Stiff-Person-Syndrome

Help and Awareness for Stiff Person Syndrome

[Naidex @NaidexShow]

This wearable robotic garment suit, the MyoSuit, is an innovative functional training device, for patients with mobility impairments, designed to allow a more intensive gait-, strength- and endurance training. Visit them at stand N7072. @myoswiss

[Naidex @NaidexShow]

The team @StanleyHandling is on countdown to @Naidex where they will be
launching their new mobility ramps on stand N5101. Read more here
https://t.co/JXBuvOHEjD
#Naidex45 #WeAreAble

[A Chronic Voice @AChVoice]

“#MCTD and #yoga is a perfect combination because you can use all the aspects of yoga to help you manage the disease”: https://t.co/Z04wOxLJUd @BeeContentYoga #spoonie #chronicillness #painmanagement

[DrPasEle @DrPas84Ele]

@mindd #scientists support #RareDisaseDay 🧡 #WeAreInThisTogether
#RareSpecialPowers #RareDisease
@22Q11_Ireland @22qAwarenessDay @22qSyndrome @22q11Europe @findacure_fdn @ataxiaandme @AarskogSyndrome @thetinman_org @CDG_Portugal @UK_CDG @PMTJames @KIF1A @LabPapaleo @mydediego

[Stiff-Person-Syndrome @thetinman_org]

@CoriDean13 Have you checked out our Uk and Ireland website, it's full of information on Stiff Person Syndrome.
https://t.co/kSB3RGwweG

[Stiff-Person-Syndrome @thetinman_org]

Sorry, it's so bad today, fingers crossed that it's better tomorrow x

[Cori Dean ♿🫎🐿️👼🦇🐦‍🔥Xmen-97 @CoriDean13]

Lovely.. the attempt to nap failed.. autoimmune disease symptoms are crazy today.. #StiffPersonSyndrome..#MixedConnectiveTissueDisease.. #AutoimmuneDiseaseFighter

[Arya & Dexter @WeaverArya]

Friends - PLEASE SHARE for my friend Jill & her daughter Kylie: .
@TheEllenShow spending her childhood coping with pain most can't imagine. It's a serious illness - Stiff Person Syndrome, odds of diagnosis are about one in a million... https://t.co/9qyRRzph6l via @YouTube

[A Chronic Voice @AChVoice]

“Unlike death, when you have a #chronicillness, you can heal. You may not, but you can, and I believe it is perfectly alright to hold onto that #hope – In fact, I believe it is paramount to the #healing process”: https://t.co/t1Br5YjuBX @CallieDixon #normal #acceptance

[RARE Revolution Magazine® @RareRevolutionM]

Revolutionaries taking over the airways this week. https://t.co/FAD8fZaQsh

[Beyond the Diagnosis @BeyondtheDx]

We are so thrilled to have our @BeyondtheDx exhibit at Albert Einstein College of Medicine!!! #RareDiseaseDay #RareDiseases

[Karen Morgan-Beam @MorganbeamKaren]

I suffer from rare neurological autoimmune disease called stiff person syndrome. It affects one in 1 million people. There is no cure! Was diagnosed at UCSF in 1994 when severe spasms my legs and back kept me... https://t.co/7a4NyMlZyF

[Stiff-Person-Syndrome @thetinman_org]

There is so much information on Stiff Person Syndrome in one place here https://t.co/2NsVYCgsLS
#sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain @lizblows1 @DrPas84Ele @RareRevolutionM @findacure_fdn

[Rare Disease UK @rarediseaseuk]

Rare Disease UK are the official organisers of Rare Disease Day in the UK. Registration is now open for this year’s receptions. Why not read about last year’s events here: https://t.co/fbY7eLrwON #raredisease

[Guy @guywoodsliving]

"Do the one thing you think you cannot do. Fail at it. Try again. Do better the second time." - Oprah Winfrey #TuesdayThoughts

[Stiff-Person-Syndrome @thetinman_org]

Review of a book written by someone with stiff Person Syndrome
https://t.co/Zyrt6XSai9 #sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain @lizblows1 @DrPas84Ele @RareRevolutionM @findacure_fdn

[Cambridge Rare Disease Network (CamRARE) @camraredisease]

Where’s #RareDisease in the #NHS10yearplan? You’ll need to dig deep..point
3.115 states whole genome sequencing will be widely available, vital to better & earlier diagnosis. But a huge opportunity to support the 3.5k with rare in the UK has been missed https://t.co/s23flCzIxG

[DrPasEle @DrPas84Ele]

#article abt new #brain area identified, done by t #research center where Prof. #GeorgePaxinos works @ataxiaandme @ataxiascot @22Q11_Ireland @22qAwarenessDay @Stadsbader @findacure_fdn @MinddsAction @thetinman_org @PMTJames @AarskogSyndrome @RackerbyAmanda #rarespecialpowers

[Rare Disease UK @rarediseaseuk]

Did you know you can now donate to the Rare Disease UK campaign through our website? You can make a one off or monthly donations. Find out more here: https://t.co/DGq2mntPQ7

[Stiff-Person-Syndrome @thetinman_org]

10 facts about Stiff Person syndrome https://t.co/wJq7W0n7UW…
#sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain @lizblows1 @DrPas84Ele @RareRevolutionM @findacure_fdn
@RareDiseaseGh @camraredisease

[Stiff-Person-Syndrome @thetinman_org]

Stiff Person Syndrome videos
https://t.co/mcuOFRNYBu
#sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain @lizblows1 @DrPas84Ele @RareRevolutionM @findacure_fdn
@RareDiseaseGh @camraredisease