RAJESH MUTYALA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We r deeply honoured n grateful 2 Shri Jayesh Ranjan Garu @jayesh_ranjan , IAS,Special Chief Secretary, Metropolitan Area & Urban Development, 4 extending his valuable support 2 the 4th edition of Run for SMA and sharing his heartfelt message with all of us.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

[Alpana Sharma @alpanaS16]

We @curesmaindia r requestin @MoHFW_INDIA @FinMinIndia @nsitharaman @PMOIndia 4 GSTexemption Thank @vinodkumarmenon @mid_day 4highlight d urgentneed #raredisease
https://t.co/sIzZDKzBYS mumbai-news/article/budget-2025-why-no-gst-relief-for-rare-disease-drugs-ask-parents-23477119

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

HEALTHCARE FOR ALL!
Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future
@MoHFW_INDIA
@rashtrapatibhvn

#right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

[CPI(M) Keralam @CPIMKerala]

Kerala became the first Indian state to offer free medicine for rare diseases, implementing the CARE scheme for comprehensive rare disease care.1/2

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@CPIMKerala Huge thanks to the Govt of Kerala @iprdkerala for the KARE scheme and their unwavering support to SMA patients. Providing Risdiplam for children under 12 is a life-changing initiative. Your commitment to healthcare is commendable! #Kerala #KAREscheme #SMA #HealthcareHeroes

[Alpana Sharma @alpanaS16]

Heartfelt gratitude 2 anonymous donar @vinodkumarmenon & @mid_day 4 coverin d plight of SMA patient We @curesmaindia r requestin 4 Govt support @CMOMaharashtra @Devendra_Office @Dev_Fadnavis @mieknathshinde @DrSEShinde please helpus save Akriti’s life 🙏🏻 https://t.co/HcpVZpFRtm

[Archana Vashist Panda @PandaVashist]

Thx @KolanuSailesh @VenkyMama @vboyanapalli @Nawazuddin_S @arya_offl @ShraddhaSrinath 4 highlighting #SpinalMuscularAtrophy in yr movie #Saindhav. U fulfilled yr promise 2 #SMA community during #Run4SMA Marathon in Aug 23'. V hope it'll help spread #SMA Awareness 🤞.

[RAJESH MUTYALA @SMA_FATHER]

Dear Sir,

Pls do the needful

[abhinand @abhi_bioinfo]

@Udhaystalin அண்ணா, தங்களுடைய சேப்பாக்கம் தொகுதி வீரராகவன் தெரு 184 வீட்டிற்குள் கழிவு நீர் புகுந்து முழுவதும் அடைத்திருக்கிறது. Toilet கூட பயன்படுத்த முடியாத நிலையில் இருக்கிறோம். நான் ஒரு #spinalmuscularatrophy மாற்றுத்திறனாளி. #ChennaiFloods #

[abhinand @abhi_bioinfo]

@Udhaystalin அண்ணா, தங்களுடைய சேப்பாக்கம் தொகுதி வீரராகவன் தெரு 184 வீட்டிற்குள் கழிவு நீர் புகுந்து முழுவதும் அடைத்திருக்கிறது. Toilet கூட பயன்படுத்த முடியாத நிலையில் இருக்கிறோம். நான் ஒரு #spinalmuscularatrophy மாற்றுத்திறனாளி. #ChennaiFloods #

[Alpana Sharma @alpanaS16]

@cherylmollan @BBCIndia @BBCWorld @BBCBreaking thanks 4 coverin our story of struggle. We @curesmaindia hv been requestin @PMOIndia @narendramodi @MoHFW_INDIA @mansukhmandviya to save precious lives. Where u live sudnt determine if u live #BattleAgaistSMA
https://t.co/opOpXLRwqF

[Moumita_SMA_Mom @MoumitaG_17]

Proud of @alpanaS16

[IHW Council @IHWCouncil]

We are honored to announce Ms. @alpanaS16, Co-Founder & Director- Patient Advocacy of @curesmaindia, as a distinguished speaker at the 2nd IHW Patient First Summit & Awards on November 3rd at ITC Grand Central Hotel, Mumbai!

Join us to hear her perspective on patient-centric care and the future of healthcare.

Set a Reminder to Watch LIVE on 👇

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@Wolters_Kluwer

#PatientFirstSummit #PatientCentricCare #IHWSummit #IHWCouncil

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Small actions , big impact. Raise awareness , Change lives. Join #FightAgainstSMA Support #SMAwarriors #SaveSMAlives #SupportSMArun #SMAawareness #RunforSMA #SmackSMA

[Srilakshmi Nalam @srilakshminalam]

@curesmaindia @ts_health @KTRBRS @SwetaMohantyIAS @wdscts @TelanganaCMO Request everyone to join the first ever #RunForSMA by @curesmaindia Necklace Road, Hyderabad 2 create awareness about #SMA among the public. It helps in sensitising the community around us and also aids in prevention of #SMA. @KTRBRS
@BRSHarish @TS_HMFW @jayesh_ranjan @drgsrao

[satish @satisht24]

Respected Sir @KTRBRS @BRSHarish , Kindly support Telangana #SpinalMuscularAtrophy Warriors and Save their life , Show mercy on us , we lost many #SMA kids so far.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We extend our heartfelt appreciation to the Kerala govt. @KeralaHealth & the medical team at SAT Hospital, TVM for their exceptional work in correcting the 130-degree curve in 14-year-old Ziya Mehrin. Your unwavering dedication & expertise are transforming lives #gratitude

[satish @satisht24]

Respected @elonmusk kindly let us know, is Neuralink solutions will help #SpinaMuscularAtrophy kids , kids with #SMA are battling with their life and every day big challenge for them , even their is a medicine but affordability is big challenge, as an innovator pls save #SMA kids

[Samiksha Reddy @SamikshaReddy]

Please find the reports attached in the following link.
Looking for your support in the case as you’ve been very advocating towards the needs of the public.

https://t.co/WB3E0YbkqT