD testing. #ERS2022

[BEAT-PCD (ERS CRC) @beatpcd]

We are starting the @ErnLung @beatpcd annual meeting after an introduction by @ClaudiaKuehni and Heymut Omran with patients perspective from Spain @dcpes_org and the UK @PCD_UK

[PCD Support UK @PCD_UK]

Great to hear Trini's story of how her two children were diagnosed with PCD @beatpcd #ERS2022 #cilia #PatientAdvocacy #RareDisease

[BEAT-PCD (ERS CRC) @beatpcd]

We continue with Jobst Röhmel talking about LCI in #PCD #ERS2022

[Yin Ting Lam @YinTing_Lam]

@_Claire_Jackson with difficult case at #PCD training school
@beatpcd

[BEAT-PCD (ERS CRC) @beatpcd]

Most awaited coffee break is a nice team to finally meet in person after years online. Many smiles

[Amelia Shoemark @Shoemelia]

Noelia Baz Redon presents the latest on immunofluorescence in PCD diagnosis. This field has moved rapidly since the last diagnostic guideline and allows more diagnosis. Time to update!

[Yin Ting Lam @YinTing_Lam]

We are here! #PCD day today!
@beatpcd @mgoutaki

[Prof Jane Lucas 💙 @JaneSLucas1]

Great talk fromNoelia Baz Redon ⁦@beatpcd⁩ training school. IF is helpful to diagnose #PCD especially where TEM is normal SPEF2 and DNAH11. #ERS2022

[Yin Ting Lam @YinTing_Lam]

Prof Claire Hogg on #PCD research update @beatpcd

[Prof Jane Lucas 💙 @JaneSLucas1]

Nutria Camats explains the genetic processes to diagnose #PCD. Gene panels, WES, WGS have different roles. Segregation and pathogenicity classification importance. ⁦@beatpcd⁩ Training school #ers2022

[BEAT-PCD (ERS CRC) @beatpcd]

We are here!

[BEAT-PCD (ERS CRC) @beatpcd]

Claire Hogg is now presenting an update on research: what’s new in #PCD ? #ERS2022

[Prof Jane Lucas 💙 @JaneSLucas1]

Jobst Rohmel… LCI is feasible in all age groups and is more sensitive than spirometry in #PCD. More data needed to understand use in clinical trials. ⁦@beatpcd⁩ ⁦@ErnLung⁩ training school #ERS2022