OneOffDave

Bi wheelchair user, legs optional. Emergency planning, disability issues and occasional silliness. He/him

[OneOffDave @OneOffDave1]

@flowergirl_lon I'd got out of hospital a week earlier after my first amputation. Only got out by the skin of my teeth as all discharges were being suspended until 5th January

[OneOffDave @OneOffDave1]

@LucyGoBag I was at school with Leigh and Jason. We're all appalled both by the original events and also by the determined efforts by all political sides to delay justice.

[OneOffDave @OneOffDave1]

@vix_the_star @royalmarsdenNHS You'd think that @royalmarsdenNHS would know better having been included in the report into hospital fires in London 15 years ago 13954_reviewoflondonhospitalfires1.pdf https://t.co/e5Ziidx8UE

[OneOffDave @OneOffDave1]

@staticnz @InvincibleWheel @TfL Thanks for getting in touch. Woodside Park to Waterloo. Came up with Northern Line to Euston, Victoria Line to Oxford Circus then Bakerloo to Waterloo. Was expecting Jubilee line to Southwark as lift out at Waterloo

[OneOffDave @OneOffDave1]

@flowergirl_lon Just had to have hard wired smoke and heat detectors put in to meet building regs and they look like this

[OneOffDave @OneOffDave1]

Having moved house, I've had to be referred to the local diabetes service by my GP as a brand new patient. They've given me an appointment in mid-November! I don't even know which type I've got as they can't decide if it's type 2 or 3c

[OneOffDave @OneOffDave1]

@InvincibleWheel @TfL Theoretically between Oxford Circus and Harrow and Wealdstone. It's transfer only at Oxford Circus but I've never tried it

[OneOffDave @OneOffDave1]

@InvincibleWheel Just looked at the @TfL Go App for a step-free route to Waterloo and it suggested the Bakerloo line! If you didn't know London, you'd be stuck

[OneOffDave @OneOffDave1]

@Emma_Lee1 @nimbusdis @ICOnews I'm not seeing anything about them being registered for special category data though which they need to be if holding any health related information

[OneOffDave @OneOffDave1]

I do wonder if @nimbusdis are appropriately registered with the @ICOnews for holding special category data.

[OneOffDave @OneOffDave1]

Been told I need bloodtests that I should have had this time last year as inpatient. Apparently results take 10-12 weeks to get back to the GP! Lab page says they have a 2 week turn round! Where are the other 8-10 weeks coming from? It's an NHS lab. Other NHS labs even faster.

[OneOffDave @OneOffDave1]

Another night ruined by my CGM erroneously reporting low blood sugar. Readings are 3-4 lower than finger prick measures. This is the third sensor in a row that's doing that.

[OneOffDave @OneOffDave1]

@LucyGoBag I'm reminded of that footage of the fire in a branch of Threshers where people ignore the fire for quite some time. Seems to be a common human trait

[OneOffDave @OneOffDave1]

They're killing us before the assisted dying bill comes in. It'll be even worse after.

[Coffee, Pugs & EHCPs @AudHDSENDmum]

A disabled man died after waiting over 34 hours for antibiotics at Bassetlaw Hospital his death was found to have been preventable

https://t.co/VRKpzBnfNO

The man, who lived in supported accommodation in Ollerton, Nottinghamshire, suffered from a rare incurable disorder called #Alexanderdisease, affecting the nervous system and causing developmental delays.

He also had communication needs and his mum stated -

I knew my son better than anyone and I was trying to help the doctors by telling them the oral antibiotic wouldn’t work and that the GP had a microbiologist’s report that said he wouldn’t respond to that drug. But they just totally dismissed me.
“Their attitude was they were the doctors and I was just his mum.

The @PHSOmbudsman investigation found he was given the correct IV medication more than a day after he arrived at hospital, and at half the dosage it should have been.
By the time a second dose was given, which was also delayed, the man had become septic and he died a week later.
The report found his disabilities meant he had difficulties communicating with staff and raising the lack of treatment…. Where was the LD nurse in all this?

Had staff at this hospital completed the mandatory Oliver McGowan training @PaulaMc007 ?
And when will staff take parent carers of disabled particularly mothers seriously? How many more disabled have to die ?

#NHS
#Disabilities
#carers
#misogyny

@martinimarie @redpepper1011 @SarahSpoorUK @keepnhshonest @KenZeroHarm @sendagenda @sheilaoliver16 @wesstreeting

[OneOffDave @OneOffDave1]

@OrMakeOne @benn_elisbenn @blue_nose_amy Or it's dry loctite!

[OneOffDave @OneOffDave1]

@blue_nose_amy @OrMakeOne Splendid

[OneOffDave @OneOffDave1]

@blue_nose_amy @OrMakeOne It needs a couple of Allen keys too. I can't remember it they're 4mm or 5mm