Luna

Dislike exploitation of precarity and its enabler, incrementalism. Here mostly to read. Wearing N95s or better; using Smart Air Blast, Levoit, & Coway. #pwME

[Dan 🦠➡️🧠🔥 @Dan_Wyke]

Mark #Halloween by signing this letter to NIH Director Dr. Monica Bertagnolli, urging @NIH to fund the #MECFS Research Roadmap.

If you're in the US, sign the letter here: https://t.co/mY29EqxSK5

All other countries, sign here: https://t.co/wUvgRm9Yfa…

#FundMERoadmap 🎃

[Luna @PaperJamLuna]

@_nemesissy_ Same re: this iteration of Nvx not being gentle at all...wish I'd seen any posts at all like yours before I went Mon. so I'd had a better idea of what to expect. Side effects have been awful compared to the previous Nvx formulation. Wishing you a swift, uncomplicated recovery.🌺

[Luna @PaperJamLuna]

@erin_shhh 💀His extraordinarily singular focus is definitely something! He's missing out, and your En Vogue response is hilarious. Oh, to be a fly on the wall and see his reaction on trying to open it 🤣.

[Luna @PaperJamLuna]

@erin_shhh 🤣I can't believe leash guy didn't react with any sense of humor at all to your texts...I mean, I can, because he seems exactly like that type, but how disappointing can he be?!?

[Luna @PaperJamLuna]

@cstroeckw moderate to severe

[Luna @PaperJamLuna]

@kcdubz I'd been seeing all the OC airport fire posts in my timeline, but I hadn't realized you were somewhat local also. It's awful😢; I'd so been hoping we could avoid a major wildfire with this current heat stretch. Our sky here (about 20 min. north of RSM) is just hazy, fire gray.

[Luna @PaperJamLuna]

@Feral_Ari_ 🙌😷

[Luna @PaperJamLuna]

@Welnesschick @bbbrazil__ 🤦‍♀️It's always been the guys (friends & family) in my life who take issue with headstraps too. I don't get it, but I'm hoping you'll easily luck out w/ BreatheTeq (or some other rec'd brand) for the win with yours too. 🤞

[Luna @PaperJamLuna]

@Welnesschick @bbbrazil__ 😁👍 I also saw someone else mention the vented Drager mask, & if he's not opposed to headstraps entirely, I also find that one to be super breathable & fairly cool on hot summer days (& its fit is different/deeper than Aura in case that's an issue).

[Luna @PaperJamLuna]

@Welnesschick @bbbrazil__ Seconding (or fourthing?) BreatheTeq (prefer Vflex over Aura in N95s for fit). They have a sizing kit you can order, which makes it super easy to find the optimal fit (https://t.co/KdHsPNXVTL).

[Luna @PaperJamLuna]

@erin_shhh Welp, that's a bummer! What's your take on For All Mankind, Foundation, Invasion, and/or Silo? (I had a free 2-week trial last year, and I only made it through High Desert and Slow Horses😳.)

[Luna @PaperJamLuna]

@swanweezel Oh no 😢, so sorry to hear this. I hope you're able to get back home and start making a full recovery in no time.💙

[Luna @PaperJamLuna]

@Welnesschick 🙏💙 Thanks so much for sharing these details; I really appreciate it. It's so helpful to hear what's working for others, as I start to look into adding UVC to my home mix. A couple other mutuals also really liked ViraWarn, & I'm bummed it didn't get the necess. FDA approval.

[Luna @PaperJamLuna]

@Welnesschick 🙏Tysm for the info., and I'm super glad to hear it's proven so useful already🙌. Have you been moving that one to the room in the house where you spend the most time/share air most, or what is your strategy, please? I'm trying to figure out how to do it in a way I can afford🤔.

[Luna @PaperJamLuna]

@pzneedsrest 🫡 I found and rated as many of your CNs as I could! I'll always and forever endorse whatever content you're putting out.💙 I hope you're able to get some time to yourself to recharge, as emotionally heavy as the inquest has been in the context of everything else these days.🫂

[Luna @PaperJamLuna]

@leurah_ Not directly PT oriented, but might something like p. 5 on this doc. work to show them? https://t.co/cwFG7WNf4x and also maybe this on PEM/pacing https://t.co/c8SzUmQUsj

[Luna @PaperJamLuna]

@ClagueNjc36 I'm so sorry, & I hope she continues to receive the best care & is made as comfortable as possible in the days to come. I wish you both peace & love. Thank you for a level of empathy & compassion for ME sufferers that's rarer than one would hope in the medical profession.💙🙏

[Luna @PaperJamLuna]

@theedifyingword If you don't mind sharing, please, are you still with RTHM, or have you moved to an entirely new provider? (Background: I've been thinking about leaving (mostly due to cost & lack of proffered effective treatments) & am wondering if there is someone else available, tysm 🙏.)

[Luna @PaperJamLuna]

@erin_shhh oooof, I fully agree as to the past month feeling like six and also like I've been put through the wringer non-stop and get it about the rewatching with low to no attn. span (and ❤️ Bob's Burgers also)!