Sally Atwood

Wife,Mom & Nana 8 grandchildren. Tyler Tx Diagnosed with Bulbar ALS 11/2020. ALS is taking over my body. Can’t eat, chew, swallow, drink now legs are going. 🥊

[Sally Atwood @SallyAtwood_]

@nicolecimbura @FDA @AmylyxPharma @klink52 @ThurmanTough @SarahNauser @JamieRoseBerryy @RepJasonCrow One point means I have a chance to turn over in bed, swallowing, being able to dry my hair, being independent,brushing my teeth .

[Sally Atwood @SallyAtwood_]

II thought perhaps I had missed NU9 articles or You Tube videos. I know you are all working to cure ALS. I would like to be considered for Phase 1 trial , if I’m still alive by then.

[Sally Atwood @SallyAtwood_]

~@DrOzdinler I haven’t heard any updates on NU9 in a while. Can you bring us up to speed?

[Sally Atwood @SallyAtwood_]

@pmich75 I didn’t know your Mom had ALS.

[Sally Atwood @SallyAtwood_]

@bsw5020 Both

[JamieRoseBerryy @JamieRoseBerryy]

I took a header off the toilet. I can’t lift my arms for protection= Full impact to my head. I could feel the pool of blood. Curled up, I couldn’t breathe or yell. Semi conscious, pants down-it was Horrible. As I lay there, I prayed @BrainstormCell would file the BLA for #NurOwn

[Sally Atwood @SallyAtwood_]

~@SenatorMenendez Thank you so very much for agreeing to sponsor #S1813 #ACTforALS . You are giving people with ALS and other Neurodegenerative diseases a chance to change the course of their lives. We want a #Hope and a Cure #ScheduletheVote

[Sally Atwood @SallyAtwood_]

~@SenBooker Thank you so much for your sponsorship #ACTforALS S1813. It’s past time to find treatments and a cure for ALS and other Neurological diseases. Together we can make it happen.

[Sally Atwood @SallyAtwood_]

~@MarshaBlackburn Thank you for sponsoring #S1813 #ACTforALS. All of us with ALS and our #Veterans who served appreciate you. We offer prayers for the great state of Tennessee ,as you recover from the devastation caused by the tornadoes.

[Jamie Schler @lifesafeast]

I’d like to point out that as someone who was a caregiver to two family members who suffered & died from #ALS neither @RepThomasMassie nor @chiproytx explained to me why they voted no to #ACTforALS when I asked.

[Chip Roy @chiproytx]

@lifesafeast @RepThomasMassie I don’t see most tweets, & I rarely respond directly. But given the people I care about I’ve seen die from this terrible illness, & given your personal losses - with respect, I will reply. Rest assured, the bill will pass. Godspeed. Here is my statement: https://t.co/FZMgIJfTOb

[JamieRoseBerryy @JamieRoseBerryy]

This is awesome. One of my best friends just bought me a real-deal-Holyfield 22 Smith jersey. I live in 49er turf, but I’ve been a die hard Cowboys fan since birth. To see their support here kicks fuckin ass. Thank u @dak And @EmmittSmith22 for caring. #EndALS

[Dak Prescott @dak]

This week we celebrated #ACTforALS being passed in the House. Today I ask the Senate to do the same and pass #S1813. ACT for ALS gives hope to the ALS community by increasing access & development of promising treatments. Please sponsor this bill @JohnCornyn @SenTedCruz

[JamieRoseBerryy @JamieRoseBerryy]

These pics were taken 1 year apart. Imagine my life if @FDACBER had decided that #SomeIsEnough My life is not mine. It’s a ball in the FDAs game, bouncing between FDA & @BrainstormCell *. @Cylebo Please #FileTheBLA before the clock ticks to 0:00 & it’s Game Over for Jamie.

[Sandy Morris @sandymorris333]

Submit the BLA now.
I've personally benefitted from this therapy. I've stated this many times. Clearly my voice isn't enough, but a deeper dive into this therapy @FDACBER will show you that @BrainstormCell's therapy works.
For sure for some, possibly for many.
#LivingProof

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

. #Veterans get fatal ALS from serving our country

Post 9/11 #Vets are getting #ALS younger & at "significantly higher" rates

@SVACDems @SVACGOP
Pass #ACTforALS to give them a chance!

@iava @VFWHQ @DAVHQ @GarySiniseFound @wwp @foldedflagorg @PVA1946

https://t.co/yrxwvLb2Zr

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Thx @MarshaBlackburn for cosponsoring #S1813 - the #ACTforALS. Your support is important to everyone in the #ALS community, but especially to #Veterans since you serve on the VA & Armed Services Committees.

We will keep #Tennessee in our prayers!

#ScheduleTheVote @GOPHELP

[Sally Atwood @SallyAtwood_]

.@SenatorHagerty Thank you most sincerely for sponsoring #S1813 #ACTforALS. It means everything that you took time out during your states devastation of tornado’s to sponsor this bill. Prayers have been said for the citizens of #Tennessee that are trying to recover🙏

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Please spread the word re rising risk of #ALS for our post 9/11 #Veterans

@LisaLegacy4ALS @als_now @stevens_nation @Team_Thriving @iamalsorg @TeamGleason @ProjectALSorg @alsone_official @bsw5020 @ScottFightsALS @ChrisSnowCGY

@MilitaryTimes @TaskandPurpose @starsandstripes

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Biomarkers may be enough for Accelerated Approval of #NurOwn for #ALS

“Worst thing we could do is dismiss a drug that actually could be helping people, even if it’s a subset”
~ @MeritCudkowicz of @MGHMedicine

#FileTheBLA #NurOwnWorks
@FDACBER @RepAnnaEshoo @RepSchakowsky