Pharmaceutical Accountability Foundation

the Pharmaceutical Accountability Foundation is the English international account of the Dutch non-profit Stichting Farma ter Verantwoording @StichtingFTV

[Stichting Farma ter Verantwoording @StichtingFTV]

.@StichtingFTV verwelkomt het advies van het @ZiNLActueel om het door #medicijnkaper @LupinGlobal 100 maal duurder gemaakte #mexiletine (Namuscla®) niet te vergoeden.

Persbericht: https://t.co/EgnjvCGgXT

[Pharmaceutical Accountability Foundation @PharmAccFound]

@StichtingFTV @LupinGlobal @Boehringer het ACP advies over het "veel te dure" #Namuscla staat nu online bij https://t.co/7aTeHRN9rZ

[Pharmaceutical Accountability Foundation @PharmAccFound]

Uitspraak rechtbank in de zaak @MENZIS vs @AstraZeneca: https://t.co/UzQNsYIPq6

[Pharmaceutical Accountability Foundation @PharmAccFound]

.@StichtingFtV feliciteert zorgverzekeraar @Menzis met een historische overwinning in evergreening zaak over Seroquel (antipsychoticum quietapine). Volgens rechtbank heeft @AstraZeneca onterecht voordeel gehad, en moet zij dit terugbetalen aan MENZIS. https://t.co/46BzIkvOLU

[Pharmaceutical Accountability Foundation @PharmAccFound]

Orphan drugs and drug pirates https://t.co/g3QdhwoCUY

[Pharmaceutical Accountability Foundation @PharmAccFound]

Orphan drugs making billions for #BigPharma. we need a different system to reward R&D for rare diseases that cannot be misused!

[The BMJ @bmj_latest]

European legislation designed to help patients with rare diseases has yielded lucrative results for the drug industry, finds a new investigation published in @bmj_latest and the Dutch Journal of Medicine https://t.co/D9YW285cmI

[Pharmaceutical Accountability Foundation @PharmAccFound]

Dutch pharma lobby tried to undermine and rewrite an official government committee report on Compulsory Licensing

[Pharmaceutical Accountability Foundation @PharmAccFound]

.@StichtingFTV is indeed proud that its chair received this Royal Award of Officer in the Order of Orange-Nassau

[Pharmaceutical Accountability Foundation @PharmAccFound]

English translation of a press release of the Dutch Competition Authority (Netherlands Authority for Consumers and Markets, @AutoriteitCM) on #CDCA #Leadiant https://t.co/jVSVx03x0y

[Autoriteit Consument & Markt | ACM @AutoriteitCM]

De ACM verlengt het onderzoek naar het weesgeneesmiddel CDCA van fabrikant Leadiant: https://t.co/FJSBQIWA0E

[Pharmaceutical Accountability Foundation @PharmAccFound]

The Dutch Competition Authority ACM @AutoriteitCM announced today that they are continuing the investigation of pharmaceutical company #Leadiant in price setting of orphan drug #CDCA which became 500x more expensive since 2008. @StichtingFTV

[Autoriteit Consument & Markt | ACM @AutoriteitCM]

De ACM verlengt het onderzoek naar het weesgeneesmiddel CDCA van fabrikant Leadiant: https://t.co/FJSBQIWA0E

[Pharmaceutical Accountability Foundation @PharmAccFound]

SOMO reveals the financialisation of the pharmaceutical industry and the potentially deadly costs - SOMO https://t.co/VhFTWCnkzo

[Pharmaceutical Accountability Foundation @PharmAccFound]

the financialisation of Big Pharma - this cannot be sustainable

[SOMO @SOMO]

New @SOMO research reveals Big Pharma’s business model has shifted radically since 2000, with more investment in financial activities than in R&D for new drugs. This leaves the sector vulnerable in times of crisis, with potentially high costs for society. https://t.co/RV1Y3QXKBw

[Pharmaceutical Accountability Foundation @PharmAccFound]

Indeed the only correct decision by @Roche - share your secrets in this #CoronaCrisis! Next: join the global #COVID19 patent pool, so that we can act fast! @StichtingFTV Thanks, FTM!

[Thomas Bollen @mrtbollen]

Proud of my colleagues @EelkeA and @janheinstrop for exposing the failed monopoly strategy of Roche: keeping a crucial recipe for #coronatesting for themselves. Open source in the pharmaceutical industry is still underdeveloped. #timeforchange @FTM_nl
https://t.co/v1ZZ9g8PHI

[Pharmaceutical Accountability Foundation @PharmAccFound]

@brigittoebes @StichtingFTV @rechten050 het seminar van 27 maart is afgelast vanwege Covid-19

[Pharmaceutical Accountability Foundation @PharmAccFound]

@StichtingFTV benieuwd wat er nu gebeurt met het vergoedingsdossier Namuscla van #medicijnkaper Lupin in Zorginstituut Nederland. Hier is de vraagprijs ‘slechts’ €39 per capsule, ongeveer 300 keer de prijs van Boehringer uit 2005.

[Pharmaceutical Accountability Foundation @PharmAccFound]

If you start with the 11 pence/capsule price in 2005 for heart rythm problems by originator @Boehringer, the price increase is 420x as #LUPIN asks 50 pounds/capsule in 2018 for the orphan disease Non-dystrophic Myotonia. Uncceptable! @StichtingFTV

[Pharmaceutical Accountability Foundation @PharmAccFound]

Lupin has increased the price of mexiletine from €450 to €85000/patient/year. Cardiology patients now need off-label prescriptions of an excessively priced orphan drug! Continued misuse of orphan drug legislation: a life-threatening risk for mexiletine. https://t.co/wLIa9TsuY8

[Pharmaceutical Accountability Foundation @PharmAccFound]

@StichtingFTV Prijsstijging 420x: van 11 pence/capsule in 2005 voor hartritme stoornis (Boehringer Ingelheim) naar 50 pond/capsule in 2018 voor spierziekte niet-dystrophe myotonie (Lupin Europe Ltd) (bron: BNF, UK). Het cardiologie paper heeft een conservatievere schatting: slechts 188x

[Pharmaceutical Accountability Foundation @PharmAccFound]

Lupin has increased the price of mexiletine from €450 to €85000/patient/year. Cardiology patients now need off-label prescriptions of an excessively priced orphan drug! Continued misuse of orphan drug legislation: a life-threatening risk for mexiletine. https://t.co/wLIa9TsuY8

[Pharmaceutical Accountability Foundation @PharmAccFound]

inderdaad een gemiste kans, dit doekje voor het bloeden. Hoe kan een farma gedragscode niet praten over (redelijke) prijzen? Zorgplicht? @Wemos @ellenthoen @StichtingFTV

[Pharmaceutical Accountability Foundation @PharmAccFound]

The Amsterdam University Hospital #AUMC has restarted suppliying #CDCA for #CTX patients in the Netherlands. The price of the compounded capsules is less than 25% of the price asked by #Leadiant. https://t.co/Nk5BH6E2JV