Ellen's Tea for M.E.

Raising awareness in #Orkney for Myalgic Encephylomyelitis 💙 #GoBlueForME #MEAwarenessHour #MEcfs #pwME Tweeting & eating cake: @ellen_forkin

[Ellen's Tea for M.E. @OrkneyTeaForME]

Sending love to you this #MEAwarenessWeek 💙🦋🌀
#MEcfs #SevereME #NeuroME #PwME #GoBlueForME @MEawarenesshour

[Ellen's Tea for M.E. @OrkneyTeaForME]

@tymestrust 💜

[Ellen's Tea for M.E. @OrkneyTeaForME]

It’s that time of year again when we think of all the children with #MyalgicEncephalomyelitis for #YoungHeartsDay 💜🕯 Sending hugs to all who needs them...

[Ellen's Tea for M.E. @OrkneyTeaForME]

Celebrating my big, small achievement this #SevereMEday. My illness has been much, much worse than it is now but days are still hard. Hugs to all those who suffer 💙 #MyalgicE #NeuroME #MEcfs #MyalgicEncephalomyelitis

[Jane Colby FRSA @JaneCColby]

Tymes Trust's Young Hearts Day 💜 coming up on 29th November. We light a candle to remember the many children suffering with ME. We post a photo of the @tymestrust candle and we invite you all to do the same. Share #youngheartsday with us. More news coming soon...
#kidswithME

[Ellen's Tea for M.E. @OrkneyTeaForME]

I’ve noticed the slow yearly decline in my health - how do we all cope with M.E. Winters? Any tips? #MyalgicE #MEcfs #Spoonie #MEAwarenessHour

[Ellen's Tea for M.E. @OrkneyTeaForME]

Aren’t birthdays wonderful, tiring things!? I had a good day yesterday, ate my weight in food treats, and I’m just a tiny, tiny bit utterly exhausted today 😂🥳😴 #MEAwarenessHour #MyalgicE #MEcfs #Spoonie

[Ellen's Tea for M.E. @OrkneyTeaForME]

@MEawarenesshour Hello 👋 How is everyone this #MEAwarenessHour? 💙

[sarah hunter @sarahhunter25]

For anyone thinking M.E is "fatigue" have a look at attached photo to see some of the symptoms us sufferers live with everyday. Many of us have other illnesses on top too, like #fibromyalgia #arthritis #depression #anxiety #meawarenesshour

[Ellen's Tea for M.E. @OrkneyTeaForME]

@TheBirdLeaf1 Well done getting them to retract them! 👏👏👏 I’m glad it’s been resolved, I was so shocked by it.

[Ellen's Tea for M.E. @OrkneyTeaForME]

Absolutely shocking. But not entirely unexpected. This really, really hurts. #MyalgicEncephalomyelitis #MyalgicE #ChronicIllness #ProudToBeME

[TheBirdLeaf @TheBirdLeaf1]

How can you comply with both the second & third statements? Do they want your official medical condition or not?

[Action for ME @actionforme]

“We are outraged that people with M.E. are being told to keep quiet about the reality of their experience."

250,000 people in the UK have #MECFS. It has life devastating effects. Minimising their condition and silencing #pwME only encourages stigma.
https://t.co/p9tBXG388F

[Phoebe Boag @PhoebsBo]

“Jobcentre chiefs have withdrawn a document on chronic illness after an outcry from disability campaigners.”

#ChronicIllness #Disability #PwME #Depression #MentalHealth #DWP #JobCentrePlus

https://t.co/nlOwBcPmtY

[Ellen's Tea for M.E. @OrkneyTeaForME]

@MEawarenesshour Oh no, I’ve just missed it again! 🤦‍♀️ Maybe next week 💙

[Tymes Trust @tymestrust]

Our Executive Director @JaneCColby is a former head teacher; education for children with ME has always been a specialty of ours. 0845 003 9002. Our knowledgable Advice Team all have personal experience of ME Here's our Good Practice Guide https://t.co/fYup3Pz4XQ
#MEawarenesshour

[Ellen's Tea for M.E. @OrkneyTeaForME]

@JaneCColby @tymestrust Just awful and really scary, I’m sorry to hear this. Hugs to you and all the amazing Tymes Trust people 💜

[Ellen's Tea for M.E. @OrkneyTeaForME]

We #MEwarriors have every right and need to hurkle-durkle and so we shall hurkle-durkle proudly. #MEcfs #PwME

[Susie Dent @susie_dent]

A reminder (because the cap fits) that hurkle-durkling, from 18th-century Scottish slang, means lying in bed, or lounging about, long after it’s time to get moving.

[Ellen's Tea for M.E. @OrkneyTeaForME]

@MarieBlackett @MEawarenesshour @tymestrust @MEAssociation @actionforme @Invest_in_ME @ellen_forkin @meactionscot @MEActNet Oh no, that’s really tough. One day hopefully folk will understand. Hugs to you 💙

[Ellen's Tea for M.E. @OrkneyTeaForME]

Hello all & wonderful #PwME! Wintertime is hard for us #MyalgicE folk, so share some rainbows, sunshine (as well as gifs of people having difficulties with umbrellas) to brighten us up! Hibernation hugs 💕🌈☔️

[Ellen's Tea for M.E. @OrkneyTeaForME]

@Cinderssoxoscar @MEAssociation @MEawarenesshour @tymestrust @actionforme @Invest_in_ME @ellen_forkin @meactionscot @MEActNet Thanks Ruth - I really love those bright wintry day too 😊

[Ellen's Tea for M.E. @OrkneyTeaForME]

@jesssweetjess @MEawarenesshour Hope it goes well, Jess, good luck 🍀 ~ Ellen x