RARE Northeastern

We are a student organization at Northeastern University that aims to increase awareness for rare diseases and provide support to those in need.

[RARE Northeastern @Rare_Neu]

This week we welcomed Mike Miller of the Huntington’s Disease Society of America! Thank you to everyone who came to our first speaker event of the semester! https://t.co/BAcmb9Y9vZ

[Rare Disease Day @rarediseaseday]

Out now! Download the official poster for #RareDiseaseDay 2020 now available via https://t.co/ZzrcyoRCDd. Share it today to show your support for the rare disease community!

[RARE Northeastern @Rare_Neu]

Update: THIS FUNDRAISER WILL BE MOVED to a later date due to an unforeseen cookie emergency!

[RARE Northeastern @Rare_Neu]

Marking our return to Twitter with an important PSA: We’re at Curry Crossroads today until 6pm selling insomnia cookies! 🍪🍪🍪

[RARE Northeastern @Rare_Neu]

First General Meeting - https://t.co/ce0a0uRBIv

[RARE Revolution Magazine® @RareRevolutionM]

BBC News - 'Amazing' gene-silencing drugs reach NHS
https://t.co/LhWqfl04D0

[Yoni - יוני @Primary_Immune]

The Power of Public Awareness & #SocialMedia Exemplified - Rarest of Blood Found Following Unprecedented Global Search https://t.co/acULdcEKbo #IoT #ITRTG #IT #advocacy #SciComm #MedEd #tech #blood #technology #awareness #BigData #RareDisease #inspiration #hematology #cancer

[Rare Disease Day @rarediseaseday]

Did you know that your organisation can support Rare Disease Day 2019 by becoming a friend today? >> https://t.co/Jc2CvpcZHJ

#RareDiseaseDay #ShowYourRare

[National Organization for Rare Disorders (NORD) @RareDiseases]

#OpenEnrollment ends on Saturday, December 15. Learn more about this critical time in choosing a 2019 #healthinsurance plan in webinar recording from #NORD policy department here: https://t.co/itpG18eb9I

[RARE Northeastern @Rare_Neu]

@GBSickleCell

[RARE Northeastern @Rare_Neu]

Join RareNeu at @NUafterHOURS tonight for a free musical performance by TEGA. All proceeds will be going to @SCDAAorg to support sickle cell disease! Succulent fundraiser at 7, concert at 8 🎤🎼🎉

[Rare Disease UK @rarediseaseuk]

Did you know.... The average #raredisease patient waits four years before receiving a correct diagnosis. That's why we call it 'diagnostic odyssey'.

[Raremark @RaremarkHealth]

About 80% of #RareDiseases have a genetic cause. Learn about basic #genetics in our Genetics 101 infographic! https://t.co/zHKEL26Mzo

[Stiff-Person-Syndrome @thetinman_org]

What is Stiff Person Syndrome? Despite being rare there are many sites where you can get information. https://t.co/OUeb14lBub @lizblows @DrPas84Ele #stiffpersonsyndrome #sps #oneinamillion #tinman #raredisease

[National Organization for Rare Disorders (NORD) @RareDiseases]

Retweet for #WednesdayWisdom: 30 Million Americans are living with #rarediseases and more than half of those individuals are children.

[RARE Northeastern @Rare_Neu]

We had a great time hearing from the Executive Director of @targetcancer this week! #rarecancers #rareresearch #raredisease

[RARE Northeastern @Rare_Neu]

Our members celebrated Rare Disease Day the best way we know how - spreading awareness to other students! #RareDiseaseDay #PatientDriven

[RARE Northeastern @Rare_Neu]

We’ll be tabling with these adorable Valentine’s Day succulents to raise awareness for @1p36DSA tomorrow in Curry Table #1B 10am-4pm, and Wednesday 12-6pm!

[RARE Northeastern @Rare_Neu]

Looking forward to our first spring general meeting tomorrow! We’ll be having a panel with NEU students impacted by rare diseases and discussing our plans for the semester

[WeHealth @WeHealthNews]

Today we celebrate Lily. A survivor and thriver of a rare disease called Ehlers-Danlos syndrome 🦋 🌟💜 @some1likeyouco