liz blows

Founder of SPS Charity and Support Group For Stiff Person Syndrome

[liz blows @lizblows1]

@LibbieRead Fab, I will look tomorrow. Thanks Libbie.🤣

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@ZoeTheBall Hi Zoe, U prb forot me. No charity card with me in Brighton Please look at https://t.co/ifAQjJPJqG (Hope you can respond). Luv & Stuff, Liz.

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@DrPas84Ele @ataxiaandme @22Q11_Ireland @22qSyndrome @RackerbyAmanda @ataxiascot @AarskogSyndrome @thetinman_org @PMTJames @CDG_Portugal @MinddsAction @RACC_UK @MMEthebook So worthy!

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@MRoseRoberts Hi Mary Rose, your cat is always in the sink because you are out doing the fabulous work which helps so many people, (but not your cat). lol

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@DrPas84Ele @22Q11_Ireland Any group will do well with Eleonora on your side. She was a tremendous mentor for Stiff Person Syndrome last year.

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@TheMightySite Both my adopted son and my nephew have autism, but not savants (French for 'to know') which is what 'Shaun' has in the Good Doctor.

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@findacure_fdn Well done all. I was at Westminster on Wednesday.

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@rarediseaseuk 1 in a million - are we not worth saving?

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Prime Minister Theresa May: Stop the NHS Denying Patients Access to Medical Cannabis - Sign the Petition! https://t.co/lc1lI0jNfY via @UKChange

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I’m supporting @rarediseaseuk by sharing my rare disease experience, to offer comfort and hope to other patients and their families. Illuminate the #RareReality Read my story and add your star for #RareDiseaseDay https://t.co/YCCrSr3zB0

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@DrPas84Ele @MuseoSanRufino @SpelloVMS @SpelloBC @Comuneperugia @MMEthebook @MinddsAction @findacure_fdn It's the 27th in England. (Brexit meetings need the rooms).

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@rarediseaseuk Sorry I missed it. Will it be available soon?

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Stiff Person Syndrome support Group; One in a million worlwide. We provide help, support to sufferers and their families. https://t.co/ifAQjJPJqG

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@findacure_fdn @RickSThomp @HealthEuropa No need for arguing, Patent groups ARE the strongest wepon against Rare Diseases. Who wants to be alone and feel alone with a Rare Disease?

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@DrPas84Ele @ataxiaandme @AarskogSyndrome @RackerbyAmanda @aneinternationa @ataxiascot @22Q11_Ireland @thetinman_org @PMTJames This is my pic for RDD 2019

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@findacure_fdn https://t.co/Wc0dCHAFzG

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@findacure_fdn Thanks, it's on our website under 'photo's. x

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@camraredisease @MattHancock I have been in touch with the Genetic Alliance, but they said "No" to Stiff Person Syndrome. Bar stewards.

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@findacure_fdn Already got train tickets!

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@RaisieBay @DrPas84Ele @RareRevolutionM @findacure_fdn Please look at our website https://t.co/ifAQjJPJqG and once you have emailed me at [email protected] you can be added to the world map. Perhaps there is someone close by with SPS you don't even know!