#August2021#SMAAwarenessMonth
"Factsheet on SMA"
SMA landscape is changing now. There's better understanding of pathogenesis, natural history n d multidisciplinary care n novel medicines.
Although we have come so far but we have miles to go before we sleep...#BattleAgainstSMA
@rashtrapatibhvn Pls do something for SMA community kids because they are suffering from long time.🙏
Inspite of availability of drugs in India they are unable to procure it because of the exorbitant cost of drug and desparately need govt support
@Subhash44690696@CureSMAIndia
Heartfelt gratitude 🙏🏻 🙏🏻 Honourable Health Minister @rajeshtope11 listenin our plea to save #SpinalMuscularAtrophy Patient. @curesmaindia shall remain forever indebted 2 U Sir. Ur name will b written in golden letters as d 1st health minister who helped us in
#BattleAgainstSMA
It’s Yuvaan’s life against, SMA- an extremely rare genetic disorder & Zolgensma- the world’s Costliest Medicine.Don’t let him fight alone. Join hands with me to give Yuvaan a chance to breathe.@SonuSood@SoodFoundation@FoundationSonu#ihelpyuvaan
Donate: https://t.co/mYolSGkg0V
एक छोटीशी मदत या चिमुकल्याचा जीव वाचवू शकते
👉 GOOGLE PAY/PHONE PAY NO: 8237945466 / 7875012055
👉 UPI ID : SUPPORTYUVAAN@YESBANKLTD
👉 BANK ACCOUNT:
YUVAAN AMIT RAMTEKKAR
ACCOUNT NO: 40150960390
IFSC : SBIN0017292
SBI BRANCH RAVET
👉 https://t.co/t6fdA5zUQe
@YUVAANFIGHTSSMA
Baby Yuvaan is fighting a dangerous illness - SMA Type 1, he needs #Zolgensma, costs $2.1million or about Rs 16cr. Even Rs. 10, 50, 100 or any other amount, can help.
@YuvaanFightsSMA
Donate @ImpactGuru https://t.co/otqQzwQzJi
.@YuvaanFightsSMA with courage and might, but he needs #Zolgensma worth Rs. 16 CR ($2.1 million) to survive the world's most expensive illness.
@ImpactGuru
Link to donate: https://t.co/UWYCXYqSPd
A 15 months old baby won't survive without your help, he needs 16 crore for his treatment.
@YuvaanFightsSMA, is suffering from a rare disease called 'SMA' and I request you to share this message and donate.
Please help as much as you can
https://t.co/Bym83JYnxl
Gpay :7875012055
Baby Yuvaan of 15 months suffering from rare disease #SMA required urgent treatment of #ZolGenSMA from USA cost $2.1 million (16 cr).
@anandmahindra please help us to save yuvaan without treatment he won't survive.
#ihelpyuvaan
Donation link & details : https://t.co/u6IUFfcLIu
Yuvan Ramtekkar, a 13-month-old baby, has a very rare disease called as 'spinal muscular atrophy'. To treat him a injection costing 16 crores needs to he imported from abroad. Request you all to help Yuvan as much as possible.
Mother Rupali- 8237945466
https://t.co/BD2cDhgFSX
Everyone says cute,handsome!! Can everyone please tell me should I have right to live.But for my life medicine is in USA (#ZolGenSMA) cost 16cr and I am living in INDIA. What is wrong with me?? Please give answer and help me.#SMA#babyyuvaan_fights_sma@SonuSood@BeingSalmanKhan
Ray of hope for the SMA fighter Yuvaan (14 months old) is #ZolGenSMA (USA)cost 16 crore rs. Please help to speedy recovery due to less time in hand.Spinal Muscular Atrophy (SMA) is progressive rare genetic disorder affect muscle weakness. @anandmahindra@MukeshAmbanima@PMOIndia